Children and Youth with Special Health Care Needs

Conversations on Showing Up for Kids!

Conversations on Showing Up for Kids! is a regular webcast of the Southern Regional Center for Children and Youth with Special Health Care Needs. We hope this is an informal time and space for families to learn, share and ask questions. Tim Markle, Director of the Southern Regional Center, holds a virtual conversation with people and organizations who impact our children’s lives. Families, and the professionals who support them, are invited to join the conversation! Registration for upcoming conversations is at https://go.wisc.edu/786y37. When you register you will receive a Zoom Link to join the conversation. Conversations are recorded and posted to the Community of Practice on Autism Spectrum Disorder and other Developmental Disabilities YouTube channel. A topical listing, with descriptions and links, is available below. A listing by webcast date is here.

 

There will be no Conversation on Thursday, June 10th or June 17th You can check out the fantastic conversations we have had over the last year!

Do you have a topic or a speaker that you would like to see in June? Drop us note at cyshcn@waisman.wisc.edu.

Recorded Conversations

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Engaging in Learning from Home

A Guide to Implementing IEPs and Monitoring Progress of IEP Goals When Moving Between In-Person, Hybrid or Virtual Learning Environments.  Thursday, February 4

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Tim Markle, Director of the Southern Regional Center for CYSHCN, talks with Sharon Madsen, from the Wisconsin Department of Public Instruction. To help IEP teams navigate the shifting learning environments, they researched and put together some best practices for implementing IEP goals. Learn about the guide and how it can be useful for IEP teams—including families!

Resources mentioned in this video:

Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/

Training Video and Guide: https://dpi.wi.gov/sped/college-and-career-ready-ieps/learning-resources/moving-in-person-to-virtual


School Closures Impact on Students with CYSHCN–Sept. 17, 2020

Resources mentioned during the conversation:
Survival Coalition of Wisconsin Disability Advocacy Groups: http://www.survivalcoalitionwi.org/
The Impact of School Closures on Families and Students with Disabilities Family Focus Groups Report: https://go.wisc.edu/hg994s
Education Forward: Reopening Wisconsin Schools: https://dpi.wi.gov/sites/default/files/imce/school-nutrition/pdf/education-forward.pdf
Family Voices of Wisconsin: https://familyvoiceswi.org/
Southern Regional Center for Children and Youth with Special Health Care Needs (SRC CYSHCN): https://cyshcn.waisman.wisc.edu/

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Liz Hecht from Family Voices of Wisconsin and the Survival Coalition of Wisconsin Disability Organizations. They talked about what the Survivor Coalition learned from their family focus groups on The Impact of School Closures on Families and Students with Disabilities held June of 2020.

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Virtual Special Education: What we can learn from a virtual school’s experiences–May 13, 2020

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Andrea Schmidt, 504 Coordinator, WIVA/WIDCA/ISWI and Amanda Maedke, Lead Special Education Teacher, WIVA/WIDCA/ISWI. Children with special needs who had been attending school in person had the support of their physical IEP team. Now they are at home, attending school online. For WIVA families, this is normal. Wisconsin Virtual Academy (WIVA), a K12 powered school, is based in McFarland. It is available for all students throughout Wisconsin as a public choice school.

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An educator’s perspective on at-home learning–May 6, 2020

Tim Markle, Director of the Southern Regional Center for CYSHCN, talked with Katie Berg, Coordinator of the Wisconsin’s Supporting Neurodiverse Students grant, about helping families engage in learning from an educator’s point of view during COVID-19.

Family Support and Advocacy

In My Own Words  Thursday, April 22  12:00-12:45pm

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Tim Markle, Director of the Southern Regional Center for CYSHCN will be joined by Scott Allen. Scott is an advocate and leader in the Wisconsin Autism community. He is on the Board of Directors for the Autism Society of South Central Wisconsin (ASC). He is founder and facilitator of the INTEGRAL Conference and serves as a facilitator for the ASC Adult Social Group. He has facilitated an empowerment group for autistic students at UW-Madison for 4 years and is currently using his Masters in Counseling as a counselor at Westside Psychotherapy. Scott will be sharing his current thoughts on bringing all parts of the autism community together.

