CYSHCN

Children and Youth with Special Health Care Needs
mother with child

Una guía de orientación para las familias de Wisconsin que tienen niños y jóvenes con necesidades de atención médica especiales y discapacidades.

https://ucedd.waisman.wisc.edu/encuentre-su-camino/ More

Welcome to the Southern Regional Center for Children and Youth with Special Health Care Needs!

Check out upcoming trainings from Southern Regional Center and our partners!

Aug 12

The Southern Regional Center is open, but we are working remotely.  You may call 608-265-8610 or 800-532-3321 and leave a message. If you could spell out your email address in your message, that will help us to follow up with you more quickly.  When we call back, we may call from a number that shows as blocked.  If you cannot wait and have a more immediate need for health information and referral, you could call the Well Badger Resource Center at 800-642-7837.

Would you like to stay updated and informed? We send out a weekly resource roundup. Email cyshcn@waisman.wisc.edu and ask to join the SRC4family listserv. You can also “Follow” us on Facebook for even more information.

NEW website holding information on Conversations on Showing Up for Kids! Check out this easy way to listen into conversations that might help you. https://cyshcn.waisman.wisc.edu/conversations-on-showing-up-for-kids/

Connect With Us

wisconsin southern region map
Our Southern Regional Center serves the following counties: Adams, Columbia, Crawford, Dane, Dodge,Grant, Green, Iowa, Juneau, Lafayette, Richland, Rock, Sauk and Vernon, shown in orange on the map.
Contact the Southern Regional Center.
Call: 1-800-532-3321
Email: cyshcn@waisman.wisc.edu

The Southern Regional Center (SRC) uses a listserv to inform families about upcoming trainings and events in our region and opportunities for state and national input. In 2020, families joined us in reviewing the Navigation Guide and starting Conversations on Showing Up for Kids! Do you want to stay informed and get involved? Send an email to join-src4family@lists.wisc.edu. You can unsubscribe at any time.

If you need to contact another regional center, please download a brochure at https://www.dhs.wisconsin.gov/publications/p4/p40051.pdf

What’s New


School Information, Guidance and Resources for COVID-19–now on our School/Special Education Page

Resources for children with special health needs and the families who care for them

Don’t worry about calming the storm. Calm yourself; the storm will pass. -source unknown

Waisman Center Resources and Updates for COVID-19

WI DHS Higher Risk/Families with CYSHCN Resources for COVID-19

Southern Regional Center for Children and Youth with Special Health Care Needs
Community Engagement Results and Input

We need your input to move forward!
If you live or work in one of the 14 counties served by the Southern Regional Center (https://cyshcn.waisman.wisc.edu/) then we need you to help us figure out how we can improve our community engagement–together.
Please watch the short (<1 minute) video about the results of our Community Engagement Assessment Tool and then take the short (2 questions) survey.
We will close the survey on June 21st.
If you have any questions, please call us at 1-800-532-3321 or send an email to cyshcn@waisman.wisc.edu.

Spotlight Friday, June 18th

Stop by and visit with the Southern Regional Center this Saturday (6/19) from 12pm-4pm at Penn Park as we join Madison in celebrating Juneteenth.

Welcome to the 31st annual Children Come First Conference!

The CCF Conference is full of practical and inspiring content about caring for or working with children, youth, and young adults with social, emotional, behavioral, or mental health challenges.  Learn strategies to apply in your daily life. Connect with state and national experts.  Obtain resources that you can use in your home, school, organization, or community. November 15-16, 2021 at the Kalahari.

Register today. Space is limited!

