The Southern Regional Center for Children and Youth with Special Health Care Needs tries to help families, and the professionals who support them, through providing current resources, news articles, interesting items and more. We post “What’s New” on our home page each week. We regularly post this content and more on our Facebook page. We send out a weekly Resource Round-up on Fridays (send an email with Weekly Resource Round-up in the Subject Line to cyshcn@waisman.wisc.edu to join).We bring together the “What’s New” resources by topic and place them on the Resources page. We hope you can find some help, encouragement, or just information on this page. New content is added regularly.
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Children and Youth with Special Health Care Needs/Maternal and Child Health
- Respite Care Association of Wisconsin has a Caregiver Respite Grant Program and a Supplemental Respite Grant Progam
- WI BPDD March Newsletter — Boletín de Marzo en Español
- The Respite Care Association of Wisconsin (RCAW) is looking to fund direct respite care hours for underserved populations
- Madison Public Library has developed a new resource for kids: Neurodiversity Accommodation Kits. The kits are geared toward kids and can be used in newly updated play spaces — ask library staff at the reference desk to pick on up! If you find and use a kit, let us know how it was and send us a picture at cyshcn@waisman.wisc.edu.
- Wisconsin Board for People with Developmental Disabilities (BPDD) January Boletín de Enero en Español
- Respite Care Association of Wisconsin January Newsletter
- Wisconsin Fall AAC Newsletter
- WI Board for People with Developmental Disabilities (WI BPDD) December Newsletter
- November Family Engagement Newsletter from WI FACETS
- November Wisconsin Family Ties Newsletter
- Wisconsin Board for People with Developmental Disabilities October Newsletter Boletín de Octubre en Español
- Epilepsy Foundation of Wisconsin offers Seizure First Aid trainings and the Seizure Action Plans for schools. Contact Alicia Gajewsky at agajewsky@epilepsywisconsin.org
- October is Down Syndrome Awareness Month Check out some ideas from Gigi’s Playhouse in Madison
- Why a Diagnosis Is (and Isn’t) Important from Learn with Dr. Emily
- All in for Kids: CLTS newsletter in English, Hmong, Spanish
- What Drives Motivation for Neurodivergent Youth? How interests build skills — from Dr. Emily
- September is Sickle Cell Awareness Month
- 3 Ways to Close Gaps in Sickle Cell Disease Care: Recommendations from NICHQ Projects from NICHQ
- All in for Kids: CLTS newsletter is now available online in English, Hmong, and Spanish
- Taking Care of Yourself: It’s More than “Self-Care” Summer Newsletter from Wisconsin Family Voices
- New issue of All in for Kids: CLTS newsletter in English, Hmong, and Spanish:
- Respite Care of Wisconsin September Newsletter
- Wisconsin Augmentative and Alternate Communication (AAC) Summer Newsletter
- WI Board for People with Development Disabilities (BPDD) August Newsletter
Boletín de Agosto en Español - ABC for Health/HealthWatch Wisconsin’s Pulse Newsletter
- KGH Autism Services Blogs (only provided for reference and information, not an endorsement)
- Tri-County (Walworth, Waukesha, Racine) Autism Resource & Support Group Monthly Activities
- July 2022 Family Engagement Newsletter from WI FACETS
- Caregiver Self-Care Guide: 10 Ways Parents of a Child With Autism Can Make Space for Themselves by Terri Huggins Hart in Elemy
- John Tracy Center currently offers parent distance education opportunities worldwide tailored to the stages of development of young children who are deaf or hard of hearing
- ECHO Autism Communities June Newsletter — including celebrating Juneteenth and a spotlight on family advocates
- New Issue Children’s Long-Term Support (CLTS) All in for Kids Newsletter in English, Hmong and Spanish
- Summer Safety for People with Seizures from Epilepsy Foundation
- IEP Mini-Modules from WI FACETS
- HealthWatch Wisconsin‘s Pulse Updates–June 2022
- Summer Safety for People with Seizures from Epilepsy Foundation
- IEP Mini-Modules from WI FACETS
- HealthWatch Wisconsin‘s Pulse Updates
- Family Voices of Wisconsin Spring Newsletter
- Respite Care Association of Wisconsin June Newsletter
- Health Watch Wisconsin Pulse Updates
- Respite Care Wisconsin Connections May Newsletter
- Early Signs of Autism Video Tutorial from Kennedy Krieger Institute
- Caring Conversations — when is it time talk hospice or palliative care? From Pediatric Palliative Care Coalition
- April Family Engagement Newsletter from WI FACETS
- Learn to be a Respite Care Provider with Free Respite Care Certificate Training from Respite Care Association of Wisconsin
- While You Wait recorded webinars and Zoom drop in sessions to help caregivers while you wait for behavioral therapy from Children’s Therapy Network
- All in for Kids newsletter: CLTS is now available online in English, Hmong, and Spanish.