Scott’s Notes

Resources mentioned in this video

Notes/outline from Scott Allen: https://cyshcn.waisman.wisc.edu/wp-content/uploads/sites/140/2021/04/Notes-for-Conversations-on-Showing-Up-for-Kids.pdf
Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/
Conversations on Showing Up for Kids: https://cyshcn.waisman.wisc.edu/
Other Regional Centers: https://www.dhs.wisconsin.gov/cyshcn/regionalcenters.htm
Autism Society of South Central Wisconsin: https://autismsouthcentral.org/
INTEGRAL Conference: https://integralautism.org/
Autistic Self Advocacy Network: https://autisticadvocacy.org/
Parent to Parent of Wisconsin (matching trained parents with parent wanting to connect with other parents: https://p2pwi.org/
Exploring the Controversy Around ABA Therapy : https://www.autismparentingmagazine.com/autism-aba-therapy/

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Prevalence, Disparities and Lessons Learned from WISADDS  Thursday, April 15

Tim Markle, Director of the Southern Regional Center for CYSHCN will be joined by Maureen Durkin and Angelica Salinas from the Wisconsin Surveillance of Autism and Other Developmental Disabilities System (WISADDS). We will be discussing how the prevalence of Autism is determined, what disparities have been found and what other lessons we can learn from WISADDS.

After you watch this video, please give us feedback: https://go.wisc.edu/n174x4​

Tim Markle, Director of the Southern Regional Center for CYSHCN will be joined by Maureen Durkin and Angelica Salinas from the Wisconsin Surveillance of Autism and Other Developmental Disabilities System (WISADDS). We will be discussing how the prevalence of Autism is determined, what disparities have been found and what other lessons we can learn from WISADDS.

Resources mentioned in this conversation:
Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/
Conversations on Showing Up for Kids: https://cyshcn.waisman.wisc.edu/
Other Regional Centers: https://www.dhs.wisconsin.gov/cyshcn/regionalcenters.htm
Wisconsin Surveillance of Autism and other Developmental Disabilities System (WISADDS): https://wisadds.waisman.wisc.edu/
Autism and Developmental Disabilities Monitoring (ADDM) Network: https://www.cdc.gov/ncbddd/autism/addm.html

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What You Need to Know About the Autism SocietieS of Wisconsin  Thursday, April 8

Tim Markle, Director of the Southern Regional Center for CYSHCN  is joined by Kirsten Cooper, Kirsten Engel, and Emily Levine —the executive directors of the three Autism Society affiliates serving Wisconsin. We will be talking about Autism Acceptance Month, inclusion, community and how they make a difference in Wisconsin. Autism Society of Greater WisconsinAutism Society of South Central Wisconsin,  Autism Society of Southeastern Wisconsin.

After you watch this video, please give us feedback: https://go.wisc.edu/n174x4​

Resources mentioned in this video:

Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/
Conversations on Showing Up for Kids: https://cyshcn.waisman.wisc.edu/
Other Regional Centers: https://www.dhs.wisconsin.gov/cyshcn/regionalcenters.htm
Autism Society of Southeastern Wisconsin (ASSEW): https://www.assew.org/
Autism Society of Greater Wisconsin (ASGW): https://www.autismgreaterwi.org/
Autism Society of South Central Wisconsin (ASC): https://autismsouthcentral.org/
ASSEW Ungala: https://www.assew.org/ungala-2021/
ASC Walk: https://autismsouthcentral.org/walk/
ASGW Conference: https://www.autismgreaterwi.org/inform-influence-innovate-together-virtual-autism-conference/
Autism Self Advocacy Network (ASAN): https://autisticadvocacy.org/
ASAN Identity First Language: https://autisticadvocacy.org/about-asan/identity-first-language/
Maslow’s hierarchy of needs: https://www.simplypsychology.org/maslow.html


How to Find, Train and Retain Your Own Respite Workers with RCAW. Thursday, April 1

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Tim Markle, Director of the Southern Regional Center for CYSHCN will be joined by Val Madsen, Training and Development Specialist with Respite Care Association of Wisconsin (RCAW). Come learn and talk about the tools RCAW has to help you find, train and retain your own respite care workers.

Resources mentioned in this video: Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/
Conversations on Showing Up for Kids: https://cyshcn.waisman.wisc.edu/
Other Regional Centers: https://www.dhs.wisconsin.gov/cyshcn/regionalcenters.htm
Respite Care Association of Wisconsin: https://respitecarewi.org/
RCAW Online Training Courses: https://respitecarewi.org/training-courses/
RCAW Grants: https://respitecarewi.org/training-courses/
RCAW Registry: https://respitecarewi.org/registry/

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Family Voices of Wisconsin: Advocacy for Change Event and other Resources.  Thursday, March 18

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Lynn Renner from Family Voices of Wisconsin. Come and learn about the resources and trainings they offer along with information on their Advocacy for Change event coming March 30th and 31st.

