mother with child

Encuentre su Camino
Una guía de orientación para las familias de Wisconsin que tienen niños y jóvenes con necesidades de atención médica especiales y disca

https://ucedd.waisman.wisc.edu/encuentre-su-camino/

Featured Resources and Events

Cover of Tornado Brain with a picture of blue person outline next to a bike outline

September Recommended Book of the Month 

Tornado Brain by Cat Patrick. In this heartfelt and powerfully affecting coming of age story, a neurodivergent 7th grader is determined to find her missing best friend before it’s too late.

Provided by Sun Prairie Library Youth Services Staff

Red question mark with person leaning on it

Events

What's New?

Resources for children with special health needs and the families who care for them

Don’t worry about calming the storm. Calm yourself; the storm will pass. -source unknown

Featured Resources and Events — Friday, September 22

Build Your Bridge: Health Care Transition for Families Sep 25, 12:00-1:30pm virtual  Trainingcalendarfall2023full

Aging and Disability Resource Center Sep 26, 6:15-7:15pm virtual part of Transition Talks Tuesday with Sauk Prairie Schools. Spanish interpretation will be offered. TTTflyerSauk

School has started! How do we change the IEP? Sep 27, 12:00-12:45pm Here we are a few weeks into school and maybe things aren’t going so well from the family’s point of view or maybe from the school’s point of view. Things can change over the summer. How can schools and families together make adjustments for new strengths and new behavior once the school year has started? Join a consultant from the Wisconsin Department of Public Instruction and talk about changing the IEP once school has started. Part of Conversations on Showing Up for Kids!

Exploring Care Mapping Sep 28, 1:00-2:00pm virtual Trainingcalendarfall2023full


Postsecondary Transition Plan (PTP) and Higher Education Sep 19, 2023 Recording(English) Resource Sheet part of Transition Talks Tuesday with Sauk Prairie Schools. Spanish interpretation will be offered. TTTflyerSauk  TTTFlyerSauk-Spanish

Taking a deep dive into Neurodiversity – an educator approach Sep 18, 2023 Recording This discussion aims to serve as an introduction for educators and families supporting children with disability-related needs in the area of social and emotional learning (SEL). The goal of this session is to give an introduction to skill-based approach that will support the growth of social understanding and self-management of neurodiverse students. Educating to inform not to conform. We will be joined by Katie Berg, SNS Statewide Coordinator | ES3 Grant Statewide Coordinator. Part of Conversations on Showing Up for Kids!

Family Built Support Systems Sep 13, 2023  Recording Families tell us it doesn’t just take a village, it takes a mafia. You need a mom-fia to help find your solutions with denials and doctor referrals, IEPs, transition stuff, and everything in-between. Join our Family Panel of lived experience experts and talk about different ways to build your support system. Part of Conversations on Showing up for Kids!

Special Needs Trusts Sep 12, 2023 Recording with Slides (English); Spanish Audio  Resource sheet  Transition Talks Tuesday with Sauk Prairie SchoolsTTTflyerSauk

 

Our Fall Virtual Workshop schedule is available! Trainingcalendarfall2023full  Workshops include family and community trainings on Health Care Transition and the C.A.R.E. Medical Home Series for Families. The C.A.R.E series of four presentations and discussions was developed to support families who have children or youth with special health care needs. The series includes Caring for the Whole Family, Assembling a Care Notebook, Requesting a Shared Plan of Care, and Exploring Care Mapping. At the end of the discussions, participants will understand what a medical home is, how a medical home may benefit their child and family. The discussions are appropriate for both professionals and families. You can register for one or more workshops.