- A National Health Systems Research Agenda for Children and Youth with Special Health Care Needs an Academic Pediatrics Supplement
- March Family Engagement Newsletter from WI FACETS
- Special Teleconference on CLTS Program Changes Recording Slides from WI DHS
- Fetal Alcohol Spectrum Disorder in Wisconsin — ORCHIDS offers support groups for Self-Advocates with FASD and support groups for Caregivers of Adult Older Teens email FASDSS@orchidsfasdservices.org for information
- Raising Deaf Kids What is Temper a Tantrum and Why Your Child Has Tantrums from Parents Reaching Out
- February 2022 Family Engagement Newsletter from WI FACETS
- The Madison Area Down Syndrome Society is now DSAW-South Central, a chapter of the Down Syndrome Association of Wisconsin!
- Webinar: CARE_PATH for Kids: A Family-Centered Approach to Shared Plans of Care for Children with Special Health Care Needs – Child and Adolescent Health Measurement Initiative (CAHMI)
- WI Children’s Long-Term Support (CLTS) All in for Kids Newsletter in English, Hmong and Spanish
- Wisconsin Board for People with Developmental Disabilities January Newsletter
- January WI Family Engagement Newsletter
- Wisconsin Respite Care Connections (December) from Respite Care Wisconsin
- December Wisconsin Family Engagement Newsletter from WI FACETS
- El CDC Publicó Nuevos Números de la Prevalencia de Autismo from the Waisman Center
- December Wisconsin Family Engagement Newsletter from WI FACETS
- Hidden Costs, Real Expenses: Costs of Caregiving video from WI BPDD
- Wisconsin Respite Care Connections (December) from Respite Care Wisconsin
- 2021 Community Report on Autism — CDC estimates that about 1 in 44 8-year-old children have been identified with ASD (or 23.0 per 1,000 8-year-olds) — from the Autism and Developmental Disabilities Monitoring (ADDM) Network
- Governor Evers signed the Guardian Training bill (SB 92/AB 100) into law
- Two Jobs, No Breaks: Employed and Caregiving Video from WI Board for People with Developmental Disabilities
- Tips: Getting Wheelchairs for Children and Youth from Oregon Family to Family Information Network
- Sillas de ruedas para niños y jóvenes from Oregon Family to Family Information Network
- November Family Engagement Newsletter from WI FACETS
- Respite Care Association of Wisconsin November Newsletter
- Strategies for ABLE Accounts: What, How & Who Podcast by Joel Dettwiler with Quantum Planners
- The Art of Storytelling (recorded webinar from AUCD) This webinar will demystify the notion that it is difficult for an individual to share their story in an impactful way, provide examples of how advocates can develop a storytelling project of their own, and provide techniques on how advocates can support individuals with disabilities on sharing their experiences.
- Respite Care Association of Wisconsin (RCAW) October Newsletter
- School and Community Based Therapy Services Fact Sheet from Family Voices of Wisconsin
- Fall Newsletter “Everything You Need to Know about Therapies” from Family Voices of Wisconsin
- October Family Engagement Newsletter from WI FACETS
- Caregiving Tips for Families of People With Disabilities from the CDC
- Caregiver stress: Tips for taking care of yourself from Mayo Clinic
- “Child Life: Strategies For Supporting Students with Diabetes” Development and Psychosocial Stressors recorded DiSH program
- Stress and Epilepsy from Epilepsy.com
- WI Family Engagement Newsletter September from WI FACETS
- Respite Care Wisconsin September Newsletter
- Would you like weekly information and connections around epilepsy? Check out Epilepsy Wisconsin and sign up for Wisconsin Epilepsy Currents
- Cost of Caregiving on Parents of Children With Medical Complexity and Life-Limiting Conditions from Pediatrics
- Autism Risk Significantly Higher For Kids Born Premature, Study Finds from Disability Scoop
- New Incontinence Supplies Info Sheet from DHS in English, Spanish and Hmong ForwardHealth contracts with J&B Medical to provide incontinence and urological supplies for Wisconsin Medicaid. Incontinence supplies are normally only for members who are at least 4 years old. Covered supplies include barrier creams, catheters, diapers, liners, and more.