After you watch this video, please give us feedback: https://go.wisc.edu/n174x4​​

Resources mentioned in this video:

Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/​

Conversations on Showing Up for Kids: https://cyshcn.waisman.wisc.edu/

Family Voices of Wisconsin: https://familyvoiceswi.org/

Advocacy for Change Information and Registration: https://familyvoiceswi.org/advocacy-for-change/

Advocacy for Change Videos and Agenda: https://familyvoiceswi.org/advocacy-for-change-2021-everything-you-need-to-get-ready/

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What is Fetal Alcohol Spectrum Disorder and What are the Challenges Families Face?  Thursday, February 25

Tim Markle, Director of the Southern Regional Center for CYSHCN, talks with parents and leaders from Orchids WI FASD Services. FASD stands for Fetal Alcohol Spectrum Disorder and is a developmental disability with life-long challenges that is twice as common as autism. Join us to hear from parents facing the challenges of helping children move into adulthood.

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Resources mentioned in this conversations:

Wisconsin Orchids FASD services: http://www.orchidsfasdservices.org/

Information and resources on FASD including how help others understand: https://www.cdc.gov/ncbddd/fasd/index.html https://nccd.cdc.gov/FASD/

Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/

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Let’s Talk Tourette and Tic Disorder! Challenges, Supports and an Awesome Conference  Thursday, February 18

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Let’s Talk Tourette and Tic Disorder! Challenges, Supports and an Awesome Conference

Tim Markle, Director of the Southern Regional Center for CYSHCN, talks with Ellie Jarvie, from the Wisconsin Chapter of the Tourette Association of America. Learn more about Tourette and Tic Disorder, what sort of challenges families may face, how families can find supports and a bit about their upcoming conference being held once a week, one hour a day for six weeks!

Resources based on this video: Tourette Connections Conference – FREE, but you must register Wednesdays from 12-1 CST February 24- March 31st More details here: Tourette Connections: Virtual Webinar Series – Tourette Association of America https://tourette.org/tourette-connections/

Search for a doctor or therapist familiar with Tourette Syndrome and tic disorders and current treatments: Find A Provider – Tourette Association of America https://tourette.org/find-a-provider/

Information on Comprehensive Behavioral Intervention for Tics (CBIT) CBIT: Information for Patients – Tourette Association of America https://tourette.org/research-medical/cbit-for-patients/ or attend the webinar on 3/10/21. Register here: https://register.gotowebinar.com/register/3035892754125076752

Information about the Tourette Association of America- Wisconsin Chapter : Tourette Association of America https://tourette.org/chapter/wi/

The Wisconsin Chapter has an active closed Facebook group, search Wisconsin Tourette Syndrome Support Group and ask to join.

Many free/low-cost resources at Tourette.org

Workbook on self-disclosure on tics and other mental health issues for teens : Up to Me – Teens – Tourette Association of America https://tourette.org/up-to-me-teens/

Tic helper : Online self-guided adaptation of CBIT- TicHelper | An Online Intervention for Children With Tic Disorders https://www.tichelper.com/

Tic clinic at Marquette University : Center for Psychological Services // Psychology // Marquette University https://www.marquette.edu/psychology/center-for-psychological-services.php

Tourette Camp USA – The longest running camp for youth with Tourette Syndrome and associated disorders: Tourette Syndrome Camp USA (tourettecampusa.com) https://www.tourettecampusa.com/

Tourette’s Podcast – Tourette’s Podcast https://www.tourettespodcast.com/

Kristin Neff, self-compassion Self-Compassion https://self-compassion.org/ In the book Self-Compassion, Dr Neff talks about needing to really learn to apply self-compassion when she was helping her son with autism who was having a hard time while on a crowded plane. Great resource for parents of kids with any disability, or those of us who are parents with a disability. I especially like the free guided meditations and practices available on the website.

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What is the Well Badger Resource Center and How Can They Help? –January 28, 2021

Resources mentioned in this conversation:
Well Badger Resource Center
Southern Regional Center for Children and Youth with Special Health Care Needs

Tim Markle, Director of the Southern Regional Center for CYSHCN, will talk with Kristine Alaniz, from the Wisconsin Well Badger Resource Center. Well Badger is a one-stop connection to community, social, health and government programs – a place to find what you need, when you need it (including services for children and youth with special health care needs.)