Upcoming webinars/trainings/conversations

Webinar: Including and Supporting Siblings in Non-traditional, Multicultural Families in Pediatric Palliative Care  Tuesday, June 22 2:00pm-3:00pm

Subject: FUNNE-Families United with Children with Special Needs Meeting
Hola Hermosas familias
Usted ha sido invitada a la presentación de “Access to Independence INC” En Madison WI con programas y servicios para personas de cualquier edad y de cualquier tipo de discapacidad
Miembros de Familia, amigos y otros, que asisten personas con discapacidad en general, son ¡!!Bienvenidos!!!
La Señorita, Sarah Katzman de Access to Independence INC nos ayudara a participar en este entrenamiento en la plataforma del Zoom, dándonos más información de servicios acerca de esta organización en el Condado de Dane
Participe en nuestro grupo el Sábado, 26 de Junio de las 9:30 AM-a 10:30 AM; ayúdenos a difundir esta información a nuestra comunidad, ayudando a las personas a tomar decisiones informadas para sus necesidades de discapacidad.
Si tiene problema al acceso, llámenos y nosotros le podemos ayudar a conectarnos virtualmente
Lilliam Post (608)441 3257 Lilliam@cmcmadison.org

Adaptive Activities for the Summer Webinar Wednesday July 7  1:00pm-2:00pm from Respite Care Association of Wisconsin

Great Changes to Wisconsin’s Medicaid Purchase Plan (MAPP)–join a webinar to learn more. Wednesday, June 30 1:00-2:00pm or Thursday, July 15 10:00am-11:00am from WI BPDD. Free but you need to register.

Tips and Tricks to Promote a Calm Environment July 16  12:00pm-12:45pm Mini Training from Respite Care Association of Wisconsin

COVID-19 Telehealth Policies Affecting CYSHCN: What to Keep, Modify, or Discard? Webinar on July 6 12:30pm-1:30pm from Lucille Packard Foundation for Children’s Health

It’s My Life: Taking the Lead: A Youth Conference July 27-29  10:00am-2:oopm for high school students or recent graduates with disabilities who are interested in becoming leaders and advocates for themselves and others with disabilities. Register by July 1st. Contact Matthew Zellmer for more information.

Respite Summit July 28th 1:00-4:30pm and July 29th 9:00am -3:00pm from Respite Care Association of Wisconsin (RCAW)

Children Come First Conference, November 15-16, Kalahari Resort

Week of June 14th

Firmer Accessibility Standards Sought For Health Care from Disability Scoop

New Issue of All in For Kids: Birth to 3 Program Newsletter Available Online from WI DHS. Includes Family Engagement, Learning and Natural Environments, First 1,000 Days Outreach Campaign, new and improved Birth-3 materials, and helpful resources.

Healthy Dane, a community collaborative comprised of UnityPoint Health – Meriter, SSM Health, Stoughton Health, UW Health, Group Health Cooperative of South-Central Wisconsin, and Public Health Madison Dane County, is currently conducting a survey to get community feedback on the health of Dane County.

The survey is available in English, Spanish and Hmong until June 30. It’s voluntary, anonymous and takes less than 10 minutes to complete. Survey results will help Healthy Dane address needs, set goals and work together along with other partners to improve the health and well-being of local residents.

• English Language Community Health Survey: https://forms.office.com/r/e9EuQ8NKR8.

• Spanish Language Community Health Survey: https://forms.office.com/r/G4DeqBddT7.

• Hmong Language Community Health Survey: https://forms.office.com/r/rZRyy29Ag.

Learning Every day, Everywhere Infographics from Wisconsin DPI

How mental health impacts the LGBTQ+ community from Rogers Behavioral Health

Finding hope and healing for children suffering from trauma from Rogers Behavioral Health

The Brain Architects Podcast: COVID-19 Special Edition: How Do We Rebuild and Re-Envision Early Childhood Services? Podcast  from Center on the Developing Child from Harvard University

Pelin Cengiz, MD (Waisman Center investigator) receives Academic Staff Excellence Awards

COVID-19 Policy Flexibilities Affecting Children and Youth with Special Health Care Needs Report from Lucile Packard Foundation for Children’s Health

