mother with child

Encuentre su Camino
Una guía de orientación para las familias de Wisconsin que tienen niños y jóvenes con necesidades de atención médica especiales y disca

https://ucedd.waisman.wisc.edu/encuentre-su-camino/ More

Featured Resources and Events

Check out Autism Acceptance Month and 2023 Year of Mental Health (in Wisconsin) events, Conversations, webinars and a fantastic workshop!

May Recommended Book of the Month – provided by E.D. Locke Public Library Youth Services staff 

Disability Visibility (Adapted for Young Adults): 17 First-Person Stories for Today edited by Alice Wong is a young adult adaptation of Alice Wong’s Disability Visibility: First Person Stories from the Twenty-First Century. This adaptation includes 17 of the original stories and opens a window into the rich and wide-ranging world that comprises the disability community. These first-person accounts are written by authors with diverse identities.

Red question mark with person leaning on it

Upcoming trainings/events/gatherings from Southern Regional Center and our partners! will be coming soon.

What's New?

Resources for children with special health needs and the families who care for them

Don’t worry about calming the storm. Calm yourself; the storm will pass. -source unknown

Featured Resources and Events — Friday, June 2

We are looking for feedback from people who receive the SRC Resource Round-up — it is short, honest.

Check out the recordings and resources from the CoP ASD/DD on All Behavior Matters: What Counts as Challenging Behavior and for Who?

Listening Session (Virtual) June 6, 5:00-6:00pm from Family Voices of Wisconsin

June Recommended Book of the Month – provided by E.D. Locke Public Library Youth Services staff 

Coming Soon

Upcoming webinars/trainings/conversations/gatherings

LGBTQ2IA+ Families Then and Now series June 5, 2:00-3:30pm from Brazelton Touchpoints All webinars provide live Spanish language translation and closed captioning.

Listening Session (Virtual) June 6, 5:00-6:00pm from Family Voices of Wisconsin

Why Respite Matters and how RCAW can help! June 7, 1:00pm from RCAW (Respite Care Association of Wisconsin)

Father to Father June 7, 7:00pm from Family Connections: National Federation of Families

Adaptive Alliance Carnival June 11, 1-4pm 1712 Cranston Road, Beloit. Free, open to everyone but will be focused on adults with disabilities

LGBTQ2IA+ Families Then and Now series June 12, 11:30am-1:00pm from Brazelton Touchpoints All webinars provide live Spanish language translation and closed captioning.

2023 Wisconsin Respite Care Summit – Granting Impact! June 13, 8:15am-3:00pm FREE but you must register Italian Community Center in Milwaukee

APOYANDO LA ALFABETIZACIÓN EN EL HOGAR DURANTE EL VERANO Webinar June 15, 12:00-1:00pm from WI FACETS

SibShop at the Henry Vilas Zoo, June 24, 11:00am-2:00pm Registration is necessary and limited. For children ages 6-12 years old who have a brother or sister with disabilities. Offered by WisconSibs

A Celebration of Trails Jun 24, 12:30-3:00pm Family friendly, inclusive activities — Pheasant Branch Conservancy/Orchid Heights Park

LGBTQ2IA+ Families Then and Now series June 26, 11:30am-1:00pm from Brazelton Touchpoints All webinars provide live Spanish language translation and closed captioning.

Other Information for the Week of May 29

ARTS for ALL Wisconsin (formerly VSA Wisconsin) offers Summer Arts Classes for people with disabilities ages 5 and up at our Madison Art Center. Classes do not require parent participation or supervision and are offered in visual art, music, and movement. https://arts-for-all-wi.jumbula.com/#/youth-arts-programming
  • Recorded Parent Panel talking about Children’s Mental Health
  • Register for the Annual Conference November 9-11 in Chicago (Meet Hasan Davis–keynote)
  • Including and Elevating Fathers in Family Mental Health Support Webinar June 15, 1:00pm
  • Recorded Supporting Family Members with Co-Occurring Diagnoses
  • Recorded TAC talk – What Can I Do to Manage Loss?
  • Family Connections: Father to Father June 7, 7:00pm
  • Pursuing Equity in Mental Health — Legislative and Advocacy News
  • Saluting Fathers Resources
  • Events and Resources — check out UMass’s Transitions to Adulthood Center for Research

Wisconsin Board for People with Developmental Disabilities (BPDD) June Newsletter (Boletín de BPDD de Wisconsin – junio de 2023)

