Children and Youth with Special Health Care Needs

Conversations on Showing Up for Kids!

Conversations on Showing Up for Kids! is a regular webcast of the Southern Regional Center for Children and Youth with Special Health Care Needs. Tim Markle, Director of the Southern Regional Center, holds a virtual conversation with people and organizations who impact our children’s lives. Families, and the professionals who support them, are invited to join the conversation! Registration for upcoming conversations is at https://go.wisc.edu/786y37. When you register you will receive a Zoom Link to join the conversation.

Conversations are recorded and posted to the Community of Practice on Autism Spectrum Disorder and other Developmental Disabilities YouTube channel. A topical listing, with descriptions and links, is available below. A listing by webcast date is here.

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Engaging in Learning from Home

School Closures Impact on Students with CYSHCN–Sept. 17, 2020

Resources mentioned during the conversation:
Survival Coalition of Wisconsin Disability Advocacy Groups: http://www.survivalcoalitionwi.org/
The Impact of School Closures on Families and Students with Disabilities Family Focus Groups Report: https://go.wisc.edu/hg994s
Education Forward: Reopening Wisconsin Schools: https://dpi.wi.gov/sites/default/files/imce/school-nutrition/pdf/education-forward.pdf
Family Voices of Wisconsin: https://familyvoiceswi.org/
Southern Regional Center for Children and Youth with Special Health Care Needs (SRC CYSHCN): https://cyshcn.waisman.wisc.edu/

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Liz Hecht from Family Voices of Wisconsin and the Survival Coalition of Wisconsin Disability Organizations. They talked about what the Survivor Coalition learned from their family focus groups on The Impact of School Closures on Families and Students with Disabilities held June of 2020.

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Virtual Special Education: What we can learn from a virtual school’s experiences–May 13, 2020

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Andrea Schmidt, 504 Coordinator, WIVA/WIDCA/ISWI and Amanda Maedke, Lead Special Education Teacher, WIVA/WIDCA/ISWI. Children with special needs who had been attending school in person had the support of their physical IEP team. Now they are at home, attending school online. For WIVA families, this is normal. Wisconsin Virtual Academy (WIVA), a K12 powered school, is based in McFarland. It is available for all students throughout Wisconsin as a public choice school.

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An educator’s perspective on at-home learning–May 6, 2020

Tim Markle, Director of the Southern Regional Center for CYSHCN, talked with Katie Berg, Coordinator of the Wisconsin’s Supporting Neurodiverse Students grant, about helping families engage in learning from an educator’s point of view during COVID-19.

Family Support

Parent Support and Parent to Parent of WI–October 15, 2020

Resources mentioned during the conversation:
Parent to Parent of Wisconsin https://www.facebook.com/parent2parent.wi https://p2pwi.org/
Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/

Tim Markle, Director of the Southern Regional Center for CYSHCN talked with Robin Mathea, Director of Parent to Parent of Wisconsin. We chatted about how connecting with other parents helps and where Parent to Parent of Wisconsin fits in.

Mental Health

Anxiety and Heading Back to School–August 27, 2020

Resources mentioned in this conversation:
DPI Mental Health Resources for families: https://dpi.wi.gov/families-students/mental-health-and-wellness
NASP COVID-19 helping children cope with COVID-19 Changes: https://www.nasponline.org/resources-and-publications/resources-and-podcasts/school-climate-safety-and-crisis/health-crisis-resources/helping-children-cope-with-changes-resulting-from-covid-19
National Center for School Crisis and Bereavement (scripts for teachers to talk to their students): https://www.schoolcrisiscenter.org/resources/covid-19-pandemic-resources/
Care for caregivers NASP: https://www.nasponline.org/resources-and-publications/resources-and-podcasts/school-climate-safety-and-crisis/mental-health-resources/care-for-caregivers-tips-for-families-and-educators
Focus on Mental Health and Wellness-DPI SSPW Team: https://dpi.wi.gov/sites/default/files/imce/sspw/pdf/Focus_on_Mental_Health_and_Wellness_During_School_Closure.pdf
Children’s Book from The National Child Traumatic Stress Network: https://www.nctsn.org/sites/default/files/resources/special-resource/trinka_and-sam_fighting_the_big_virus.pdf
CP Consulting: https://cpconsulting.us/
Worry monster: https://www.amazon.com/Haywire-Group-Worry-Eaters-Polli/dp/B00VZ36FG4/ref=sr_1_36?child=1&keywords=worry+monster&qid=1598886833&sr=8-36
Southern Regional Center for Children and Youth with Special Health Care Needs: cyshcn.waisman.wisc.edu

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Connie Persike, Speech Language Pathologist and Behavioral Consultant from CP Consulting, and Tim Peerenboom, School Psychology Consultant for WI DPI. Listen in as they talk about ideas on helping our kids (and ourselves) deal with the anxiety of returning to school.