- August 2021 Family Engagement Newsletter from WI FACETS
- Innovative UW Undiagnosed Genetic Disease Clinic Seeks to Identify Rare Genetic Conditions from UW-Madison School of Medicine and Public Health
- Next Level Disability Inclusion Ministry from Key Ministry
- All in for Kids: Children’s Long-Term Support (CLTS) Program Sept updates English, Spanish, Hmong
- Dealing with my Harshest Critic from Key Ministry
- Thoughts from a Sibling from Key Ministry
- The Importance of Expectations for Your Child with Special Needs from Key Ministry
- My Seizure Action Plan from Epilepsy Foundation includes forms in multiple languagesSummer Newsletter from Family Voices of Wisconsin
- Tips for Observing and Recording Seizures from Epilepsy Foundation
- Adapting Plans for Traveling with Seizures from Epilepsy Foundation
- Wisconsin Respite Care Connections — July
- Parenting on Your Path by Dr. Emily King — Back to School
- Respite Care Association of Wisconsin August Connections
- Family Voices Resource eBlast — July
- July Family Engagement Newsletter from WI FACETS
- Learning Every day, Everywhere Infographics from Wisconsin DPI
- June Family Engagement Newsletter from WI FACETS:
- June Respite Care of Wisconsin Connections:
- OCALIONLINE Autism and Disabilities Conference November 16-18–Special Price of $150 before June 15th. Families/Students can attend for $50.00.
- Community of Practice on ASD/DD Tele? What have we learned from pivoting to tele-services for those with Autism Spectrum Disorder and other Developmental Disabilities?
- Session 1: What have we learned about education? Recording and resources
- Session 2: What have we learned about therapy? Recording and resources
- Session 3: What have we learned about building capacity? Recording and resources
- Session 4: What have we learned about diagnosing autism? Recording and resources
- May Family Engagement Newsletter from WI FACETS
- Summer Newsletter from Family Voices of Wisconsin
- Maltreatment of Children With Disabilities Clinical Report from Pediatrics
- Autism and Complementary Health Approaches from the National Institutes of Health National Center for Complementary and Integrative Health
- American Society for Deaf Children April newsletter
- When someone with special needs goes missing: How first responders command the emergency from The Standard Times
- Exploring the Controversy Around ABA Therapy from Autism Parenting Magazine
- Finding Your Way: A Navigation Guide for Wisconsin Families who have Children and Youth with Special Health Care Needs and Disabilities is online, available for download and you can buy printed copies.
- Making Fathers Visible in Maternal and Child Health from National Institute for Children’s Health Quality
- Empowering children with ASD and creating a space for neurodiversity from Rogers Behavioral Health
- Improving Care Coordination for Children with Medical Complexity: Exploring Medicaid Health Home State Options from Boston University School of Social Work
- School and Therapy for My Child With Autism Are Not ‘Respite’ from The Mighty
- Family Voices April Resource eBlast — All about Tele-What? Who? And How?
- How To Measure Student Success In a Post-COVID World Parenting on Your Own Path by Dr. Emily King
- Family Engagement Newsletter April 2021
- The Importance of Presuming Competence by Shelley Moore
- Type 2 Diabetes in Adolescents DiSH Session 11 from UW Department of Pediatrics
- Parents Are DIYing Clothes For Their Kids Until Adaptive Brands Catch Up from romper.com
- Self-care and compassion tips for parents of children with ASD from Rogers Behavioral Health
- Visit the Updated Family Webpage for the Birth to 3 Program
The Wisconsin Department of Health Services (DHS) is committed to keeping families informed about the Birth to 3 Program. The Birth to 3 Program family webpage has been updated to provide you with the information you need to know to fully understand and access the program. - Visit the Updated Family Webpage for the Children’s Long-Term Support Waiver Program
The Wisconsin Department of Health Services (DHS) is committed to keeping families informed about the Children’s Long-Term Support (CLTS) Waiver Program. The CLTS family webpage has been updated to provide you with the information you need to know to fully understand and access the program. - Why a Diagnosis Is (and isn’t) So Important from Parenting On Your Own Path with Dr. Emily King
- The March WI Family Engagement Newsletter is here!
- February Resource eBlast from Family Voices
- All in for Kids WI Children’s Long-term Support February Newsletter — available in English, Spanish and Hmong
- 5 More Minutes with Shelley Moore — Cool, fun videos focused on Real Inclusion
- February Family Engagement Newsletter from WI FACETS
- Mindfulness in the New Year Family Voices January Resource eBlast
- Yes, screen time is up (but parental guilt doesn’t need to be) from Motherly
- Fantastic free resource about who might be doing what on your child’s team. Includes a worksheet to make it yours! from Parenting on Your Own Path by Dr. Emily King
- The January issue of the All in for Kids: Children’s Long-Term Support (CLTS) newsletter is now available online in English, Spanish, and Hmong. The January issue provides important CLTS Waiver Program updates, including:
- Deciding Together
- CLTS Waiver Program seeks new service providers
- CLTS Waiver Program supports families during online schooling
- Free respite care certification training available
- Helpful Resources for families
- Updated CLTS Waiver Manual Memo on updates Attachment about the changes
- DHS Memo on Implementation of CLTS Waiver Program State Level Budget and Enrollment Information
- Newborn Screening May Contain Autism Clues from Disability Scoop
- Welcome to the Single & Different Size Shoes Program — You can now buy a single shoe or build a pair using different sizes from some of your favorite brands! from Zappos.com
- Family Voices Winter Newsletter is celebrating Family Voices of Wisconsin’s 25 Years!