  • Madison Disability Pride Fest — July 29th, Warner Park 12-5pm
  • Partners in Policymaking Applications are open
  • SPARKS grants applications are open
  • Self-Determination Conference is October 16-18 at the Kalahari
  • Check out the Self-Determination Channel on Youtube
ReSET (Restarting Safe Education and Testing) for Children with Medical Complexity Reader Volume 9 (Versión en español)
  • What’s Next?: Schools Share Simple Strategies for Supporting the Health of Children with Complex Health Needs Beyond the Pandemic
  • Stay tuned for more resources from ReSET and its partners this summer! Our team is currently developing a “Keeping Children with Complex Health Needs Healthy in Schools” toolkit in time for back-to-school season.
  • Partner Spotlight: Disability Rights Wisconsin

LGBTQ2IA+ Families Then and Now 5 part series from Brazelton Touchpoints All webinars provide live Spanish language translation and closed captioning. See Upcoming Events listing for remaining webinar times. Remaining webinars will be June 5, 12, & 26.

If you have BadgerCare/Medicaid — learn about the Public Health Emergency Unwinding

Changes are Coming to BadgerCare and Medicaid from ABC for Health

Unwinding Partner Toolkit from Wisconsin Department of Health Services

Fact Sheet: COVID-19 Public Health Emergency Transition Roadmap from HHS.gov

How Are State Medicaid Programs Approaching the Unwinding of the Federal Continuous Enrollment Provision? Recorded Web Event from Kaiser Family Foundation

Public Health Emergency and Continuous Coverage Unwinding Resources – from the National Health Law Program

Unwinding Resources – from the Georgetown Center for Children and Families

Public Health Emergency Unwinding Resources – from the Kaiser Family Foundation

Other Information for the Week of May 22

Youth Perspectives on Mental Health: Supporting the Next Generation from the MCH Bridges Podcast

It’s May, hi. I’m the problem, it’s May from Learn with Dr. Emily

Wisconsin Safe and Health Schools (WISH) Newsletter

  • Bullying Prevention Toolkit Walk-through Video & Support Available
  • Greatest Safe & Healthy Schools Needs
  • New Tools on School Attendance
  • 2021 YRBS Report
  • More Than Enough
  • 2023 Best Practices in Health Equity
  • Fall 2023 WISH Center Events

Other Information for the Week of May 15

Check out Autism Acceptance Month and 2023 Year of Mental Health (in Wisconsin) events, Conversations, webinars and a fantastic workshop!

Transition Educators: You are being invited to participate in a research study from Washington State University on evaluating teachers’ self-efficacy regarding the use of evidence-based transition practices and what transition-specific professional development opportunities are offered to educators. Please click on the link to take the survey: https://wsu.co1.qualtrics.com/jfe/form/SV_cGxLlKudGHUedOS. Thank you again for your time and if you have any questions, feel free to contact lauren.bruno@wsu.edu or (509) 335-4570.

Place Matters: The Environment We Create Shapes the Foundations of Healthy Development from Centering on the Developing Child from Harvard University

Adams, Rock, Crawford, Lafayette, Vernon Counties — Did you know the Early Childhood Health Consultation (ECHC) is a free program that provides Wisconsin’s early childhood care and education providers with information on best practices related to child health and safety? Through this program, early care and education (ECE) providers can receive free health consultations, on-demand training, and tailored resources surrounding best practices for health and safety needs at their child care facilities. For more information we invite you to visit the ECHC websitewebinars, and podcasts.

Wisconsin Pyramid Model program expulsion rates are 13X lower than Wisconsin program expulsion estimates — from WAIMH

How to Show Up for the Sex Talk Your Kids Deserve from Learn with Dr. Emily

3 Most Common Reasons Behind Bedtime Anxiety…and what to do about it from Learn with Dr. Emily

MCH Bridges Podcast “The Joy of Autism: A New Way of Thinking”

Things to Remember

Wisconsin Birth to 3 Program is committed to serving children under the age of 3 with developmental delays and disabilities and their families. We value your family’s primary relationship with your child and work in partnership with your family. We work to enhance your child’s development and support your family’s knowledge, skills, and abilities as you interact with and raise your child. Learn more on the Wisconsin Department of Health Services website.