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How does the Southern Regional Center for Children and Youth with Special Health Care Needs (SRC CYSHCN) Support Families?–January 21, 2021

Resources mentioned in this conversation:
Southern Regional Center for Children and Youth with Special Health Care Needs (SRC CYSHCN): https://cyshcn.waisman.wisc.edu/ 1-800-532-3321 SRC CYSHCN Facebook: https://www.facebook.com/SouthernRegionalCenter

Tim Markle, Director of the Southern Regional Center for CYSHCN, talks with Information and Referral Specialists from the SRC. Find out who reaches out to the center and how we help support families and providers.

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Parent Support and Parent to Parent of WI–October 15, 2020

Resources mentioned during the conversation:
Parent to Parent of Wisconsin https://www.facebook.com/parent2parent.wi https://p2pwi.org/
Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/

Tim Markle, Director of the Southern Regional Center for CYSHCN talked with Robin Mathea, Director of Parent to Parent of Wisconsin. We chatted about how connecting with other parents helps and where Parent to Parent of Wisconsin fits in.

Mental Health

Mental Health Crisis Card –Thursday, May 13

Tim Markle, Director of the Southern Regional Center for CYSHCN will be joined by Nick Krisko. Nick is lived experience partner with the Office of Children’s Mental Health and was part of the team that designed the Crisis Card. Come learn how the card was brought into being and how it can be used to help students and adults safely navigate a mental health crisis.

Resources referenced in the video:

Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/
Conversations on Showing Up for Kids: https://cyshcn.waisman.wisc.edu/conversations-on-showing-up-for-kids/
Other Regional Centers: https://www.dhs.wisconsin.gov/cyshcn/regionalcenters.htm
Mental Health Crisis Card: https://children.wi.gov/Pages/CollectiveImpactTeams/YouthMentalHealthCrisisPlanCard.aspx
Office of Children’s Mental Health: https://children.wi.gov/Pages/Home.aspx
Office of Children’s Mental Health Collective Impact Teams: https://children.wi.gov/Pages/CollectiveImpactTeams/About.aspx
Office of Children’s Mental Health Access Team: https://children.wi.gov/Pages/CollectiveImpactTeams/Access.aspx
Survey about using the card: https://www.surveygizmo.com/s3/6176497/OCMH-Youth-Mental-Health-Crisis-Plan-Card

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Anxiety and Heading Back to School–August 27, 2020

Resources mentioned in this conversation:
DPI Mental Health Resources for families: https://dpi.wi.gov/families-students/mental-health-and-wellness
NASP COVID-19 helping children cope with COVID-19 Changes: https://www.nasponline.org/resources-and-publications/resources-and-podcasts/school-climate-safety-and-crisis/health-crisis-resources/helping-children-cope-with-changes-resulting-from-covid-19
National Center for School Crisis and Bereavement (scripts for teachers to talk to their students): https://www.schoolcrisiscenter.org/resources/covid-19-pandemic-resources/
Care for caregivers NASP: https://www.nasponline.org/resources-and-publications/resources-and-podcasts/school-climate-safety-and-crisis/mental-health-resources/care-for-caregivers-tips-for-families-and-educators
Focus on Mental Health and Wellness-DPI SSPW Team: https://dpi.wi.gov/sites/default/files/imce/sspw/pdf/Focus_on_Mental_Health_and_Wellness_During_School_Closure.pdf
Children’s Book from The National Child Traumatic Stress Network: https://www.nctsn.org/sites/default/files/resources/special-resource/trinka_and-sam_fighting_the_big_virus.pdf
CP Consulting: https://cpconsulting.us/
Worry monster: https://www.amazon.com/Haywire-Group-Worry-Eaters-Polli/dp/B00VZ36FG4/ref=sr_1_36?child=1&keywords=worry+monster&qid=1598886833&sr=8-36
Southern Regional Center for Children and Youth with Special Health Care Needs: cyshcn.waisman.wisc.edu

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Connie Persike, Speech Language Pathologist and Behavioral Consultant from CP Consulting, and Tim Peerenboom, School Psychology Consultant for WI DPI. Listen in as they talk about ideas on helping our kids (and ourselves) deal with the anxiety of returning to school.