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Anxiety: Ideas to help our kids be calm(er) and (more) focused–May 20, 2020

Tim Markle, Director of the Southern Regional Center for CYSHCN was joined by Connie Persike, Speech Language Pathologist and Behavioral Consultant from CP Consulting. Come learn some ideas on helping our kids (and ourselves) deal with our anxiety while staying safer at home.

Public (Formal) Supports

Accessing the Telecommunications Equipment Purchase Program–October 22, 2020

Resources mentioned in this conversation:
Telecommunications Equipment Purchase Program: https://psc.wi.gov/Pages/Programs/TEPP.aspx
Eligible Specialized Telecommunications Equipment For TEPP: https://psc.wi.gov/Documents/USF/TEPPequipment.pdf
Lifeline: https://psc.wi.gov/Pages/Programs/LifeLineLinkup.aspx
Well Badger Resource Center: https://www.wellbadger.org/
Southern Regional Center for Children and Youth with Special Health Care Needs (SRC CYSHCN): https://cyshcn.waisman.wisc.edu/
SRC CYSHCN Facebook: https://www.facebook.com/SouthernRegionalCenter/

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Holly O’Higgins and Billy Mauldin, Wisconsin’s Universal Service Fund, and Rebecca Wyland, Information and Referral Coordinator for Well Badger Resource Center. Listen in and learn about lowering your phone/internet bill through Lifeline, and getting connected to specialized and affordable telecommunications equipment through the Telecommunications Equipment Purchase Program (TEPP).

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Connecting to Affordable Telecommunications-Lifeline and TEPP–October 1, 2020

Resources mentioned in this conversation:
National Verifier: https://www.checklifeline.org/lifeline
Lifeline: https://psc.wi.gov/Pages/Programs/LifeLineLinkup.aspx
List of Carriers: https://psc.wi.gov/Documents/USF/lifelineContacts.pdf
Well Badger Resource Center: https://www.wellbadger.org/
Southern Regional Center for Children and Youth with Special Health Care Needs (SRC CYSHCN): https://cyshcn.waisman.wisc.edu/
SRC CYSHCN Facebook: https://www.facebook.com/SouthernRegionalCenter/

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Holly O’Higgins and Billy Mauldin, Wisconsin’s Universal Service Fund, and Rebecca Wyland, Information and Referral Coordinator for Well Badger Resource Center. Listen in to learn about lowering your phone/internet bill through Lifeline, and getting connected to specialized and affordable telecommunications equipment through the Telecommunications Equipment Purchase Program (TEPP).

Rural Wisconsin

Rural Wisconsin: The Good, the Bad and the Ugly–May 27, 2020

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Rose Cutting. Rose is a rural Wisconsin community member; mother of 3, wife of 1; founder of Aiming 4 Acceptance and The Learning Center. We had a wonderful conversation about the great things about being a rural family with a child with special needs and the not-so-great things about living in a rural setting.

School Nursing in Wisconsin

What is the Role of School Nurses?–Oct. 8, 2020

Resources mentioned in this conversation:
To learn more about a shared plan of care: https://www.chawisconsin.org/initiatives/medical-home/family-engagement/
Wisconsin DPI School Nursing and Health Services: https://dpi.wi.gov/sspw/pupil-services/school-nurse
Wisconsin Association of School Nurses: https://www.wischoolnurses.org/home
Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Louise Wilson who is the School Nursing and Health Consultant for the WI Department of Public Instruction. Listen in on a conversation about what school nurses do and how important it is for families of children with special needs to build a relationship with their school nurse.

Schooling Options (in collaboration with the Autism Society of South Central Wisconsin)

What is Homeschooling? Part 2 of a conversation about autism/special needs and special education

As families decide on which educational option is best for their child(ren), the Autism Society of South Central Wisconsin (ASC) and the Southern Regional Center (SRC) for Children and Youth with Special Health Care Needs hosted a 2 part series on options for families. Tim Markle, ASC Education Committee and Director of SRC, was joined by two parents who have experience home schooling their special needs children along with a professional from the Wisconsin Homeschooling Parent Association (WPHA) https://www.homeschooling-wpa.org/

We hope this video gives families who have children with autism or other special needs more information about choosing homeschooling as a mode of education. You can find some excellent information on what Wisconsin Law says about homeschooling at https://www.homeschooling-wpa.org/2016/07/13/wisconsin-homeschool-law/

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What is Virtual Schooling? Part 1 of a conversation about autism/special needs and special education–August 17, 2020

As families decide on which educational option is best for their child(ren), the Autism Society of South Central Wisconsin (ASC) and the Southern Regional Center (SRC) for Children and Youth with Special Health Care Needs decided to have a 2 part series on options. Tim Markle, ASC Education Committee and Director of SRC was joined by two parents and two professionals from special education programs with virtual schools. We hope this video gives families who have children with autism or other special needs more information about choosing virtual school as a mode of education.

