mother with child

Encuentre su Camino
Una guía de orientación para las familias de Wisconsin que tienen niños y jóvenes con necesidades de atención médica especiales y disca

https://ucedd.waisman.wisc.edu/encuentre-su-camino/ More

Featured Resources and Events

Supported Employment Provider Coalition (SEPC)  Nov 1, 2022  Recording   Resource Sheet   Slides  Everyone can work: learn about how individuals can maintain meaningful and successful employment after high school through a collaboration between schools and multiple vocational agencies in Dane County. Part of Transition Talks Tuesdays with Madison Metropolitan School District

What do Families Need? Nov 1, 2022  Recording   Resource Sheet Come join our Family Panel as we discuss what families need and how we can support each other. Part of Conversations on Showing up for Kids!

November Recommended Book of the Month – provided by E.D. Locke Public Library Youth Services staff

A Kind of Spark by Elle McNicoll is a middle grade novel about Addie, who has autism spectrum disorder (ASD). When Addie discovers that her small Scottish town used to burn witches simply because they were different, a neurodivergent girl who sees and hears things others refuses to let them be forgotten.

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Upcoming trainings/events/gatherings from Southern Regional Center and our partners!

Jan 10

TTT MMSD: Health Care Changes Too! Bridging the Gap

January 10, 2023 @ 6:00 pm - 7:00 pm
Jan 24

TTT MMSD: Supported Decision Making and Guardianship

January 24, 2023 @ 6:00 pm - 7:00 pm

COVID Information Corner (Week of 10.17.22)

Good news! This week, the bivalent COVID booster was approved for children ages 5-11. It was already available to anyone over the age of 12. This is good news for everyone, but especially for many of our children with disabilities. They may be at higher risk of problems from COVID.

· Are you confused about if or when you or your child can get the boosters?

· Where can you get the COVID vaccine or booster?

  • Primary care clinics
  • Pharmacies
  • Public health departments
  • Community vaccine sites
  • Find a place at www.vaccines.gov

Focus on FASD
(Fetal Alcohol Spectrum Disorder)

Advancing FASD Research, Services and Prevention Act (FASD Respect Act) A bill that will bring Fetal Alcohol Spectrum Disorder (FASD) into the forefront of our health, education, social welfare, and justice systems

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Free Webinars on FASD

Over 30 recorded live webinars on an amazing number of topics.

Across the Lifespan training series of on-demand webinars.

More information on FASD Research, Services and Prevention Act (FASD Respect Act)

Learn about this bill (Senate Bill S.2238 and House Bill H.R.4151). You can read more about the bill on the FASD Collaborative website HERE.

Contact jwille@orchidsfasdservices.org if you would like to receive a recording of a meeting going over the bill and discuss what impact it could have for us in Wisconsin. Jackie will be traveling to Washington D.C. the week of 9/19 for the annual FASD United Affiliate Summit. While there, she will be meeting with Congressional leaders to gain their co-sponsorship of a vital piece of legislation. She will submit your personal stories in dealing with FASD directly to your Congressional representatives. Please send a story with your experiences and challenges with FASD to jwille@orchidsfasdservices.org. Be sure to sign, date, and include your full address so that your story can be routed to the correct senator and representative.

Commonly used referral forms: Physicians, WIC, ADRC

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Commonly Used Referral Forms

What's New?

Resources for children with special health needs and the families who care for them

Don’t worry about calming the storm. Calm yourself; the storm will pass. -source unknown

Featured Resources and Events — Monday, November 28

Sign-up now for SRC sponsored events:

  •  Assembling a Care Notebook (virtual) Nov. 29, 6:00-7:00pm Registration Care Notebooks are a way to organize a child’s medical records, resources and educational information. Join us to learn ways to assemble and organize a Care Notebook and the benefits of using it to coordinate care.
  • Researcher Spotlight: Leann Smith DaWalt  Nov 30, 12:00-12:45pm Registration  Come meet Leann! She likes to talk about how disability affects the family system, how folks need to be supported, how people transition to adulthood  and she directs the University Center for Excellence in Developmental Disabilities. Part of Conversations on Showing up for Kids!
  • Bridging the Gap (virtual) Dec 1, 12:00pm-1:00pm Registration This is a free presentation for families, youth, and community members, including health and service providers, school staff, and anyone interested in learning about healthcare transition. We will discuss what health care transition is, tools to help build skills to manage one’s own health care, and how health care matters to the other areas of transition.
  • Exploring Care Mapping (in-person) Dec 2, 8:30am-9:30am Registration Held at Coffee4All at 2300 Hwy 51 in Stoughton. A hands-on opportunity to create a care map. A Care Map is a visual way to show all the people and services involved in caring for and supporting a child with special health care needs. Each family’s care map may look different as each family decides how many details to include.
  • Disability Work Benefits: Navigating Work and Support Dec 6, 6:00-7:00pm part of Transition Talks Tuesdays with Madison Metropolitan School District
  • Thinking About Supported Decision Making (virtual) Dec 6, 12:00pm-1:00pm Registration This workshop from Family Voices of Wisconsin explains what families need to know about decision making supports and tools available in Wisconsin. This training will be most helpful for families who have children ages 14 and older with disabilities and the providers and educators who work with them.
  • Build Your Bridge (virtual) Dec 8, 12:00pm-1:00pm Registration This is a free presentation and conversation to help guide families through the transition from child-centered to adult health care systems. Youth and families are often overwhelmed and under-prepared for the transition to adult health care. This presentation will introduce and discuss when to start thinking about health care transition as well as provide helpful tools and resources.
  • Did You Know? Now You Know! (virtual) Dec 12, 12:00pm-1:00pm Registration  Come learn about a variety of resources and services for children with disabilities and special health care needs. We will cover information that applies to children from birth through young adulthood. Topics include private health insurance, Medicaid, long-term supports, how to coordinate services and so much more.

Resources:

November Recommended Book of the Month – provided by E.D. Locke Public Library Youth Services staff

A Kind of Spark by Elle McNicoll is a middle grade novel about Addie, who has autism spectrum disorder (ASD). When Addie discovers that her small Scottish town used to burn witches simply because they were different, a neurodivergent girl who sees and hears things, refuses to let them be forgotten. 

Upcoming webinars/trainings/conversations/gatherings

Assembling a Care Notebook (virtual) Nov. 29, 6:00-7:00pm Registration Care Notebooks are a way to organize a child’s medical records, resources and educational information. Join us to learn ways to assemble and organize a Care Notebook and the benefits of using it to coordinate care.

Researcher Spotlight: Leann Smith DaWalt Nov 30, 12:00-12:45pm Registration  Come meet Leann! She likes to talk about how disability affects the family system, how folks need to be supported, how people transition to adulthood  and she directs the University Center for Excellence in Developmental Disabilities. Part of Conversations on Showing up for Kids!

Community Forum: Enhancing Equity for Maternal and Child Health Strategies Nov 30 9:30-10:30am from Wisconsin DPH Maternal and Child Health We want to learn more about your ideas for strengthening our approach to centering equity within our funding, programs, and partnerships.

Bridging the Gap (virtual) Dec 1, 12:00pm-1:00pm Registration This is a free presentation for families, youth, and community members, including health and service providers, school staff, and anyone interested in learning about healthcare transition. We will discuss what health care transition is, tools to help build skills to manage one’s own health care, and how health care matters to the other areas of transition.

Reframing the Holidays Dec 1, 12:30-1:30pm from the National Family Support Technical Assistance Center

Exploring Care Mapping (in-person) Dec 2, 8:30am-9:30am Registration Held at Coffee4All at 2300 Hwy 51 in Stoughton. A hands-on opportunity to create a care map. A Care Map is a visual way to show all the people and services involved in caring for and supporting a child with special health care needs. Each family’s care map may look different as each family decides how many details to include.

“I want to Date!” Supporting Healthy Dating Relationships – December 3rd – 9:15-10:30am  Virtual/WebinarThe need for intimacy and meaningful connections with others is part of the human condition. People with I/DD have similar needs for intimacy, but often encounter a unique set of barriers as they move into the dating world. In this webinar we will explore obstacles uniquely experienced by people with I/DD, identify helpful roles for parents as well as examine strategies for helping self-advocates learn key steps in the dating process.  https://reg.learningstream.com/reg/event_page.aspx?ek=0012-0013-d174ac8645984798b5a3c30667243222&fbclid=IwAR1PlChey7Tz8WlVaMAIgBoxHzY3QqU4ivXp07EFu_Zvh_AGaWaOMApSkC0–  Registration open through 11/30/2022

Siblings Of Children With Developmental Differences Dec 5, 2:00–3:30pm part of Parenting While Rising to Child Developmental Challenges series from Brazelton Touchpoints Center (BTC)

Thinking About Supported Decision Making (virtual) Dec 6, 12:00pm-1:00pm Registration This workshop from Family Voices of Wisconsin explains what families need to know about decision making supports and tools available in Wisconsin. This training will be most helpful for families who have children ages 14 and older with disabilities and the providers and educators who work with them.