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Anxiety: Ideas to help our kids be calm(er) and (more) focused–May 20, 2020

Tim Markle, Director of the Southern Regional Center for CYSHCN was joined by Connie Persike, Speech Language Pathologist and Behavioral Consultant from CP Consulting. Come learn some ideas on helping our kids (and ourselves) deal with our anxiety while staying safer at home.

Public (Formal) Supports/Health Benefits

Deciding  Together: A Key Part of the CLTS Waivers  Thursday, March 25, 12:00-12:45pm

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Tim Markle, Director of the Southern Regional Center for CYSHCN was joined by members of the Deciding Together team out of WI Department of Health Services (DHS). We talked about how families and Support and Service Coordinators can work together to support the child with special health care needs on the CLTS Waiver.

Resources mentioned in this video:

Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/

Conversations on Showing Up for Kids: https://cyshcn.waisman.wisc.edu/

WI DHS CLTS main page: https://www.dhs.wisconsin.gov/clts/index.htm Services at a Glance: https://www.dhs.wisconsin.gov/publications/p02570.pdf (English) https://www.dhs.wisconsin.gov/publications/p02570h.pdf (Hmong)

https://www.dhs.wisconsin.gov/publications/p02570s.pdf (Spanish)

Conversations on What is CLTS and Katie Beckett: https://youtu.be/LGHrpU-viDs

Children’s Long-Term Support Waiver Program for Families: https://www.dhs.wisconsin.gov/clts/waiver/family/index.htm

Deciding Together Guide available in English, Spanish and Hmong: https://www.dhs.wisconsin.gov/library/p-02246.htm

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What is EPSDT? If You Have Medicaid, You Need to Know! Thursday, February 11, 12:00-12:45pm

Resources mentioned in this video

Southern Regional Center for Children and Youth with Special Health Care Needs

HealthWatch Wisconsin’s Web Page

Resources for HealthCheck providers

Questions–contact ABC for Health at info@safetyweb.org or 608-261-6939.

Tim Markle, Director of the Southern Regional Center for CYSHCN, talks with Nick Tanner, from ABC for Health. EPSDT stands from Early and Periodic Screening, Diagnostic and Treatment and is a child health component of Medicaid. Learn what is covered in Wisconsin and how you can access this service.

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Conversations on Showing Up for Kids! What are the CLTS and the Katie Beckett programs? Nov. 5, 2020

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Resources mentioned in this recording:

Children’s Long-Term Support Waiver Program: https://www.dhs.wisconsin.gov/clts/index.htm
County Contact Information: https://www.dhs.wisconsin.gov/clts/contact.htm
Katie Beckett Program: https://www.dhs.wisconsin.gov/kbp/index.htm
Katie Beckett Contact Information: https://www.dhs.wisconsin.gov/kbp/consultants.htm
Southern Regional Center for Children and Youth with Special Health Care Needs (SRC CYSHCN): https://cyshcn.waisman.wisc.edu/
SRC CYSHCN Facebook: https://www.facebook.com/SouthernRegionalCenter/

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by representatives from Wisconsin’s Children’s Long-Term Support Waiver Program and Wisconsin’s Katie Beckett Program. Learn why these programs exist and who is eligible to take part in them.

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Accessing the Telecommunications Equipment Purchase Program–October 22, 2020

Resources mentioned in this conversation:
Telecommunications Equipment Purchase Program: https://psc.wi.gov/Pages/Programs/TEPP.aspx
Eligible Specialized Telecommunications Equipment For TEPP: https://psc.wi.gov/Documents/USF/TEPPequipment.pdf
Lifeline: https://psc.wi.gov/Pages/Programs/LifeLineLinkup.aspx
Well Badger Resource Center: https://www.wellbadger.org/
Southern Regional Center for Children and Youth with Special Health Care Needs (SRC CYSHCN): https://cyshcn.waisman.wisc.edu/
SRC CYSHCN Facebook: https://www.facebook.com/SouthernRegionalCenter/

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Holly O’Higgins and Billy Mauldin, Wisconsin’s Universal Service Fund, and Rebecca Wyland, Information and Referral Coordinator for Well Badger Resource Center. Listen in and learn about lowering your phone/internet bill through Lifeline, and getting connected to specialized and affordable telecommunications equipment through the Telecommunications Equipment Purchase Program (TEPP).