Special Education in Wisconsin

How does the Wisconsin Statewide Parent-Educator Initiative (WSPEI) support parents?–Sept. 19, 2020

Resources mentioned in this conversation:
Wisconsin Statewide Parent Educator Initiative (WSPEI): https://wspei.org/
Cooperative Educational Service Agency (CESA): https://dpi.wi.gov/cesa#
Family Engagement at DPI: https://dpi.wi.gov/sped/families
Wisconsin Special Education Mediation System (WSEMS): https://dpi.wi.gov/sped/dispute-resolution/wsems
Southern Regional Center for Children and Youth with Special Health Care Needs (SRC CYSHCN): https://cyshcn.waisman.wisc.edu/
SRC CYSHCN Facebook: https://www.facebook.com/SouthernRegionalCenter/

Tim Markle, Director of the Southern Regional Center for CYSHCN and Caroline Rossing, Statewide Grant Coordinator from the Wisconsin Stateside Parent Educator Initiative (WSPEI) got together to talk about WSPEI and how it can support parents. WSPEI is all about partnerships. It helps families and school districts build positive working relationships that lead to shared decision making and children’s learning.

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What can I do if I disagree with my school IEP team?–September 3, 2020

Resources mentioned in this conversation:
WI FACETS: https://wifacets.org/ Trainings, modules, resources on special education
WI FACETS Helpline: 1-877-374-0511
WSEMS (Wisconsin Special Education Mediation Services): https://www.wsems.us/ Phone: (888)-298-3857
Southern Regional Center for CYSHCN: https://cyshcn.waisman.wisc.edu/
SRC Information and Referral: 1-800-532-3321

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Matthew Zellmer, the Parent Services Coordinator for WI FACETS and Gia Pionek , System Administrator and Intake Coordinator, Wisconsin Special Education Mediation System. We had a great discussion about how to work through disagreements and what are the mediation options available to families and schools.

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Special Education and IEPs with WI FACETS–June 3, 2020

Tim Markle, Director of the Southern Regional Center for CYSHCN, will be talking with Matthew Zellmer, the Parent Services Coordinator for WI FACETS. WI FACETS is short for Wisconsin Family Assistance Center for Education, Training and Support. Listen in and learn about Special Education in Wisconsin and where families can find support in understanding IEPs (Individualized Education Program). To contact WI FACETS–https://wifacets.org/ 877-374-0511 To contact the Southern Regional Center for CYSHCN https://cyshcn.waisman.wisc.edu/ 800-532-3321

Summer 2020 Ideas

Ideas for Summer 2020 from Bay Cliff Therapy Camp–June 17, 2020

Tim Markle, Director of the Southern Regional Center, was joined by Clare Lutgen, Executive Director of Bay Cliff Health Camp. Bay Cliff Health Camp is a non-profit organization that provides residential summer therapy programs that promote health, welfare, happiness and independence of children and adults living with physical disabilities. Come learn how Bay Cliff Health Camp is transforming into Bay Cliff Virtual Camp, how families can get involved, and other ways to sustain gains in the summer of 2020. To contact Bay Cliff: www.baycliff.org To contact the Southern Regional Center: www.cyshcn.waisman.wisc.edu 1-800-532-3321

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Camp Cancelled? Ideas for Summer 2020 from Easter Seals Wisconsin: June 10, 2020

Tim Markle, Director of the Southern Regional Center, will be talking with staff from Easter Seals Wisconsin Camp Wawbeek and Respite Camp about free activities, stories, zoom activities and other programs to do at home since camp is cancelled throughout the summer. The camp provides recreational activities for children and adults with disabilities for 10 weeks in the summer and 24 weekends throughout the school year. Camp has been in operation for 81 years, and is the oldest continually operating Easterseals Camp in the nation. We will also be sharing where to find their resources online. Tim was joined by Carissa Peterson, CTRS (VP, Camp and Respite Services), Anna Korb, CTRS (AmeriCorps Program Manager), Jamie Lloyd (Director, Respite Camp) and Alex Peters (Director, Camp Wawbeek).

Southern Regional Center: https://cyshcn.waisman.wisc.edu/

Easter Seals Wisconsin: https://www.eastersealswisconsin.com/

mother with child

Do you have a topic you would like to us to talk about in 2021? Maybe you want to know more about transitioning to adulthood or what is a medical home and how can families partner with doctors? Maybe we should talk about public programs or partners or play? Should we bring on some researchers? We want to know! (Please do not include personal information or health information.)

Email your ideas to cyshcn@waisman.wisc.edu