Parent to Parent Support Parenting Training (virtual) Dec 6, 6:00-8:00pm from Wisconsin Parent to Parent

Carol of the Bells Dec 7 12:00-2:00pm (Extended Time) Monthly Movie Registration

Health Systems Strategies that Prioritize Children with Health Complexity Dec 7, 12:00pm Webinar from Lucile Packard Foundation for Children’s Health

Build Your Bridge (virtual) Dec 8, 12:00pm-1:00pm Registration This is a free presentation and conversation to help guide families through the transition from child-centered to adult health care systems. Youth and families are often overwhelmed and under-prepared for the transition to adult health care. This presentation will introduce and discuss when to start thinking about health care transition as well as provide helpful tools and resources.

Did You Know? Now You Know! (virtual) Dec 12, 12:00pm-1:00pm Registration  Come learn about a variety of resources and services for children with disabilities and special health care needs. We will cover information that applies to children from birth through young adulthood. Topics include private health insurance, Medicaid, long-term supports, how to coordinate services and so much more.

The Long View: What Will Happen To My Child When…? Dec 19, 2:00–3:30pm part of Parenting While Rising to Child Developmental Challenges series from  Brazelton Touchpoints Center (BTC)

Parent to Parent Support Parenting Training (virtual) Dec 29, 5:30pm-7:30pm from Wisconsin Parent to Parent

Supporting Neurodiverse Students Professional Learning System (SNS)

The Supporting Neurodiverse Students (SNS) Professional Learning System provides regional learning events, virtual events, and virtual cohorts to support educators and families serving school-aged students with disability-related needs in the area of social and emotional learning (SEL). The goal of the SNS is to support a skills-based approach to challenging behaviors that will improve social understanding and emotional-management skills of students with IEPs.  The SNS provides learning opportunities with a focus on regulation, social communication, flexibility, resilience, sensory processing, and executive functioning. The SNS is beneficial to adults supporting students with autism, emotional behavioral disabilities, other health impairments, and/or any other students encountering difficulty accessing, engaging, and making progress as the result of social and emotional skill needs (AD/HD, mental health, significant cognitive differences, etc).  All events are free to families/parents of students with an IEP.

For a complete calendar and registration information, please visit the SNS Learning Events Registration webpage.
For more information about the SNS, please visit the Supporting Neurodiverse Students Professional Learning  System webpage.

Upcoming events:
SNS Virtual Event   Dec 6th, 2022 Regulation: Where do we start? 10am-12pm
SNS In-Person Event Portage  Dec 7th, 2022 Body Processing – Regulation and Sensory CESA 5
SNS In-Person Event Whitewater Dec 15th 2022 Body Processing – Regulation and Sensory CESA 2
SNS Virtual Event Cohort Jan 10th, 2023 Social Communication – Modes and Language 3:30-4:30pmSNS Virtual Event   Jan 11th, 2023 Understanding “Sensory” 8am-10amSNS Virtual Event   Feb 1st, 2023 Hidden Curriculum 1pm-3pm
SNS Virtual Event  Cohort Feb 6th, 2023 Body Processing – Regulation and Sensory 3:30-4:30pmSNS Virtual Event   March 8th, 2023 Untangle the Strategies for Working with Students with Higher Impact Needs 8am-10am
SNS Virtual Event  Cohort March 9th, 2023 Processing Thinking – Resilience and Flexibility 3:30-4:30pm

Other Events and Information for the Week of November 28

SURVEY RESEARCH OPPORTUNITY: We want to learn about how COVID-19 and the pandemic impacted the lives of people with intellectual and developmental disabilities in Wisconsin. If you are a person with an intellectual and developmental disability OR a care partner, you can complete the survey. Please take our online survey that will take you about 20 minutes to finish. We will send you a $10 gift card for completing the survey. We will ask you questions about daily activities, things you do in the community, work, volunteering, and COVID-19. Please click HERE or on the link below to participate. You can take the survey in English or Spanish. If you have any questions, please contact Karla Ausderau (kausderau@wisc.edu) or Allison Caudill (acaudill@wisc.edu).

SURVEY LINK in ENGLISH

https://tinyurl.com/COVID-Survey-Link

SURVEY LINK in SPANISH

https://tinyurl.com/covid19surveyspanish

What do we know about Feeding Challenges? 11.22.22 Recording Join Dr. Brittany St. John as she talks about her doctoral work with families who have children with disabilities and have feeding challenges. Part of Conversations on Showing up for Kids!