- December Family Engagement Newsletter
- National Care Coordination Standards for Children and Youth with Special Health Care Needs from National Academy for State Health Policy
- Science X Design: Three Principles to Improve Outcomes for Children from the Center on the Developing Child Harvard University
- EP Magazine’s November issue is about Financial Planning for Special Needs Families
- Complex Child November issue includes articles on caregiving, school, parenting and a lot more!
- New! Family Voices Telehealth Checklist & Worksheet–Prepare and reflect to get the most out of your visit from Family Voices
- Medicaid Telehealth Policies States Can Make Permanent to Ensure Access for Children/Families by Manatt on Health: Medicaid Edition
- November WI Family Engagement Newsletter
- Parenting On Your Own Path blog from Dr. Emily Kings
- Virtual Calming Room — Every district should have one! This one is from Oconto Falls Public School District
- A Mother In Wonderland: Securing Services For My Blind Child from Health Affairs–an excellent first person explaining how she navigated complex education policy to secure services and supports for her blind child.
- 2020 Symposia on Early Access to Autism Treatment recordings from the Wisconsin State Legislature
- October Family Engagement Newsletter from WI FACETS
- Family Voices of Wisconsin Fall Newsletter
- September Update from Well Badger Resource Center
- All in for Kids The September issue provides important Children’s Long-Term Support (CLTS) Waiver Program updates, including: Information about the new online provider directory; An opportunity to give input on the CLTS Waiver Program; and The new Feelings Thermometer. Available in Hmong, Spanish and English.
- Parents and Professionals in Wisconsin talk about Virtual Schooling and Home Schooling (recording) with the Autism Society of South Central Wisconsin
- AUGUST 2020:THE ANNUAL HEALTHCARE ISSUE from Exceptional Parenting
- Down Syndrome Clinic to You (DSC2U) brings the best of health and wellness information about Down syndrome to caregivers and primary care physicians around the globe
- For Those Born With Rare Diseases, Early Diagnosis Can Save Lives from National Institute for Children’s Health Quality (NICHQ)
- Making Fathers Visible in Maternal and Child Health from National Institute for Children’s Health Quality (NICHQ)
- Innovative Strategies for Promoting Developmental Health in Rural Alaska from National Institute for Children’s Health Quality (NICHQ)
- Considering a Complementary Health Approach? information from the National Institutes of Health
- Families of Children with Special Needs are Suing in Several States. Here’s Why. from NPR
- We’re Missing Kids with ASD: Strategies to Improve Screenings from Medscape
Schools and Special Education
- WI FACETS May Family Engagment Newsletter
- WI FACETS April Family Engagement Newsletter
- WI FACETS March Family Engagement Newsletter
- ReSet Reader February 2023 Version en espanol
- Better Listening in Group Settings from Supporting Success for Children with Hearing Loss
- ReSET (Restarting Safe Education & Training) for Children with Medical Complexity January Reader (Version an espnaol)
- Family Engagement January 2023 from WI FACETS
- Families of Children with Complex Health Conditions Continue to Wrestle with Challenges of Respiratory Infections from ReSET4Kids
- Family Engagement Newsletter from WI FACETS (December 2022)
- Five Ways to Help Students Feel Connected at School Again from Greater Good magazine
- Communication Supports for Students with Significant Cognitive Disabilities: What Parents Need to Know (TIES Center Brief #9) from TIES Center
- Family Engagement Newsletter from WI FACETS
- Why a Trusting Parent-Teacher Partnership is the Key to Student Success…and how to build one from Learn with Dr. Emily
- Behavior Basics Resources for Back to School from ECHO Autism Communities
- Schools, Early Care and Education Programs, and Other Settings Serving Children or Adolescents Q&A about monkeypox
- 11 Back-to-School Tips for Parents of Disabled Children from VeryWellFamily.com
- ReSET (Restarting Safe Education and Testing) for Children with Medical Complexity Updates (also in Español)
- Communicating with Your School Aug 31 Recording Join a panel of parents a we discuss ways to improve communicating with your school. Part of Conversations on Showing Up for Kids!
- Back to School with a Panel of Parents Recording Join a panel of parents as we discuss ways to prepare for a new school year in the midst of an ongoing pandemic. Part of Conversations on Showing Up for Kids!