Cover of Tornado Brain with a picture of blue person outline next to a bike outlineRecommended Book of the Month 

Tornado Brain by Cat Patrick. In this heartfelt and powerfully affecting coming of age story, a neurodivergent 7th grader is determined to find her missing best friend before it’s too late. Provided by Sun Prairie Library Youth Services Staff

 


Upcoming Events and Workshops

Build Your Bridge: Health Care Transition for Families Sep 25, 12:00-1:30pm virtual  Trainingcalendarfall2023full

Parenting While Rising to Child Developmental Challenges — Family-to-Family Real Talk free — Sep 25  2-3pm Episode 1: The Whole Child-What My Child Can Do Spanish translation and closed captioning available from Brazelton Touchpoints Center

Section 504: What Parents Need to Know Sep 26, 12:00pm from WI FACETS

Appreciating Neurodiversity and Autistic Intelligence Virtual Sept 26, 12:00pm featuring Joan and Dr. Douglas Maynard from Wisconsin Family Ties

Aging and Disability Resource Center Sep 26, 6:15-7:15pm virtual part of Transition Talks Tuesday with Sauk Prairie Schools. Spanish interpretation will be offered. TTTflyerSauk

School has started! How do we change the IEP? Sep 27, 12:00-12:45pm Here we are a few weeks into school and maybe things aren’t going so well from the family’s point of view or maybe from the school’s point of view. Things can change over the summer. How can schools and families together make adjustments for new strengths and new behavior once the school year has started? Join a consultant from the Wisconsin Department of Public Instruction and talk about changing the IEP once school has started. Part of Conversations on Showing Up for Kids!

Respect Starts at Home: Teaching Neurodivergent Kids, Teens, and Adults About Consent Sept 27, 9:00-11:00am In-person at South Madison Partnership $30 (scholarship available by contacting tmarkle@wisc.edu) Training Series from Ellen Merker and Community Outreach Wisconsin – Waisman Center

Special Education Legal Updates Sep 27, 12:00pm from WI FACETS

What’s After High School? Sep 27, 5:00pm virtual Last Wednesday series from Family Voices of Wisconsin

Exploring Care Mapping Sep 28, 1:00-2:00pm virtual Trainingcalendarfall2023full

Supporting Neurodivergent Children and Adolescents In and Out of the Classroom Sep 29, 8:30am-12:00pm in person at UW-Whitewater Community Engagement Center. Space is limited and there is a fee.

Supported Decision Making and Guardianship Oct 3, 6:15-7:15pm virtual part of Transition Talks Tuesday with Sauk Prairie Schools. Spanish interpretation will be offered. TTTflyerSauk

Caring for the Whole Family Oct 5, 6:00-7:00pm virtualTrainingcalendarfall2023full

Monday Night Transitions Oct 9, 6:15-7:15pm Virtual Registration A chance for families of transition-aged AYA (Adolescents and Young Adults), 12-21years old, with disabilities/special health care needs, to get together and talk transition. Topics could include health care, school, employment, housing, decision making – it’s up to you. We believe families talking with families is the best support possible. The informal discussions will be led by Tim Markle, lived-experience parent with the Southern Regional Center and the Youth Health Transition Initiative. You can show up for one or more discussions.

Health Care Change Too! Bridging the Gap Oct 10, 6:15-7:15pm virtual part of Transition Talks Tuesday with Sauk Prairie Schools. Spanish interpretation will be offered. TTTflyerSauk

Poverty and Neglect  (virtual) Oct 11, 9-11am from Kentucky Partnership for Families and Children

Wait, You Want Me to Talk About SEX? Getting Comfortable Having Uncomfortable Conversations About Sexuality with Neurodivergent Kids, Teens, and Adults Oct 12, 1:00-3:00pm In-person at South Madison Partnership $30 (scholarship available by contacting tmarkle@wisc.edu) Training Series from Ellen Merker and Community Outreach Wisconsin – Waisman Center

Disability Work Benefits Oct 17, 6:15-7:15pm virtual part of Transition Talks Tuesday with Sauk Prairie Schools. Spanish interpretation will be offered. TTTflyerSauk

2023 Self-Determination Conference “Be Curious: Explore the Possibilities” October 16-18, 2023 Kalahari Resort, Wisconsin Dells, WI & Virtually

