CYSHCN

Children and Youth with Special Health Care Needs
mother with child
Southern Regional Center for Children and Youth with Special Health Care Needs Logo. Clicking on this image will take you to the University Center for Excellence in Developmental Disabilities at the University of Wisconsin Madison COVID -19 information.

Waisman Center COVID-19: Resources and Updates

Resources and Updates More

Welcome to the Southern Regional Center for Children and Youth with Special Health Care Needs!

The Southern Regional Center is open, but we are working remotely.  You may call 608-265-8610 or 800-532-3321 and leave a message. If you could spell out your email address in your message, that will help us to follow up with you more quickly.  When we call back, we may call from a number that shows as blocked.  If you cannot wait and have a more immediate need for health information and referral, you could call the Well Badger Resource Center at 800-642-7837.

Would you like to stay updated and informaed? We send out a weekly resource roundup. Email cyshcn@waisman.wisc.edu and ask to join the SRC4family listserv.

Looking for the recordings of the ongoing Conversations on Showing up for Kids!? Check out our Playlist: https://www.youtube.com/channel/UCQ5zpWuJxlbjZLw595ST9ig/playlists

What’s New


School Reopening Information, Guidance and Resources–now on our School/Special Education Page

COVID-19 (AND MORE) Resources for children with special health needs and the families who care for them

Don’t worry about calming the storm. Calm yourself; the storm will pass. -source unknown

Waisman Center Resources and Updates

WI DHS Higher Risk/Families with CYSHCN Resources

Posted the Week of September 15, 2020

TRAININGS co-sponsored by SRC:

1) What’s After High School? A Transition Training for Families, Youths and Providers. Tuesday, September 29, 3:00-4:30pm. Presented by Family Voices of Wisconsin, cosponsored by the Transition Improvement Grant. If you have a youth or work with a youth with special needs/disabilities who is 14-21, this training is for you! (Youth are welcome to attend as well). Register at go.wisc.edu/jdc58k​. You will need to watch a 30 minute video at familyvoiceswi.org/learn/whats-after-high-school/ BEFORE the training. (Flyer has more details).

2) Support Parent TrainingSaturday, October 3, 10:00am-12:00pm. Presented by Parent to Parent of Wisconsin. Join our statewide network of families who support each other on the journey of parenting children with special health care needs by attending the training and becoming a support parent. Registration is limited! Register at https://www.surveymonkey.com/r/SP10320. (Flyer has more details).

3) Medicaid Made Easy. Tuesday, October 6, 3:00pm-4:30pm. Presented by Family Voices of Wisconsin. Details coming soon. Would you like to cosponsor and help promote? Let Tim know at tmarkle@wisc.edu.

4) Did You Know? Now You Know! Tuesday, October 20, 3:00-4:30pm. Presented by Family Voices of Wisconsin, cosponsored by Gio’s Garden. Details coming soon. Would you like to cosponsor and help promote? Let Tim know at tmarkle@wisc.edu.

Conversations on Showing Up for Kids!

1) Conversations on Showing up for Kids! Thursday, 9/17 Liz Hecht from Family Voices of Wisconsin and the Survival Coalition of Wisconsin Disability Organizations joined us to discuss what they learned from their “Impact of School Closures on Families and Students with Disabilities” Focus Groups. Recording available on YouTube.

2) Conversations on Showing Up for Kids! Thursday, 9/24, 12-12:45. We will be talking about how the Wisconsin Statewide Parent Educator Initiative (WSPEI) helps support families of student with special needs. We will be joined by Caroline Rossing, WSPEI Statewide Grant Coordinator. Register at https://go.wisc.edu/786y37 (Flyer has more details.)

LA FAMILIA, EL INTERNET, Y NUESTROS JÓVENES EN TIEMPOS DE PANDEMIA:  A Spanish Speaking Zoom Workshop Martes 29 de SEPTIEMBRE 6:00-7:30pm from Formando Lazos Familiares download the flyer for connection information.