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Connecting to Affordable Telecommunications-Lifeline and TEPP–October 1, 2020

Resources mentioned in this conversation:
National Verifier: https://www.checklifeline.org/lifeline
Lifeline: https://psc.wi.gov/Pages/Programs/LifeLineLinkup.aspx
List of Carriers: https://psc.wi.gov/Documents/USF/lifelineContacts.pdf
Well Badger Resource Center: https://www.wellbadger.org/
Southern Regional Center for Children and Youth with Special Health Care Needs (SRC CYSHCN): https://cyshcn.waisman.wisc.edu/
SRC CYSHCN Facebook: https://www.facebook.com/SouthernRegionalCenter/

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Holly O’Higgins and Billy Mauldin, Wisconsin’s Universal Service Fund, and Rebecca Wyland, Information and Referral Coordinator for Well Badger Resource Center. Listen in to learn about lowering your phone/internet bill through Lifeline, and getting connected to specialized and affordable telecommunications equipment through the Telecommunications Equipment Purchase Program (TEPP).

Rural Wisconsin

Rural Wisconsin: The Good, the Bad and the Ugly–May 27, 2020

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Rose Cutting. Rose is a rural Wisconsin community member; mother of 3, wife of 1; founder of Aiming 4 Acceptance and The Learning Center. We had a wonderful conversation about the great things about being a rural family with a child with special needs and the not-so-great things about living in a rural setting.

School Nursing in Wisconsin

What is the Role of School Nurses?–Oct. 8, 2020

Resources mentioned in this conversation:
To learn more about a shared plan of care: https://www.chawisconsin.org/initiatives/medical-home/family-engagement/
Wisconsin DPI School Nursing and Health Services: https://dpi.wi.gov/sspw/pupil-services/school-nurse
Wisconsin Association of School Nurses: https://www.wischoolnurses.org/home
Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Louise Wilson who is the School Nursing and Health Consultant for the WI Department of Public Instruction. Listen in on a conversation about what school nurses do and how important it is for families of children with special needs to build a relationship with their school nurse.

Schooling Options (in collaboration with the Autism Society of South Central Wisconsin)

What is Homeschooling? Part 2 of a conversation about autism/special needs and special education

As families decide on which educational option is best for their child(ren), the Autism Society of South Central Wisconsin (ASC) and the Southern Regional Center (SRC) for Children and Youth with Special Health Care Needs hosted a 2 part series on options for families. Tim Markle, ASC Education Committee and Director of SRC, was joined by two parents who have experience home schooling their special needs children along with a professional from the Wisconsin Homeschooling Parent Association (WPHA) https://www.homeschooling-wpa.org/

We hope this video gives families who have children with autism or other special needs more information about choosing homeschooling as a mode of education. You can find some excellent information on what Wisconsin Law says about homeschooling at https://www.homeschooling-wpa.org/2016/07/13/wisconsin-homeschool-law/

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What is Virtual Schooling? Part 1 of a conversation about autism/special needs and special education–August 17, 2020

As families decide on which educational option is best for their child(ren), the Autism Society of South Central Wisconsin (ASC) and the Southern Regional Center (SRC) for Children and Youth with Special Health Care Needs decided to have a 2 part series on options. Tim Markle, ASC Education Committee and Director of SRC was joined by two parents and two professionals from special education programs with virtual schools. We hope this video gives families who have children with autism or other special needs more information about choosing virtual school as a mode of education.

Special Education in Wisconsin -- Most Recent Post

Writing a Quality Transition IEP for Students with Autism (Part 1) May 20, 2021

Tim Markle, Director of the Southern Regional Center for CYSHCN will be joined by Kate Szidon from the UW Waisman Center and the Center on Secondary Education for Students with Autism Spectrum Disorders (CSESA). We will be talking about the recommendations CSESA has to help families and IEP teams make a quality transition IEP for students with Autism Spectrum Disorder.

After you watch this video, please give us feedback: https://go.wisc.edu/n174x4​

Resources referenced in the video:

Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/
Conversations on Showing Up for Kids: https://cyshcn.waisman.wisc.edu/
Other Regional Centers: https://www.dhs.wisconsin.gov/cyshcn/regionalcenters.htm
Kate Szidon: szidon@wisc.edu
The Center on Secondary Education for Students with Autism Spectrum Disorders (CSESA): https://csesa.fpg.unc.edu/
CSESA Secondary School Success Checklist: https://csesa.fpg.unc.edu/resources/secondary-school-success-checklist
CSESA Hygiene: https://csesa.fpg.unc.edu/sites/csesa.fpg.unc.edu/files/Hygiene%20in%20Adolescents%20with%20ASD.pdf

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Post-Secondary Transition Plan (PTP): What, Why and How May 6, 2021

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Tim Markle, Director of the Southern Regional Center for CYSHCN is joined by Brian Kenney from the Wisconsin Transition Improvement Grant. We will be talking about what a PTP is, why do all students receiving special education services need on and how can families and youth be involved in designing one.