Parenting While Rising to Child Developmental Challenges — Family-to-Family Real Talk free — Oct 23  2-3pm Episode 2: The Day We Found Out Spanish translation and closed captioning available from Brazelton Touchpoints Center

Bridging the Gap: Health Care Transition Oct 23, 6:00-7:00pm virtualTrainingcalendarfall2023full

Assembling a Care Notebook Oct 24, 11:00am-12:00pm virtualTrainingcalendarfall2023full

Sauk Prairie Schools Beyond 18 & Employment Oct 24, 6:15-7:15pm virtual part of Transition Talks Tuesday with Sauk Prairie Schools. Spanish interpretation will be offered. TTTflyerSauk

Did You Know? Now You Know! Oct 25, 5:00pm virtual Last Wednesday series from Family Voices of Wisconsin

Parenting While Rising to Child Developmental Challenges — Family-to-Family Real Talk free — Nov 4 2-3pm Episode 3: What Developmental Differences Mean Where I Come From Spanish translation and closed captioning available from Brazelton Touchpoints

Sexting, Porn, and Online Dating, Oh My! Empowering Neurodivergent Teens and Adults in Safe Online Experiences Nov 6, 9:00-11:00am In-person at South Madison Partnership $30 (scholarship available by contacting tmarkle@wisc.edu) Training Series from Ellen Merker and Community Outreach Wisconsin – Waisman Center

Many Pathways to Recovery (virtual) Nov 8, 9-11am from Kentucky Partnership for Families and Children

Monday Night Transitions Nov 13, 6:15-7:15pm Virtual Registration A chance for families of transition-aged AYA (Adolescents and Young Adults), 12-21years old, with disabilities/special health care needs, to get together and talk transition. Topics could include health care, school, employment, housing, decision making – it’s up to you. We believe families talking with families is the best support possible. The informal discussions will be led by Tim Markle, lived-experience parent with the Southern Regional Center and the Youth Health Transition Initiative. You can show up for one or more discussions.

Your Voice Matters: Becoming a Family Leader Nov 29, 5:00pm virtual Last Wednesday series from Family Voices

Requesting a Shared Plan of Care Nov 29, 6:00-7:00pm virtual Trainingcalendarfall2023full

Parenting While Rising to Child Developmental Challenges — Family-to-Family Real Talk free — Dec 4  2-3pm Episode 4: Siblings of Children with Developmental Differences Spanish translation and closed captioning available from Brazelton Touchpoints Center

Trauma, Brains, and BIG Emotions: Providing Trauma-Informed Support to Neurodivergent Kids, Teens, and Adults Dec 6, 9:00-11:00am In-person at South Madison Partnership $30 (scholarship available by contacting tmarkle@wisc.edu) Training Series from Ellen Merker and Community Outreach Wisconsin – Waisman Center

Monday Night Transitions Dec 11, 6:15-7:15pm Virtual Registration A chance for families of transition-aged AYA (Adolescents and Young Adults), 12-21years old, with disabilities/special health care needs, to get together and talk transition. Topics could include health care, school, employment, housing, decision making – it’s up to you. We believe families talking with families is the best support possible. The informal discussions will be led by Tim Markle, lived-experience parent with the Southern Regional Center and the Youth Health Transition Initiative. You can show up for one or more discussions.

Youth Engagement  (virtual) Dec 13, 9-11am from Kentucky Partnership for Families and Children

Parenting While Rising to Child Developmental Challenges — Family-to-Family Real Talk free — Dec 18  2-3pm Episode 5: Hope versus Denial and the Long View Spanish translation and closed captioning available from Brazelton Touchpoints Center

Other information for the Week of September 18

Idea Exchange — New Series Starting in October: A learning community for people who help families navigate developmental disability services and supports The upcoming series will run October 2023 through July 2024. Sessions will take place from 12:00 pm to 1:30 pm on the second Thursday of each month.