Experiencing Grief during COVID-19 from Child Neurology Foundation

For Kids with Special Needs, Online Schooling Divides the Have and Have-Nots from Kaiser Health News

Education Forward: Reopening Wisconsin Schools from Wisconsin Department of Public Instruction

Ready4K is an evidence-based family engagement curriculum delivered via text messages. Each week, you’ll receive short text messages with fun facts and easy tips on how to promote your child’s development by building on existing family routines. Sign up today at Ready4K! from the WI Department of Children and Families

COVID-19 Special Education Information (PowerPoint slides) from Wisconsin Department of Public Instruction

Arts Education School Operating Considerations from Wisconsin Department of Public Instruction

Upcoming Webinars/On-line Conferences

  •  Conversations on Showing Up for Kids! Thursday, 9/24, 12-12:45. We will be talking about how the Wisconsin Statewide Parent Educator Initiative (WSPEI) helps support families of student with special needs. We will be joined by Caroline Rossing, WSPEI Statewide Grant Coordinator. Register at https://go.wisc.edu/786y37 (Flyer has more details.)
  • LA FAMILIA, EL INTERNET, Y NUESTROS JÓVENES EN TIEMPOS DE PANDEMIA:  A Spanish Speaking Zoom Workshop Martes 29 de SEPTIEMBRE 6:00-7:30pm from Formando Lazos Familiares download the flyer for connection information.
  • Virtual Fall Fetal Alcohol Spectrum Disorder Forum October 30 from Orchids (registration available in September).

Participate in Research/Surveys

  • ASSIST–Parents of youth with an autism spectrum disorder age 16-26 are invited to participate in a new research program looking to improve parents’ ability to advocate. Contact the Waisman Center at transition@waisman.wisc.edu 0r (608) 265-3165. More info on the flyer- ASSIST

Posted the Week of August 31, 2020

Considerations for Young Children and Those With Special Needs as COVID-19 Continues from JAMA Pediatrics

Back to School: How can schools safely social distance; particularly for students with special services and full-time aides? from Child Neurology Foundation

Ensuring Children’s Access to Care Using Telehealth in Medicaid During COVID-19 from Manatt on Health: Medicaid Edition

NEW Videos on Wearing a Cloth Face Mask, Washing your Hands and Staying Home When you are Sick in SPANISH and ENGLISH from the National Association of School Nurses

What can families do if they disagree with their IEP Team? What are the options? Tim Markle, Director of the Southern Regional Center for CYSHCN talked with guests from Gia Pionek from the Wisconsin Special Education Mediation System and Matthew Zellmer from WI FACETS about what parents and schools can do when they disagree. Recording is AVAILABLE.

We all need a Self-Care Calendar! Check this out from Action for Happiness

Shout out to Highland Community Schools in Iowa County from NBC15

Amendment to Order #9 Released-Tuesday, September 1, 2020
The amendment allows for in-person instruction to students with a disability and/or individualized education program.

Free Transition Training for Families of Youth with IEP’s: Transition Parents in Partnership trainings will take place virtually via Zoom beginning this fall. Now is a great time to take advantage of top-notch training without the stress of traveling or being away from home! Transition Parents in Partnership (TPIP) will prepare families for the transition process for their youth with disabilities ages 14-21 in the areas of employment, education, living and health. See click HERE to view the flyer for training options and registration.

What can we do to help“back-to-school” anxiety? a Conversation on Showing Up for Kids! Tim Markle, Director of the Southern Regional Center for CYSHCN talked with Connie Persike, Speech Language Pathologist and Behavioral Consultant from CP Consulting and Tim Peerenboom, School Psychology Consultant for WI DPI. They discussed ideas on helping our kids (and ourselves) deal with the anxiety of returning to school. Recording  NOW AVAILABLE

Returning to School During and After Crisis Practice Guides from Center on Positive Behavioral Interventions and Supports (PBIS)

August 2020 OSEP Update Responding to COVID-19: Back to School, Policy Letters from Office of Special Education Programs (OSEP) (8.27.20)

REVISED August 2020: A Transition Guide to Postsecondary Education and Employment for Students and Youth with Disabilities from the Office of Special Education and Rehabilitative Services (OSERS)

Parents: Supporting Learning During the COVID-19 Pandemic Online Modules from Vanderbilt University

Posted the Week of August 24, 2020

Anxiety in Schools Podcast Series from Rogers Behavioral Health

Supporting students with school anxiety during COVID-19 Blog Post by Rogers Behavioral Health

Rethinking Unemployment and Sex Education Autism Knows No Boundaries podcast with Michael John Carley

For Black Kids, Autism Caught Late in the Game from US News and World Report (via Michael John Carley)

Questions and Answers on Helping Kids Return to School. A recorded Facebook Live Event from Rogers Behavioral Health.

