CYSHCN

Children and Youth with Special Health Care Needs
mother with child

CoP ASD/DD Virtual Gathering
October 13, 8:30am-12:00pm
Hope: High Expectations Across the Lifespan

Registration More

Welcome to the Southern Regional Center for Children and Youth with Special Health Care Needs!

Check out upcoming trainings from Southern Regional Center and our partners!

Oct 20

What’s After High School — SERC 10.20.21

October 20 @ 5:00 pm - 6:30 pm

The Southern Regional Center is open, but we are working remotely.  You may call 608-265-8610 or 800-532-3321 and leave a message. If you could spell out your email address in your message, that will help us to follow up with you more quickly.  When we call back, we may call from a number that shows as blocked.  If you cannot wait and have a more immediate need for health information and referral, you could call the Well Badger Resource Center at 800-642-7837.

Would you like to stay updated and informed? We send out a weekly resource roundup. Email cyshcn@waisman.wisc.edu and ask to join the SRC4family listserv. You can also “Follow” us on Facebook for even more information.

NEW website holding information on Conversations on Showing Up for Kids! Check out this easy way to listen into conversations that might help you. https://cyshcn.waisman.wisc.edu/conversations-on-showing-up-for-kids/

Connect With Us

wisconsin southern region map
Our Southern Regional Center serves the following counties: Adams, Columbia, Crawford, Dane, Dodge,Grant, Green, Iowa, Juneau, Lafayette, Richland, Rock, Sauk and Vernon, shown in orange on the map.
Contact the Southern Regional Center.
Call: 1-800-532-3321
Email: cyshcn@waisman.wisc.edu

The Southern Regional Center (SRC) uses a listserv to inform families about upcoming trainings and events in our region and opportunities for state and national input. In 2020, families joined us in reviewing the Navigation Guide and starting Conversations on Showing Up for Kids! Do you want to stay informed and get involved? Send an email to join-src4family@lists.wisc.edu. You can unsubscribe at any time.

If you need to contact another regional center, please download a brochure at https://www.dhs.wisconsin.gov/publications/p4/p40051.pdf

Focus on FASD (Fetal Alcohol Spectrum Disorder)

Educational Care for Children Affected by Prenatal Alcohol Exposure  Sept 23, 6:00pm-7:00pm CT  National FASD Collaborative

Advancing FASD Research, Services and Prevention Act (FASD Respect Act) A bill that will bring Fetal Alcohol Spectrum Disorder (FASD) into the forefront of our health, education, social welfare, and justice systems.

  • Learn about this bill (Senate Bill S.2238 and House Bill H.R.4151). You can read more about the bill on the NOFAS website HERE.
  • Contact jwille@orchidsfasdservices.org if you would like to receive a recording of a meeting going over the bill and discuss what impact it could have for us in Wisconsin.

What’s New


School Information, Guidance and Resources for COVID-19–now on our School/Special Education Page

Resources for children with special health needs and the families who care for them

Don’t worry about calming the storm. Calm yourself; the storm will pass. -source unknown

Safe, Strong & Healthy Schools with Wisconsin doctors, educators, scientists, and leaders exploring the ways that schools and districts can build and maintain “Safe, Strong & Healthy Schools”

ReSET (Restarting Safe Education & Testing) for Children with Medical Complexity from Healthy Kids Collaborative Dane County

COVID-19 Infection Control and Mitigation Measures for Wisconsin Schools 2021/2022 (8/5/21)

Guidelines for the Prevention, Investigation, and Control of COVID-19 Outbreaks in K-12 Schools in Wisconsin (8/5/21)

Waisman Center Resources and Updates for COVID-19

WI DHS Higher Risk/Families with CYSHCN Resources for COVID-19

Spotlight Wednesday, September 22

Transition through Life’s Stages (Financial Planning) Sept. 28, 6:30pm-8:00pm at Vintage Brewing Company. Free workshop from Wilson Law Group, LLC. You need to register before September 24th.

Do you know a self-advocate who is ready to improve their leadership skills, speak up for themselves and participate more in their own planning meetings? The Arc Wisconsin Academy Self-Advocacy Leadership in Action Course is for you! This 7-session on-line course is designed by experts in the field of intellectual and developmental disabilities (I/DD) and delivered in partnership with self-advocate trainers. (Course tuition is being funded by Family Care and IRIS; open to exploring funding through CLTS and school transition programs.)

Register by October 1

Course outline

Course support includes monthly individual check-ins, individual goal setting, monthly (fun) homework and more!