Project SEARCH and Campus Connect 11.15.22  Recording   Resource Sheet   Project SEARCH Slides   Campus Connect Slides Part of Transition Talks Tuesdays with Madison Metropolitan School District

Things to Remember

Wisconsin Birth to 3 Program is committed to serving children under the age of 3 with developmental delays and disabilities and their families. We value your family’s primary relationship with your child and work in partnership with your family. We work to enhance your child’s development and support your family’s knowledge, skills, and abilities as you interact with and raise your child. Learn more on the Wisconsin Department of Health Services website.

Katie Beckett Medicaid provides access to Wisconsin Medicaid services for children with disabilities, mental illness, or complex medical needs. Katie Beckett helps some children whose parents have too high of an income for Medicaid, and those covered by private insurance, get a ForwardHealth Medicaid card so they can receive needed services and equipment that might not otherwise be covered. To apply, families can call 888-786-3246. They will be connected with an eligibility specialist who will explain the Medicaid benefit and help the family decide if they want to pursue enrollment. Learn more on the Wisconsin Department of Health Services website.

Disability Information and Access Line Help with COVID-19 vaccinations for people with disabilities from Administration for Community Living

Dane County Behavioral Health Resource Center — If you, someone you care about, or someone you are working with needs help finding mental health and/or substance use services in Dane County. The BHRC phone line is available Monday to Friday 7am to 7pm at (608) 267-2244; Email the BHRC at BHRC@countyofdane.com

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Interested in participating in research?

 Research Studies:

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School Information, Guidance and Resources for COVID-19–now on our School/Special Education Page

For more information please go to our School/Special Education page.

Waisman Center Resources and Updates for COVID-19

WI DHS Higher Risk/Families with CYSHCN Resources for COVID-19

Here are some current updates:

Several new versions of the family decision making tool available via our ReSET webpage (www.reset4kids.org):

  • a Spanish version
  • a fillable Word document that is more user-friendly

As you all are experiencing, the announcement by the Centers for Disease Control and Prevention (CDC) in a media briefing on Friday, February 25, 2022 has dramatically changed the COVID mitigation landscape, including how to mitigate the spread of infection in schools. At this time there is no targeted guidance from the CDC other than the media briefing and this new COVID-19 Community Levels webpage.

DPI’s COVID-19 Infection Control and Mitigation Measures for Wisconsin School 2021-2022 is pulled from access. The document will be revised in the next few days, hopefully with more direction from the CDC. Resources below will hopefully be updated in the near future. For now, they are for historical reference.

COVID-19 Webinar for Local Public Health and School Stakeholders (1.26.22)

WI Department of Health Services Clinical Guidance for vaccinating 5-11 year olds (11.5.21)

Safe, Strong & Healthy Schools with Wisconsin doctors, educators, scientists, and leaders exploring the ways that schools and districts can build and maintain “Safe, Strong & Healthy Schools”

ReSET (Restarting Safe Education & Testing) for Children with Medical Complexity from Healthy Kids Collaborative Dane County

Guidance for COVID-19 Prevention in K-12 Schools (1/6): https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-guidance.html

Overview of COVID-19 Isolation for K-12 Schools (1/6): https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-contact-tracing/about-isolation.html

Overview of COVID-19 Quarantine for K-12 Schools (1/6):  https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-contact-tracing/about-quarantine.html

Responding to COVID-19 Cases in K-12 Schools: Resources for School Administrators (1/6)https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-contact-tracing/guide.html

What You Should Know About COVID-19 Testing in Schools (1/6): https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/what-you-should-know.html

Schools, Child Care, and Colleges (1/6): https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/index.html

Wisconsin Well Badger Resource Center is a statewide public health Information and Referral (I&R) service and resource program offering a toll free phone line and website for Children and Youth with Special Health Care Needs and more. Well Badger is staffed to provide information and referrals with a deliberate focus to engage high-risk populations and for those with special needs.

The WI Children’s Mental & Behavioral Health Navigator is a free, confidential, online tool designed to help parents, caregivers and professionals in Wisconsin navigate (find, access, pay for) mental and behavioral health services and support for children, adolescents and young adults under the age of 21. Just answer a few questions about the child, and the Navigator provides a customized guide to connect kids and families with the resources and support they need and deserve.

Website: https://wellbadger.org/
Phone: 1-800-642-7837

The Southern Regional Center for Children and Youth with Special Health Care Needs tries to help families, and the professionals who support them, through providing current resources, news articles, interesting items and more. We post “What’s New” on our home page each week. We regularly post this content and more on our Facebook page. We send out a weekly Resource Round-up on Fridays (send an email with Weekly Resource Round-up in the Subject Line to cyshcn@waisman.wisc.edu to join).We bring together the “What’s New” resources by topic and place them on the Resources page. We hope you can find some help, encouragement, or just information on this page. New content is added regularly.