Resources for Teens/Preparing for Transition to Adulthood
- Dane County Aging and Disability Resource Center Spring Newsletter
- What You Need to Know about Monkeypox if You are a Teen or Young Adult
- How To Access Compensatory Services For Students With Disabilities from Disability Scoop
- The system is in ruins’: Minnesotans with disabilities feel left behind amid workforce shortage from StarTribune
- Inspiring Possibilities (PACER Transition Updates)
- ‘I didn’t choose autism. Autism chose me’: Allentown mom’s new book in Spanish highlights challenges faced by Latino parents from The Morning Call
- The Think Inclusive Podcast (presented by MCIE) exists to build bridges between families, educators, and disability rights advocates to create a shared understanding of inclusive education and what inclusion looks like in the real world.
- Health Care Transition Skill Building in the Schools: Tools for Students, Families and IEP Teams from PEATC Virginia and Got Transition
- How technology can help people with disabilities become more independent from the Tennessee Lookout
- The Path Ahead TMG Winter Newsletter
- Transition Programming Beyond Age 18 from Transition Improvement Grant (TIG) and WI DPI
- Health Care Transition on the Wisconsin Transition Improvement Grant Podcast
- Disability Work Benefits: Navigating Work and Support — Recording, Resource Sheet and Slides Part of Transition Talks Tuesday with the School District of Janesville (but you are invited!)
- Hunter and Tim Talk Transition part of Conversations on Showing Up for Kids!
- Health Care Changes Too! Bridging the Gap part of Transition Talks Tuesdays School District of Janesville
- Transition Programming Beyond Age 18 from Transition Improvement Grant (TIG) and WI DPI
- Improving Health Care Transitions for Children and Youth With Special Health Care Needs from Lucile Packard Foundation for Children’s Health
- Healthcare Access and Utilization for Young Adults With Disability: U.S., 2014–2018 from Journal of Adolescent Health
- Diabetes? Heading to College? Check out the College Diabetes Network.
- Writing a Quality Transition IEP for Students with Autism (Part 1) part of Conversations on Showing Up for Kids!
- Writing a Quality Transition IEP for Students with Autism (Part 2) part of Conversations on Showing Up for Kids!
- Getting Help as an Adult: Aging and Disability Resource Center (ADRC) part of Transition Talks Tuesday (School District of Janesville)
- Special Needs Financial Planning part of Harnessing Abilities: Rounding up Resources in partnership with Aiming 4 Acceptance and CESA #3
- Teen Transition: A Parent’s Important and Changing Role from Seattle’s Children’s
- The Changing Role of Parents during and after Transition to Adulthood (video) from the PACER Center.
- When do Families Need to Start Thinking Transition? recording from Conversations on Showing Up for Kids!
- Supportive Decision Making & Decisions About Guardianship recording from Harnessing Abilities: Rounding Up Resources
- Ready to Work: Finding and Keeping Employment recording from Transition Talks Tuesdays
- What’s After High School? recording from Transition Talks Tuesdays
- National Healthcare Transition Resource Center for Youth with Intellectual and Developmental Disabilities Funded to Bring Needed Transition Services to Youth and Young Adults from Family Voices
- What is Health Care Transition? HCT 101 an animated video from Got Transition in close collaboration with Wisconsin’s PATCH program.
- ACT Streamlines Testing Accommodations Process for Youth with IEPs and 504 Plans from PACER Center
- Inclusive Postsecondary Education for Students with Intellectual Disabilities from PACER Center
- The Path Ahead newsletter from TMG
- Living With Roommates – Who Should I Tell and What Should I Tell Them? from Epilepsy.com
- Preparing for Postsecondary Education: What Families Need to Know from PACER Center
- College or Training Programs: How to Decide Tips for Youth from PACER Center
- Preparing for Postsecondary Education: What Families Need to Know from PACER (video)
- Tips for IEP Teams to Help Students and Families Prepare for Inclusive Postsecondary Education for Students with Intellectual Disabilities from PACER for Think College
- Disability Employment Toolkit explores common concerns and provides resources for people with disabilities as they strive to obtain or maintain employment and the financial stability and freedom it provides.
- New Standards Finalized For Postsecondary Programs from Disability Scoop
- Transition from Pediatric to Adult Care for Transgender Youth: A Qualitative Study of Patient, Parent, and Provider Perspectives from LGBT Health
- Journal of School Nursing article explores how two DC school-based health centers customized the Six Core Elements and incorporated a welcome and care policy, readiness assessment, and tip sheet on finding an adult doctor as part of routine primary and preventive care.
- 2021 Health Transition Coding Tip Sheet from Got Transition?
- Writing a Quality Transition IEP for Students with Autism (Part 1) Recording Part of Conversations on Showing Up for Kids!
- Finding Your Meaningful Day Recording part of 5 County Transition Talks
- Disability Law Across the Lifespan Recording Resources part of 5 County Transition Talks
- The Path Ahead newsletter from TMG features tips from LOV Inc.’s Stefanie Primm about how to find your community. Also, hear from self-advocates enrolled in the TMG ICA about what living through the pandemic has been like for them. Finally, discover resources for riding out the pandemic; and more!