September Family Engagement Newsletter from WI FACETS featuring information on Assistive Technology and Virtual Learning along with ABLE accounts and trusts

Coronavirus Video Series has short 2-7 minute video on how public health benefits are impacted by COVID-19 from HealthWatch Wisconsin

COVID-19 Help (including a Resource Guide for Families) from Wisconsin Well Badger Resource Center

Strategies for Protecting K-12 School Staff from COVID-19 (updated 8.20.20) From the CDC 

Back to School Planning: Checklists to Guide Parents, Guardians, and Caregivers Includes: Preparing for At-Home Learning and and Preparing for In-Person Classes from the CDC

Posted the Week of August 17, 2020

Parents reflect on back to school plans, health experts offer tips from NBC15

Parents and Professionals in Wisconsin talk about Virtual Schooling and Home Schooling (recording) with the Autism Society of South Central Wisconsin

AUGUST 2020:THE  ANNUAL HEALTHCARE ISSUE from Exceptional Parenting

What The Coronavirus Means For IEPs This Year from DisabilityScoop

Special education students are not just falling behind in the pandemic — they’re losing key skills, parents say. From the Washington Post

Richard Engel: Kids with special needs are not OK right now. Neither are parents. From Today

Supports for Students with Neurodiverse, and Social and Emotional Needs During Covid-19 Resource list (8/20/20) from WI DPI

DiSH Special Session on COVID-19 and Schools  recording along with a Q and A document (8/20/20)

How to Thrive — Not Just Survive — in the Age of the Coronavirus: Focus On 5 Core Principles from Thrive Global

Q&A: Mental health expert talks emotional well-being, building resiliency for the 2020-21 school year from Community Impact Newsletter

As schools reopen, addressing COVID-19-related trauma and mental health issues will take more than mental health services from Child Trends

Guidelines for the Prevention, Investigation, and Control of COVID-19 Outbreaks in K-12 Schools in Wisconsin (8/19/20) from WI Department of Health Services

COVID-19 Decision Tool for Individuals and Families (8/19/20) from WI Department of Health Services

Education Forward: Operating Schools During a Pandemic (8/19/20) from Wisconsin Department of Public Instruction

Down Syndrome Clinic to You (DSC2U) brings the best of health and wellness information about Down syndrome to caregivers and primary care physicians around the globe

South Madison Community COVID Testing Site at the Park Street Public Health WIC clinic is open Mondays, Wednesdays and Fridays. You need to make an appointment.

Equity and Diversity

Summer 2020 Resources

Resources for Families to Support Learning from Home During COVID-19 on our School Page

COVID-19

30th Anniversary of the ADA

Resources for Families with Younger Children

Nuggets from the News

Mental Health Resources

Resources for Teens/Preparing for Transition to Adulthood

Children and Youth with Special Health Care Needs/Maternal and Child Health

Southern Regional Center for CYSHCN Conversations on Showing Up for Kids!

  • Camp Cancelled? Ideas for Summer 2020 PART TWO!(Live June 17, 2020) Recording available on YouTube
  • Camp Cancelled? Ideas for Summer 2020 (Live June 10, 2020) Recording available on YouTube
  • Special Education and IEPs (Live June 3, 2020) Recording available on YouTube
  • Rural Wisconsin: The Good, the Bad and the Ugly (Live May 27, 2020). Recording available on YouTube
  • Anxiety: Ideas to help our kids be calm(er) and (more) focused (Live May 20, 2020). Recording available on YouTube
  • What we can learn from a virtual school (Live May 13, 2020). Recording available on YouTube
  • Learning from home and Neurodiversity (Live May 6. 2020). Recording available on YouTube

Find Us


Our Southern Regional Cwisconsin southern region map enter serves the following counties: Adams, Columbia, Crawford, Dane, Dodge, Grant, Green, Iowa, Juneau, Lafayette, Richland, Rock, Sauk and Vernon, shown in orange on the map.
Contact the Southern Regional Center.
Call: 1-800-532-3321
Email: cyshcn@waisman.wisc.edu

The Southern Regional Center (SRC) has a listserv we use to inform families about upcoming trainings and events in our region and opportunities for state and national input. So far in 2020, families have joined us in reviewing the Navigation Guide and starting Conversations on Showing Up for Kids! We hope families from the listserv will join us in initiatives like revamping this website, increasing partnerships with libraries and more. Do you want to stay informed and get involved? Send an email to join-src4family@lists.wisc.edu. You can unsubscribe at any time.

If you need to contact another regional center, please download a brochure at https://www.dhs.wisconsin.gov/publications/p4/p40051.pdf

 

Wisconsin Well Badger Resource Center is a statewide public health Information and Referral (I&R) service and resource program offering a toll free phone line and website for Children and Youth with Special Health Care Needs and more. Well Badger is staffed to provide information and referrals with a deliberate focus to engage high-risk populations and for those with special needs.
Website: https://wellbadger.org/
Phone: 1-800-642-7837