Resources referenced in the video: Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/
Conversations on Showing Up for Kids: https://cyshcn.waisman.wisc.edu/
Other Regional Centers: https://www.dhs.wisconsin.gov/cyshcn/regionalcenters.htm
Wisconsin Transition Improvement Grant: https://witig.org/
PTP Demo Site – Great for families to see what PTP looks like for their son or daughter: https://uasped.dpi.wi.gov/ptpdemo/Pages/DistrictMenu.aspx
WI Transition App – another great tool for youth and families: https://www.witransition.com/
Transition Assessments for Youth – Great Resource: https://www.livebinders.com/play/play?id=1596511
Middle School Transition Planning Guidance: https://witig.org/wp-content/uploads/2020/02/middle-school-ptp-guide-final-2_1580496834.pdf

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Special Education Transition Requirements During COVID-19 — March 11, 2021

After you watch this video, please give us feedback: https://go.wisc.edu/n174x4​

Resources mentioned in this video:

Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/
Conversations on Showing Up for Kids: https://cyshcn.waisman.wisc.edu/
Wisconsin Transition Improvement Grant:  https://witig.org/
DPI Memo on Transition Services during COVID-19: https://dpi.wi.gov/sites/default/files/imce/administrators/bi-weekly-mailing/2021-02-01_Transition_During_Covid_Memo.pdf
DPI Questions and Answers on COVID-19 Additional Services: https://dpi.wi.gov/sites/default/files/imce/sped/pdf/covid-additional-services-qa.pdf
Dispute Resolution Options: https://dpi.wi.gov/sped/dispute-resolution
WSPEI COVID-19 Additional Services Sheet: https://dpi.wi.gov/sites/default/files/imce/sped/pdf/covid-WSPEI-additional-services.pdf
Transition Padlet: https://padlet.com/bkenney3/ymemjwnt2r53
Department of Vocational Rehabilitation Transition: https://dwd.wisconsin.gov/dvr/job-seekers/transition/
WI Department of Health Service COVID-19 and Schools: https://www.dhs.wisconsin.gov/covid-19/schools.htm
Wisconsin Statewide Parent Educator Initiative: https://wspei.org/
WI DPI School Transition: https://dpi.wi.gov/sped/topics/transition

Tim Markle, Director of the Southern Regional Center for CYSHCN will be joined by Alicia Reinhard, Education Consultant on Transition and Graduation Special Education Team. Join us in discussing the 2021 WI DPI Memo on Special Education Requirements During COVID-19. We will talk about the highlights and what families need to know.

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WSPEI: Working with School Districts on Family Engagement — March 4, 2021

Resources mentioned in this video:

Southern Regional Center for Children and Youth with Special Health Care Needs: https://cyshcn.waisman.wisc.edu/
Conversations on Showing Up for Kids: https://cyshcn.waisman.wisc.edu/
Wisconsin Statewide Parent Educator Initiative: https://wspei.org/
WSPEI Family Engagement and Educators: https://wspei.org/educators/family-engagement.php
Powerful Partnerships: A Teacher’s Guide to Engaging Families by Dr. Karen Mapp — https://shop.scholastic.com/teachers-ecommerce/teacher/books/powerful-partnerships-a-teachers-guide-to-engaging-families-9780545842402.html
Dr. Steve Constantino: https://drsteveconstantino.com/family-engagement/
Wisconsin DPI Indicator 8: https://dpi.wi.gov/sped/about/state-performance-plan/indicators/8-parent-involvement
Parent Teacher Home Visits: http://www.pthvp.org/

Tim Markle, Director of the Southern Regional Center for CYSHCN and Caroline Rossing, Statewide Grant Coordinator from the Wisconsin Statewide Parent Educator Initiative (WSPEI) talk about how WSPEI is supporting school districts as the districts try to improve family engagement. Come hear how WSPEI is supporting schools and what they have learned. WSPEI is all about partnerships. It helps families and school districts build positive working relationships that lead to shared decision making and children’s learning.