Disability Information and Access Line Help with COVID-19 vaccinations for people with disabilities from Administration for Community Living

Week of May 31

Guidance for Operating Youth Camps from the CDC

June Family Engagement Newsletter from WI FACETS:

Read about:

  • Family Engagement Article: What Parents Need to Know if Their Child Has Been Diagnosed with ADHD
  • Research to Read: Helping Students with ADHD in the Age of Digital Distraction
  • Online resources for youth and families in the area of ADHD
  • For Your Information: WCASS Guide: How to Provide Students with IEPs Access to Their Grade Level Curriculum Through Text to Speech
  • Information about upcoming statewide trainings, workshops and conferences
  • At Home Learning Strategies

June Respite Care of Wisconsin Connections:

  • Webinar Wednesday – Dementia and the ID/DD Population
  • Respite Care Provider Grant Awardees
  • Monthly Mini Training – Meaningful Summertime Activities & Adaptations
  • 2021 Respite Summit
  • Families Like Mine Conference

June Mental Health and Developmental Disabilities (MHDD) Newsletter:

Week of May 24

Finding Your Way: A Navigation Guide for Wisconsin Families who have Children and Youth with Special Health Care Needs and Disabilities is online, available for download and you can buy printed copies.

Making Fathers Visible in Maternal and Child Health from National Institute for Children’s Health Quality

Promoting Fathers’ Mental Health During Children’s Early Childhood from National Institute for Children’s Health Quality

Journal of School Nursing article explores how two DC school-based health centers customized the Six Core Elements and incorporated a welcome and care policy, readiness assessment, and tip sheet on finding an adult doctor as part of routine primary and preventive care.

2021 Health Transition Coding Tip Sheet from Got Transition?

Week of May 17

Mental Health America’s Tools to Thrive 2021

Questions and Answers on Civil Rights and School Reopening in the COVID-19 Environment from US Department of Education

Writing a Quality Transition IEP for Students with Autism (Part 1) Recording  Part of Conversations on Showing Up for Kids!

OCALIONLINE Autism and Disabilities Conference November 16-18–Special Price of $150 before June 15th. Families/Students can attend for $50.00.

New Resources to Help Families Access Early Intervention in Wisconsin — The Wisconsin Department of Health Services (DHS) is excited to launch the First 1,000 Days Outreach Campaign. Through this campaign, DHS aims to help more families who have children with suspected delays or disabilities access the Birth to 3 Program.

Masks at the Campfire: Summer Camps for Kids With Medical Needs Adapt to Covid from Kaiser Health Network

Cutting Edge Pre-College Webinar Series Summer of 2021

Finding Your Meaningful Day Recording part of 5 County Transition Talks

Disability Law Across the Lifespan Recording  Resources  part of 5 County Transition Talks

Community of Practice on ASD/DD Tele? What have we learned from pivoting to tele-services for those with Autism Spectrum Disorder and other Developmental Disabilities?

Free Learning Together Live Virtual Events for people Supporting Neurodiverse Students scheduled in 2021. [6/8]

Wisconsin Well Badger Resource Center is a statewide public health Information and Referral (I&R) service and resource program offering a toll free phone line and website for Children and Youth with Special Health Care Needs and more. Well Badger is staffed to provide information and referrals with a deliberate focus to engage high-risk populations and for those with special needs.
Website: https://wellbadger.org/
Phone: 1-800-642-7837

The Southern Regional Center for Children and Youth with Special Health Care Needs tries to help families, and the professionals who support them, through providing current resources, news articles, interesting items and more. We post “What’s New” on our home page each week. We regularly post this content and more on our Facebook page. We send out a weekly Resource Round-up on Fridays (send an email with Weekly Resource Round-up in the Subject Line to cyshcn@waisman.wisc.edu to join).We bring together the “What’s New” resources by topic and place them on the Resources page. We hope you can find some help, encouragement, or just information on this page. New content is added regularly.