Tuition costs can be included in your person-centered plan if approved! $240

Free Transition Trainings for Families of Youth with IEP’s Registration Now Open for 2021-2022

Upcoming webinars/trainings/conversations/gatherings

Serving on Groups: Opportunities to Get Involved and Types of Groups (Sec 1&2)  Sept 23, 12:00-1:00pm from WI FACETS

Educational Care for Children Affected by Prenatal Alcohol Exposure  Sept 23, 6:00pm-7:00pm CT  National FASD Collaborative

ABLE Account Strategies Seminar Sept 23 7:00-8:00pm from Joel Dettwiler (online event)

Sina Davis Movies in the Park  Sept 24  7:00pm  Spaceballs  Peace (Elizabeth Link) Park

Cultural Diversity in Disability & Mental Health Services Sept. 28, 1:00pm-2:30pm CT Webinar from MHDD

Transition through Life’s Stages (Financial Planning) Sept. 28, 6:30pm-8:00pm at Vintage Brewing Company. Free workshop from Wilson Law Group, LLC. You need to register before September 24th.

Special Education and Pupil Discrimination – Legal Updates  Sept 29, 12:00-1:00pm from WI FACETS

Inclusive Fall Festival —  free family event for AAC users and all abilities  Oct 2, 12-2pm Elver Park (Pavilion near inclusive playground). Bring your child’s AAC device and explore different communication devices available. There will be interactive how-to stations with AAC specialists on-site to share effective communicate strategies. Presented by Aspire Therapy and Variety: the children’s charity of Wisconsin. Registration.

UW-Whitewater LIFE Program Open House  October 8, 9am-3pm The University of Wisconsin-Whitewater LIFE (Learning is for Everyone) program will provide a complete college experience for young adults between the ages of 18-25 who have an intellectual disability.

2021 Wisconsin Infant and Early Childhood Mental Health Virtual Conference October 11-12, 2021  Scholarships available.

October 13th is the CoP ASD/DD Virtual Gathering (Free)
Hope: High Expectations Across the Lifespan
This day is a partnership with CESA #1, Milwaukee Urban Autism Summit and Autism Society of Southeastern Wisconsin
Registration is open!
We welcome Lola Dada-Olley speaking on Hope: High Expectations Across the Lifespan
Details on our Connections website.

Supporting Neurodiverse Students Professional Learning System (SNS) — The goal of the SNS is to support a skills based approach to challenging behaviors that will improve a student’s social understanding and self-management. Upcoming Trainings:

Regulation: Where Do We Start?  Oct 4, 1-3 pm Virtual
Co-serving, Integrated Experience and Anxiety  Oct 14, 8:30am-3:30pm Held at CESA 9 in Tomahawk
Autism Through the Lens of the WI DPI Criteria  Oct 15, 8:30am-3:30pm Held at CESA 6 in Oshkosh
Processing Thinking – Resilience and Flexibility Oct 19, 8:30am-3:30pm Held at CESA 5 in Portage
Autism Through the Lens of the WI DPI Criteria  Oct 21, 8:30am-3:30pm Held at CESA 12 in Ashland
Anxiety and Behavior Impedes Learning? Empower Students and Self Management Through Visuals  Oct 26, 8:30-3:30pm Held at CESA 10 in Chippewa Falls
Processing Thinking – Resilience and Flexibility Oct 28, 8:30am-3:30pm Held at CESA 11 in Turtle Lake

More virtual and online trainings in November!

Children Come First Conference, November 15-16, Kalahari Resort

Week of September 21

Every Child Belongs: Welcoming a Child with a Disability from naeyc

How do I know when to keep my child home from school? from Allergy and Asthma Network

Eczema in Skin of Color from Allergy and Asthma Network

Become A Leader in Changing State Policies and Practices! Wisconsin Partners in Policymaking is a six‐session advocacy and systems change training program that develops future leaders across the state who are able to work with legislators and communities on policies and initiatives that will support the full participation and inclusion of people with developmental disabilities in all aspects of life.
Applications due October 1, 2021 by noon. Apply Here

Intervention For Babies Greatly Reduces Odds Of Autism Diagnosis, Study Finds from Disability Scoop

What BIPOC Communities Need From Mental Healthcare from NAMI Dane County

Research Studies:

Week of September 14

Do you identify as a parent of a child in K-12 public schools in Dane County? Has that child been evaluated or referred for special education? Do you identify as Black or Latinx/o/a? You are invited to  fill out a survey about the parent experience in navigating special education. Limited number of gift cards are available to participants. Go to bit.ly/parent_survey2021 or contact Lydia at lgandy@wisc.edu.

Tiene un/a hijo/a que asiste a una escuela pública de grados K-12 en el condado de Dane?
Tiene un/a hijo/a que ha sido evaluado o referido para educación especial?
Se identifica como negro o latino/x?
¿Acaso usted:
Si respondió que sí a todas estas pregutnas, está invitado/a a completar nuestra encuesta sobre la experiencia de los padresal navegar la educación especial.
Tarjetas de regalo disponibles para los participantes de la encuesta hasta agotar existencias.

bit.ly/parent_survey2021  Si tiene alguna pregunta, comuníquese con Lydia por correo electrónico: lgandy@wisc.edu o llame

Since 1958, the month of September and the last full week of September has been designated as Deaf Awareness Month/Week.