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How does the Wisconsin Statewide Parent-Educator Initiative (WSPEI) support parents?–Sept. 19, 2020

Resources mentioned in this conversation:
Wisconsin Statewide Parent Educator Initiative (WSPEI): https://wspei.org/
Cooperative Educational Service Agency (CESA): https://dpi.wi.gov/cesa#
Family Engagement at DPI: https://dpi.wi.gov/sped/families
Wisconsin Special Education Mediation System (WSEMS): https://dpi.wi.gov/sped/dispute-resolution/wsems
Southern Regional Center for Children and Youth with Special Health Care Needs (SRC CYSHCN): https://cyshcn.waisman.wisc.edu/
SRC CYSHCN Facebook: https://www.facebook.com/SouthernRegionalCenter/

Tim Markle, Director of the Southern Regional Center for CYSHCN and Caroline Rossing, Statewide Grant Coordinator from the Wisconsin Stateside Parent Educator Initiative (WSPEI) got together to talk about WSPEI and how it can support parents. WSPEI is all about partnerships. It helps families and school districts build positive working relationships that lead to shared decision making and children’s learning.

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What can I do if I disagree with my school IEP team?–September 3, 2020

Resources mentioned in this conversation:
WI FACETS: https://wifacets.org/ Trainings, modules, resources on special education
WI FACETS Helpline: 1-877-374-0511
WSEMS (Wisconsin Special Education Mediation Services): https://www.wsems.us/ Phone: (888)-298-3857
Southern Regional Center for CYSHCN: https://cyshcn.waisman.wisc.edu/
SRC Information and Referral: 1-800-532-3321

Tim Markle, Director of the Southern Regional Center for CYSHCN, was joined by Matthew Zellmer, the Parent Services Coordinator for WI FACETS and Gia Pionek , System Administrator and Intake Coordinator, Wisconsin Special Education Mediation System. We had a great discussion about how to work through disagreements and what are the mediation options available to families and schools.

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Special Education and IEPs with WI FACETS–June 3, 2020

Tim Markle, Director of the Southern Regional Center for CYSHCN, will be talking with Matthew Zellmer, the Parent Services Coordinator for WI FACETS. WI FACETS is short for Wisconsin Family Assistance Center for Education, Training and Support. Listen in and learn about Special Education in Wisconsin and where families can find support in understanding IEPs (Individualized Education Program). To contact WI FACETS–https://wifacets.org/ 877-374-0511 To contact the Southern Regional Center for CYSHCN https://cyshcn.waisman.wisc.edu/ 800-532-3321

Summer 2020 Ideas

Ideas for Summer 2020 from Bay Cliff Therapy Camp–June 17, 2020

Tim Markle, Director of the Southern Regional Center, was joined by Clare Lutgen, Executive Director of Bay Cliff Health Camp. Bay Cliff Health Camp is a non-profit organization that provides residential summer therapy programs that promote health, welfare, happiness and independence of children and adults living with physical disabilities. Come learn how Bay Cliff Health Camp is transforming into Bay Cliff Virtual Camp, how families can get involved, and other ways to sustain gains in the summer of 2020. To contact Bay Cliff: www.baycliff.org To contact the Southern Regional Center: www.cyshcn.waisman.wisc.edu 1-800-532-3321

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Camp Cancelled? Ideas for Summer 2020 from Easter Seals Wisconsin: June 10, 2020

Tim Markle, Director of the Southern Regional Center, will be talking with staff from Easter Seals Wisconsin Camp Wawbeek and Respite Camp about free activities, stories, zoom activities and other programs to do at home since camp is cancelled throughout the summer. The camp provides recreational activities for children and adults with disabilities for 10 weeks in the summer and 24 weekends throughout the school year. Camp has been in operation for 81 years, and is the oldest continually operating Easterseals Camp in the nation. We will also be sharing where to find their resources online. Tim was joined by Carissa Peterson, CTRS (VP, Camp and Respite Services), Anna Korb, CTRS (AmeriCorps Program Manager), Jamie Lloyd (Director, Respite Camp) and Alex Peters (Director, Camp Wawbeek).

Southern Regional Center: https://cyshcn.waisman.wisc.edu/

Easter Seals Wisconsin: https://www.eastersealswisconsin.com/

mother with child

Do you have a topic you would like for us to talk about in 2021? Maybe you want to know more about transitioning to adulthood or what is a medical home and how can families partner with doctors? Maybe we should talk about public programs or partners or play? Should we bring on some researchers? We want to know! (Please do not include personal information or health information.)

Email your ideas to cyshcn@waisman.wisc.edu