YiPPE (Youth in Partnership with Parents for Empowerment) is still accepting families who can attend the 4 remaining sessions.  YiPPE is for youth, ages 14 to 21, and their parents to plan together for what comes after high school.  This program is free to families. If you are interested, complete the application before October 10th.  This opportunity is open to anyone willing to travel to Milwaukee.

Family Voices of Wisconsin Newsletter

  • Back to School
  • Circles of Life 2024 Request for Proposal
  • Schools and EMS Working Together
  • Access to Dental Services
  • Advocacy in Action
  • Medicaid Unwinding Update
  • Listening Sessions Report
  • Respite Care vs Personal Care

Sickle Cell Awareness Month from NICHQ

#SayItForward: If you have a September BadgerCare renewal date, now is your time to act!

https://www.dhs.wisconsin.gov/forwardhealth/renewalstatus.htm

#PásaloAdelante: ¡Si tienes una fecha de renovación de BadgerCare en septiembre, ahora es tu momento de actuar!

https://www.dhs.wisconsin.gov/forwardhealth/renewalstatus.htm

Are you an autistic young Adult (22-25) who wants your voice heard? Do you Have Exercise Experience, such as going to the gym or going for walks? Research Study: Interview with Adults with Autism (Autistic Adults) email Ashlyn at UW Kinesiology Department

Other information for the Week of September 11

Positive Communication for Families and Schools Sep 6, 2023 Recording Part of Conversations on Showing Up for Kids!

Transform Your Practice to Support Pediatric to Adult Transition GOT Transition and Minnesota Department of Health ECHO series from Gillette Children’s. Starts October 9, and runs Mondays 12:15-1:15 and includes free CME. Join and represent Wisconsin!

ReSET Toolkit: Keeping Children with Complex Health Needs in Schools — interview with Dr. Ryan Coller and Shawn Koval

Youth Health Transition Quarterly Newsletter

  • Transition Story: Spotlight on Hunter Markle
  • Connect with Us: Grand Rounds//Self-Determination Conference//SRC Resource Round-up
  • Resources for Families: Videos featuring youth and family members from WI// Idea Exchange is starting//
  • Recursos por familias: ¿Qué es la transición de atención médica (HCT)?
  • Resources for Providers: 24th Annual Baylor Transition Conference//Introduction to Healthcare Providers
  • Wisconsin Integrated Transition Planning Project (WITPP): Check our the website and their Fact Sheet partnership with Family Voices of Wisconsin

Office of Children’s Mental Health (OCMH) — September Newsletter

  • Kids Feeling Connected as they Return to School
  • Lived Experience Insights: The Stress that Back-to-School Can Bring
  • Seeking Input on the Mental Health Literacy Units of Instruction
  • Suicide Prevention Month – Amidst a Record Number of Suicide Deaths there is a Drop in Suicides among Youth Ages 10-24
  • Teen Graphic Designers Create Pause Campaign for Suicide Prevention
  • OCMH Updates: New Email Program//New Monthly Communication on Youth Mental Health in the News//Leap into Wellness Youth Mental Health Summit
  • Legislative & Policy Updates: “Choices in Childcare” Bill Package//New Assembly Task Forces Announced on Truancy and Human Trafficking
  • Children’s Mental Health in the News: Large drop in youth suicide in 2022 (Article)//Screen Time Is Contributing to Chronic Sleep Deprivation in Tweens and Teens (Article)//In a crisis, schools are 100,000 mental health staff short (Article)//Children underestimate their random acts of kindness (Article)//ERs Are Flooded With Kids in Mental Health Crisis, U.S. Doctors’ Groups Warn (Article)//Parents see own health spiral as their kids’ mental illnesses worsen (Article)
  • Of Interest: Awards Recognize Out-of-School Time Excellence//Resource for Families Experiencing the Child Welfare Process//Back-to-School Resources from MHA//Teen Depression Resource//Addressing Health Disparities Grants Available

Free! American Sign Language Classes (Gratis! Clases Zoom de Lenguaje de Senas Americano) for educational team members and families of students who have a hearing loss (miembros del equipo educativo y familias de estudiantes que tienen ua perdida auditiva) from WESP-DHH

Other information for the Week of September 4

Positive Communication for Families and Schools Sep 6, 2023 Recording Part of Conversations on Showing Up for Kids!