The purpose of Deaf Awareness Month/Week is to come together to increase public awareness of deaf issues, people, and culture, and to celebrate their accomplishments and promote their rights. We hope this short resource list helps you learn more about it and have fun too! Feel free to share this far and wide to help bring awareness to others in your communities and families. The more people know about your child’s needs the better.

Historical information: https://www.verywellhealth.com/deaf-history-and-heritage-1048377

Books and movies/TV series with deaf awareness themes: https://www.verywellhealth.com/deaf-awareness-week-1046519

Kid-friendly ideas of how to celebrate Deaf Awareness Week, provided by North Dakota School for the Deaf in 2017, but is still relevant today: https://www.nd.gov/ndsd/sites/ndsd/files/documents/docs/deaf-awareness-week/Deaf%20Awareness%20Packet%202017%20Final.pdf 

Martha’s Vineyard – A Deaf Utopia. In the early 19th century, children from Martha’s Vineyard island brought their language to America’s first school for the deaf, where it mingled with French Sign Language and other colloquial home sign traditions creating much of the uniquely beautiful American Sign Language that exists today: https://www.verywellhealth.com/deaf-history-marthas-vineyard-1046546

Rev. Thomas Hopkins Gallaudet (1787-1851) was a pioneer in deaf education. He was the impetus behind the creation of the first school for the deaf in America – now the American School for the Deaf in Hartford, CT – and was for many years its principal. Gallaudet’s devotion to bridging the communication gap between the hearing and deaf people were unflagging. One of his sons, Edward Miner Gallaudet, helped to found the first college for deaf students, which would become Gallaudet University: https://weta.org/press/through-deaf-eyes-prominent-figures-deaf-history

Andrew Jackson Foster (1925–1987) was a missionary educator to the deaf in Africa from 1956 until his death in 1987. Foster was deafened by spinal meningitis at age 11, and attended the Alabama School for Colored Deaf in Talladega. When his family moved to Detroit in 1942, he worked in a military-equipment factory, studying at night. A missionary’s public lecture about deaf Jamaicans inspired him to choose an evangelical career. With the encouragement of Eric Malzkuhn, he became Gallaudet College’s first and only black student to ever have been accepted at Gallaudet; four years later he became the first black, deaf graduate of Gallaudet in 1954 with a B.A. in Education. He then went on to achieve two Master’s degrees: https://ifmyhandscouldspeak.wordpress.com/2010/03/18/andrew-foster-the-gallaudet-of-africa/

Previous highlights

The WI Children’s Mental & Behavioral Health Navigator is a free, confidential, online tool designed to help parents, caregivers and professionals in Wisconsin navigate (find, access, pay for) mental and behavioral health services and support for children, adolescents and young adults under the age of 21. Just answer a few questions about the child, and the Navigator provides a customized guide to connect kids and families with the resources and support they need and deserve. Developed by Well Badger Resource Center.

Revised Katie Beckett Fact Sheet from Family Voices of Wisconsin

Katie Beckett Medicaid Helps Children with Disabilities Access Needed Services

Katie Beckett Medicaid provides access to Wisconsin Medicaid services for children with disabilities, mental illness, or complex medical needs. Katie Beckett helps some children whose parents have too high of an income for Medicaid, and those covered by private insurance, get a ForwardHealth Medicaid card so they can receive needed services and equipment that might not otherwise be covered.

To apply, families can call 888-786-3246. They will be connected with an eligibility specialist who will explain the Medicaid benefit and help the family decide if they want to pursue enrollment.

Learn more on the Wisconsin Department of Health Services website.

Disability Information and Access Line Help with COVID-19 vaccinations for people with disabilities from Administration for Community Living

Dane County Behavioral Health Resource Center — If you, someone you care about, or someone you are working with needs help finding mental health and/or substance use services in Dane County.The BHRC phone line is available Monday to Friday 7am to 7pm at (608) 267-2244; Email the BHRC at BHRC@countyofdane.com

Wisconsin Well Badger Resource Center is a statewide public health Information and Referral (I&R) service and resource program offering a toll free phone line and website for Children and Youth with Special Health Care Needs and more. Well Badger is staffed to provide information and referrals with a deliberate focus to engage high-risk populations and for those with special needs.
Website: https://wellbadger.org/
Phone: 1-800-642-7837

The Southern Regional Center for Children and Youth with Special Health Care Needs tries to help families, and the professionals who support them, through providing current resources, news articles, interesting items and more. We post “What’s New” on our home page each week. We regularly post this content and more on our Facebook page. We send out a weekly Resource Round-up on Fridays (send an email with Weekly Resource Round-up in the Subject Line to cyshcn@waisman.wisc.edu to join).We bring together the “What’s New” resources by topic and place them on the Resources page. We hope you can find some help, encouragement, or just information on this page. New content is added regularly.