- Tips when Considering Housing and Services — PACER resource
- Getting Started (on deciding where I want to live) — PACER resource
- The Power of High Expectations from the PACER Center
- Telling Your Personal Story from the PACER Center
- PACERs Top Ten Tips That May Help Your Child’s Transition to Adulthood PACERs National Parent Center on Transition and Employment
- Virtual interview training for autistic transition age youth: A randomized controlled feasibility and effectiveness trial Sage Journals
- Special Education Transition Requirements During COVID-19 from DPI
- #WhatsYourPurose2021 Youth Transition Campaign
- The Path Ahead Newsletter from TMG
- You’re the boss! How to hire and manage your workers
- In their own words: what being an employer means to me
- Resources for finding caregivers
- Partnering to Transform Health Outcomes for People with Persons with Intellectual Disabilities and Developmental Disabilities (PATH-WIDD) is a new effort to introduce interprofessional health education curriculum for pre- and post-licensure health care students
- New Housing Concepts Emerge For Adults With Developmental Disabilities from Disability Scoop
- Health Transition Planning and the Individualized Education Program (IEP) from Pacer’s National Center on Transition and Employment
- Transition to Adult Health Care Provider from Pacer’s National Center on Transition and Employment
- Health and Wellness Apps for Transition-Age Youth from PACER’s Simon Technology Center lists links to free and low-cost health and wellness apps for transition-age youth. It includes apps to help manage prescriptions, take medications on time, track health conditions, promote fitness and nutrition, learn to relax, take charge of anxiety, build healthy habits, and more.
- A New Way of Thinking is designed to help students build self-confidence. Check out the online, module format from the Wisconsin Transition Improvement Grant
- NEW Family Toolkit: Pediatric-to-Adult Health Care Transition from Got Transition
- Sickle Cell Disease (SCD) and Transitioning to Adulthood from National Institute for Children’s Health Quality
- Finding His Voice from JAMA network (Excellent article on advocacy and transition)
- REVISED August 2020: A Transition Guide to Postsecondary Education and Employment for Students and Youth with Disabilities from the Office of Special Education and Rehabilitative Services (OSERS)
- Family Voices has resources for every stage of your child’s life. This includes your teen’s move from children’s services to adult long-term support programs like IRIS. Our new fact sheet, Working with an IRIS Consultant, is a guide on what to expect from your IRIS Consultant (IC) and how to partner with your IC to decide the best way to use your IRIS budget to get goods and services you need. You can find our new IRIS fact sheet at familyvoiceswi.org/resource-library/working-with-an-iris-consultant
- Inspiring Possibilities Newsletter including articles on Virtual IEP Meetings, Distance Learning and Challenging Behaviors and Keeping Students Motivated from Home from PACER’s National Parent Center on Transition and Employment
- Addressing the Mental Health of “Quaranteens“ from Family Voices
- 6 Tips for Teens from WI Office of Children’s Mental Health (4.29.20 newsletter)
- Supporting Teenagers and Young Adults from Child Mind Institute
- National Parent Center on Transition and Employment
Equity and Diversity
- Supporting Healthy Black Families Workgroups begin in March with Urban Triage
- Supporting Healthy Black Agriculture begins in the Spring with Urban Triage
- Black, Disabled, Deaf and Proud (recorded) webinar from National Research Center for Parents with Disabilities
- How to Talk to Kids Under 5 About Racial Equity from Council for Professional Recognition
- The Impact of Loss: Recognizing the Uniqueness of Black Grief Inservice (Recording) from NICHQ
- Exploring Race and Culture from a Trauma-Informed Lens webinars Session One: White Privilege Session Two: Implicit Bias from Office of Children’s Mental Health
- Celebrating Black History with the National Institute for Children’s Health Quality (NICHQ)
- Health of Black, Native moms key in fight to improve infant death disparities, experts say from USA TODAY
- Family Caregiver’s Third Job: Navigating the Maze of Systems from WI Board for People with Developmental Disabilities (BPDD)
- Family Voices United to End Racism Against CYSHCN and their Families (FamU) has launched a toolkit website designed to support the important work of dismantling racism in health care.
- Adrienne Hibbert: Equity is the Answer; Let’s Talk About Bias in Healthcare, Parenting and Financial Access from Florida Family Leader Summit 2021
- Addressing Historic Trauma to Improve Breastfeeding and Safe Sleep Among Indigenous Families from NICHQ
- A Physician’s Reflections on Racism and Treating Sickle Cell Disease from NICHQ
- Speaking Up Against Discrimination And Racism In The Workplace from Forbes.com
- Eczema in Skin of Color from Allergy and Asthma Network
- Improving Care for People Living with Sickle Cell Disease from NICHQ
- Despite Reductions Since 2011-12, Black Students and Students with Disabilities Remain More Likely to Experience Suspension from Child Trends
- Racial Equity Tools offer tools, research, tips, curricula, and ideas for people who want to increase their own understanding and to help those working for racial justice at every level – in systems, organizations, communities, and the culture at large.