Family Engagement Newsletter, September 2023 Assistive Technology from WI FACETS

  • Using Smartphone Apps to Promote Independent Living Skills
  • Upcoming WI FACETS Events
  • Home Learning
  • Tips for getting kids ready for back-to-school
  • Upcoming State Events
  • Foundations of Accessible Educational Materials/Assistive Technology (AT) Forward/Accessible Playgrounds to visit in Wisconsin
  • Online resources: Assistive Technology
  • Positive Behavioral Intervention and Supports Tip of the Month
  • Research: Perceptions of Using Assistive Technology for Students with Disabilities in the Classroom

Summer WI AAC Newsletter

Other information

New in-person workshops with Ellen Merker and Community Outreach Wisconsin — 10/12; 11/4; 12/6 — more information and registration at https://cow.waisman.wisc.edu/training/ (Scholarships are available by contacting tmarkle@waisman.wisc.edu)

Families as Partners Fall 2023 Virtual Tuesdays 11:00am-1:30pm (9/26; 10/10; 10/24; 11/14; 11/21) or Saturdays 9:00-11:30am (9/30; 10/14; 10/28; 11/11; 11/18) A multi-session education and leadership opportunity for families focused on building relationships with school staff and others that can lead to improved student outcomes. From the Wisconsin Statewide Parent Educator Initiative (WSPEI) Deadline to sign up is 9/15.

The Family’s Role in the College and  Career Ready IEP Process Virtual Wednesdays 9:00-10:00am (10/6; 10/13; 10/20)  This series will include information to empower parents and other family members become more confident participants in the IEP process. From the Wisconsin Statewide Parent Educator Initiative (WSPEI) Deadline to sign up is 9/22.

2023-2024 Family Support Community Virtual First Wednesday of the month 4:00-5:30pm or First Thursday of the month 11:30am-1:00pm The Family Support Community will allow participants to engage in positive problem solving with others in a solutions-based format. Meetings will allow for networking, learning, and peer support. Learning topics will be determined based upon members’ needs and interests. From the Wisconsin Statewide Parent Educator Initiative (WSPEI)

Parenting While Rising to Child Developmental Challenges — Family-to-Family Real Talk free 5 episode conversation — 9/25; 10/23; 11/6; 12/4; 12/18 — 2-3 pm Spanish translation and closed captioning available from Brazelton Touchpoints Center

If you have BadgerCare/Medicaid — learn about the Public Health Emergency Unwinding

Things to Remember

  • Wisconsin Birth to 3 Program is committed to serving children under the age of 3 with developmental delays and disabilities and their families. We value your family’s primary relationship with your child and work in partnership with your family. We work to enhance your child’s development and support your family’s knowledge, skills, and abilities as you interact with and raise your child. Learn more on the Wisconsin Department of Health Services website.
  • Katie Beckett Medicaid provides access to Wisconsin Medicaid services for children with disabilities, mental illness, or complex medical needs. Katie Beckett helps some children whose parents have too high of an income for Medicaid, and those covered by private insurance, get a ForwardHealth Medicaid card so they can receive needed services and equipment that might not otherwise be covered. To apply, families can call 888-786-3246. They will be connected with an eligibility specialist who will explain the Medicaid benefit and help the family decide if they want to pursue enrollment. Learn more on the Wisconsin Department of Health Services website.
  • Disability Information and Access Line Help with COVID-19 vaccinations for people with disabilities from Administration for Community Living
  • Dane County Behavioral Health Resource Center — If you, someone you care about, or someone you are working with needs help finding mental health and/or substance use services in Dane County. The BHRC phone line is available Monday to Friday 7am to 7pm at (608) 267-2244; Email the BHRC at BHRC@countyofdane.com
  • Adams, Rock, Crawford, Lafayette, Vernon Counties — Did you know the Early Childhood Health Consultation (ECHC) is a free program that provides Wisconsin’s early childhood care and education providers with information on best practices related to child health and safety? Through this program, early care and education (ECE) providers can receive free health consultations, on-demand training, and tailored resources surrounding best practices for health and safety needs at their child care facilities. For more information we invite you to visit the ECHC websitewebinars, and podcasts.