Katie Beckett Medicaid provides access to Wisconsin Medicaid services for children with disabilities, mental illness, or complex medical needs. Katie Beckett helps some children whose parents have too high of an income for Medicaid, and those covered by private insurance, get a ForwardHealth Medicaid card so they can receive needed services and equipment that might not otherwise be covered. To apply, families can call 888-786-3246. They will be connected with an eligibility specialist who will explain the Medicaid benefit and help the family decide if they want to pursue enrollment. Learn more on the Wisconsin Department of Health Services website.

Disability Information and Access Line Help with COVID-19 vaccinations for people with disabilities from Administration for Community Living

Dane County Behavioral Health Resource Center — If you, someone you care about, or someone you are working with needs help finding mental health and/or substance use services in Dane County. The BHRC phone line is available Monday to Friday 7am to 7pm at (608) 267-2244; Email the BHRC at BHRC@countyofdane.com

This is an accordion element with a series of buttons that open and close related content panels.

Interested in participating in research?

 Research Studies: Up to date listing of Waisman Center studies that are currently recruiting

This is an accordion element with a series of buttons that open and close related content panels.

School Information, Guidance and Resources for COVID-19–now on our School/Special Education Page

For more information please go to our School/Special Education page.

Waisman Center Resources and Updates for COVID-19

WI DHS Higher Risk/Families with CYSHCN Resources for COVID-19

Here are some current updates:

Several new versions of the family decision making tool available via our ReSET webpage (www.reset4kids.org):

  • a Spanish version
  • a fillable Word document that is more user-friendly

As you all are experiencing, the announcement by the Centers for Disease Control and Prevention (CDC) in a media briefing on Friday, February 25, 2022 has dramatically changed the COVID mitigation landscape, including how to mitigate the spread of infection in schools. At this time there is no targeted guidance from the CDC other than the media briefing and this new COVID-19 Community Levels webpage.

DPI’s COVID-19 Infection Control and Mitigation Measures for Wisconsin School 2021-2022 is pulled from access. The document will be revised in the next few days, hopefully with more direction from the CDC. Resources below will hopefully be updated in the near future. For now, they are for historical reference.

COVID-19 Webinar for Local Public Health and School Stakeholders (1.26.22)

WI Department of Health Services Clinical Guidance for vaccinating 5-11 year olds (11.5.21)

Safe, Strong & Healthy Schools with Wisconsin doctors, educators, scientists, and leaders exploring the ways that schools and districts can build and maintain “Safe, Strong & Healthy Schools”

ReSET (Restarting Safe Education & Testing) for Children with Medical Complexity from Healthy Kids Collaborative Dane County

Guidance for COVID-19 Prevention in K-12 Schools (1/6): https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-guidance.html

Overview of COVID-19 Isolation for K-12 Schools (1/6): https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-contact-tracing/about-isolation.html

Overview of COVID-19 Quarantine for K-12 Schools (1/6):  https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-contact-tracing/about-quarantine.html

Responding to COVID-19 Cases in K-12 Schools: Resources for School Administrators (1/6)https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-contact-tracing/guide.html

What You Should Know About COVID-19 Testing in Schools (1/6): https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/what-you-should-know.html

Schools, Child Care, and Colleges (1/6): https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/index.html

Wisconsin Well Badger Resource Center is a statewide public health Information and Referral (I&R) service and resource program offering a toll free phone line and website for Children and Youth with Special Health Care Needs and more. Well Badger is staffed to provide information and referrals with a deliberate focus to engage high-risk populations and for those with special needs.

The WI Children’s Mental & Behavioral Health Navigator is a free, confidential, online tool designed to help parents, caregivers and professionals in Wisconsin navigate (find, access, pay for) mental and behavioral health services and support for children, adolescents and young adults under the age of 21. Just answer a few questions about the child, and the Navigator provides a customized guide to connect kids and families with the resources and support they need and deserve.

Website: https://wellbadger.org/
Phone: 1-800-642-7837

The Southern Regional Center for Children and Youth with Special Health Care Needs tries to help families, and the professionals who support them, through providing current resources, news articles, interesting items and more. We post “What’s New” on our home page each week. We regularly post this content and more on our Facebook page. We send out a weekly Resource Round-up on Fridays (send an email with Weekly Resource Round-up in the Subject Line to cyshcn@waisman.wisc.edu to join).We bring together the “What’s New” resources by topic and place them on the Resources page. We hope you can find some help, encouragement, or just information on this page. New content is added regularly.