- Going Alone: How COVID-19 and Racism Are Exposing Gaps in AAPI Mental Health Care from Psychiatric Times
- Start with Equity: 14 Priorities to Dismantle Systemic Racism in Early Care and Education from Center for Child and Family Success
- What did we learn about health equity from COVID-19? Check out these infographics on Blacks, Native Americans, and Hispanic Americans and Health Equity (from SPAN)
This infographic specifically addresses Hispanic Americans:
- Infographic in English: https://nihcm.org/publications/hispanic-americans-health-equity
- Infographic in Spanish: https://nihcm.org/publications/hispanoamericanos-e-igualdad-sanitaria
- Reflections: The Category of Us from Complex Care Journal (reflections of the intersection of race and disability from an amazing family leader in Minnesota)
- Physicians’ Perceptions Of People With Disability And Their Health Care from HealthAffairs
- Understanding and Ameliorating Medical Mistrust Among Black Americans from The Commonwealth Fund
- I’m a Capable Mother, It Hurts to Have to Prove It from Center for Parents with Disabilities
- 5 Ways Trauma And Poverty Affect Childhood Development from Forbes.com
- Cómo los padres pueden encontrar información confiable sobre salud mental y discapacidades del desarrollo from MHDD
- Equity, Diversity, and Inclusion and the Multicultural Populations it Affects fact sheet from Mental Health and Developmental Disabilities National Training Center (MHDD)
- For Black Kids, Autism Caught Late in the Game from US News and World Report (via Michael John Carley)
- Equity Resources from Wisconsin Alliance for Infant Mental Health
- Teach, Learn, & Connect (TLC) for Kids Resource library includes popular, on-demand training and shareable fact sheets to help low income individuals and families – especially those with children and youth with special healthcare needs in the home – secure telecommunications services. From ABC for Health.
- For Mothers of Black Children with Disabilities, Living with Twice the Fear from Forbes
- Talking with Young Kids about Racism, Police Brutality, and Protests FVJuneeBlast2020 from Family Voices (.pdf)
- COVID-19 Diversity, Equity and Inclusion Resources
Mental Health Resources
- Office of Children’s Mental Health (OCMH) January 2023 Newsletter
- Wisconsin Office of Children’s Mental Health (OCMH) December 2022 Newsletter
- Advocacy Reference Guide from Brazelton Touchpoints Center
- Getting Started Guide for New Caregivers from Mental Health America
- How to support a loved one in recovery from Rogers Behavioral Health
- WI Office of Children’s Mental Health (OCMH) August Newsletter
- Handling a Mental Health Crisis from OCMH (English, Spanish, Hmong)
- Dispelling 5 PTSD Myths from Rogers Behavioral Health
- Trauma and PTSD Facts from Rogers Behavioral Health
- WI Office of Children’s Mental Health June 2022 Newsletter (Prevent Lead Poisoning Fact Sheet, Lived Experience and Lead, Policy Updates, Articles, Lived Experience Academy begins a new cohort in August)
- Rogers Behavioral Health Mental Health Month 2022 – Together we can reduce stigma
- How to help teens experiencing mental and physical pain from Rogers Behavioral Health
- How to tell the difference between teen experimentation and addiction from Rogers Behavioral Health
- WI Office of Children’s Mental Health April Newsletter
- Looking to destress with music? Mental Health America’s staff has put together a Spotify playlist, “Time to Destress.”
- Pandemic took a toll on teen mental health, US study says from AP News
- Blueprint for Youth Suicide Prevention from American Academy of Pediatrics
- March MHDD Training Center Newsletter
- March Office of Children’s Mental Health (OCMH) Newsletter
- Webinar recording: “Addressing Mental Health & Wellness with Intellectual and Developmental Disabilities During Transition to Adulthood” from MHDD
- Successful Mental Health Initiatives Require School Nurses from Louise Wilson (see page 13 of the latest School Nurse update) on the importance of School Nurses in our students’ mental health
- Rogers Research Center studies show effectiveness of telehealth treatment from Rogers Behavioral Health
- Reframing Language Infographic was designed to change our thinking and the way we talk about mental health and about individuals who experience mental health and/or substance use challenges.