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Interested in participating in research?

 Research Studies: Up to date listing of Waisman Center studies that are currently recruiting

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School Information, Guidance and Resources for COVID-19–now on our School/Special Education Page

For more information please go to our School/Special Education page.

Waisman Center Resources and Updates for COVID-19

WI DHS Higher Risk/Families with CYSHCN Resources for COVID-19

Here are some current updates:

Several new versions of the family decision making tool available via our ReSET webpage (www.reset4kids.org):

  • a Spanish version
  • a fillable Word document that is more user-friendly

As you all are experiencing, the announcement by the Centers for Disease Control and Prevention (CDC) in a media briefing on Friday, February 25, 2022 has dramatically changed the COVID mitigation landscape, including how to mitigate the spread of infection in schools. At this time there is no targeted guidance from the CDC other than the media briefing and this new COVID-19 Community Levels webpage.

DPI’s COVID-19 Infection Control and Mitigation Measures for Wisconsin School 2021-2022 is pulled from access. The document will be revised in the next few days, hopefully with more direction from the CDC. Resources below will hopefully be updated in the near future. For now, they are for historical reference.

COVID-19 Webinar for Local Public Health and School Stakeholders (1.26.22)

WI Department of Health Services Clinical Guidance for vaccinating 5-11 year olds (11.5.21)

Safe, Strong & Healthy Schools with Wisconsin doctors, educators, scientists, and leaders exploring the ways that schools and districts can build and maintain “Safe, Strong & Healthy Schools”

ReSET (Restarting Safe Education & Testing) for Children with Medical Complexity from Healthy Kids Collaborative Dane County

Guidance for COVID-19 Prevention in K-12 Schools (1/6): https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-guidance.html

Overview of COVID-19 Isolation for K-12 Schools (1/6): https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-contact-tracing/about-isolation.html

Overview of COVID-19 Quarantine for K-12 Schools (1/6):  https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-contact-tracing/about-quarantine.html

Responding to COVID-19 Cases in K-12 Schools: Resources for School Administrators (1/6)https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-contact-tracing/guide.html

What You Should Know About COVID-19 Testing in Schools (1/6): https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/what-you-should-know.html

Schools, Child Care, and Colleges (1/6): https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/index.html

Wisconsin Well Badger Resource Center is a statewide public health Information and Referral (I&R) service and resource program offering a toll free phone line and website for Children and Youth with Special Health Care Needs and more. Well Badger is staffed to provide information and referrals with a deliberate focus to engage high-risk populations and for those with special needs.

The WI Children’s Mental & Behavioral Health Navigator is a free, confidential, online tool designed to help parents, caregivers and professionals in Wisconsin navigate (find, access, pay for) mental and behavioral health services and support for children, adolescents and young adults under the age of 21. Just answer a few questions about the child, and the Navigator provides a customized guide to connect kids and families with the resources and support they need and deserve.

Website: https://wellbadger.org/
Phone: 1-800-642-7837

The Southern Regional Center for Children and Youth with Special Health Care Needs tries to help families, and the professionals who support them, through providing current resources, news articles, interesting items and more. We post “What’s New” on our home page each week. We regularly post this content and more on our Facebook page. We send out a weekly Resource Round-up on Fridays (send an email with Weekly Resource Round-up in the Subject Line to cyshcn@waisman.wisc.edu to join).We bring together the “What’s New” resources by topic and place them on the Resources page. We hope you can find some help, encouragement, or just information on this page. New content is added regularly.