- February Newsletter from the WI Office of Children’s Mental Health
- Trauma lingers for students who experienced repeated seclusion and restraint from Frederick News Post
- Protecting Youth Mental Health US Surgeon General Advisory
- The pandemic has taken a big toll on the mental health of children from NPR
- Trauma-Informed Care for Trans and Gender Diverse Individuals from National LGBTQIA+ Health Education Center
- Mental Health and Developmental Disabilities National Training Center (MHDD) January Newsletter
- 5 tips for good mental health this holiday season from Rogers Behavioral Health
- Practicing Mindfulness from Rogers Behavioral Health
- A mental health discussion for Boys and Men of Color Month Recording from Roger Behavioral Health
- Office of Children’s Mental Health December Newsletter is available
- My Mental Health Ritual: Self-Compassion and Setting Boundaries from TalkSpace
- Positive Childhood Experiences Fact Sheet from WI Office of Children’s Mental Health
- Wellness In Our Schools from NAMI Dane County
- Surviving Painful Holiday Emotions from NAMI Dane County
- Impact Your Work Survey Results for Wisconsin Youth CCS and CLTS Affiliated Staff Supporting Children with Mental Health Challenges During the Pandemic from WI Family Ties and WI DHS
- Mental Health and Developmental Disabilities Equity, Diversity and Inclusion — American Indian Culture
- How to Take the Stress Out of the Holidays from Child Mind Institute
- How to Teach Children Gratitude from verywellmind.org
- Rising Above Depression | Stephanie’s Story from Rogers Behavioral Health
- How to tell the difference between seasonal affective disorder and depression from Rogers Behavioral Health
- 4 Tips to support kids with autism spectrum disorder (ASD) video from Rogers Behavioral Health
- November Newsletter from the Office of Children’s Mental Health
- Treatment Trauma, Race and Mental Health (WISE) Podcast by Dr. Warren Braden on Giving Voice to Depression
- COVID-19 Behavioral Health Policies Affecting CYSHCN: What to Keep, Modify, or Discard? from Lucile Packard Foundation for Children’s Health
- WI Office of Children’s Mental Health Collaborative Impact October Newsletter
- What BIPOC Communities Need From Mental Healthcare from NAMI Dane County
- Wisconsin Office of Children’s Mental Health August Newsletter
- Bringing More Teens Home: Raising the Age Without Expanding Secure Confinement in the Youth Justice System from The Sentencing Project
- New Study Points to Early Childhood Mental Health Consultations as an Important Tool for Addressing Challenging Behavior from New America
- Autistic Mental Health & Well-Being Virtual Training from Autism Society of Greater Wisconsin
- National Minority Mental Health Awareness Month is July — access resources from National Institute for Children’s Health Quality (NICHQ)
- Commemorating BIPOC Mental Health Month from Rogers Behavioral Health
- Self-care and compassion tips for parents of children with ASD from Rogers Behavioral Health
- An alternative to “discipline and order”, teaching children psychological resilience from Mental Health Today
- WI Office of Children’s Mental Health July Newsletter
- Well Badger Mental & Behavioral Health Resource Navigator is officially LIVE!
- Accessing Children’s Mental Health Services Guide Now Available from Wisconsin Office of Children’s Mental Health
- June 2021 Fact Sheet: Improving Quality of Life for LGBT Youth from Wisconsin Office of Children’s Mental Health
- How mental health impacts the LGBTQ+ community from Rogers Behavioral Health
- Finding hope and healing for children suffering from trauma from Rogers Behavioral Health
- June Mental Health and Developmental Disabilities (MHDD) Newsletter:
- Mental Health America’s Tools to Thrive 2021
- Children are waiting longer in the ER for mental health care, study finds from Philadelphia Inquirer
- Enough already! Stop raising awareness and do something! from WI Family Ties
- How do you know when your child with autism has a mental health disorder? from Rogers Behavioral Health
- Autism and mental health facts from Rogers Behavioral Health
- Mental Health Treatment for Individuals with Intellectual & Developmental Disabilities: An Introductory Continuing Education Series from the Mental Health and Developmental Disabilities Training Center
- Parenting Teens with Depression podcast from Rogers Behavioral Health
- Office of Children’s Mental Health March newsletter
- Results: Education and Mental Health During COVID-19 How are Children and Caregivers Doing, Really? from National Federation of Families
- Behavioral Challenges Can Push Youth With Disabilities Into School-to-Prison Pipeline from Juvenile Justice Information Exchange
- Top 3 Most Common Reasons For Bedtime Anxiety from Parenting On Your Own Path by Dr. Emily King
- How Health Care Can Work With Communities to Promote Optimal Mental Health from the Institute for Healthcare Improvement
- Mental Health Issues Affect 3 In 4 Kids With Autism from Disability Scoop
- Changes in family dynamics during virtual learning from Rogers Behavioral Health
- Office of Children’s Mental Health in Wisconsin 2020 annual report
- End Stigma. Change Lives. Talking about Mental Health Rogers Behavioral Health support.
- Creating Light in the Dark Winter from the Compassion Resilience Toolkit
- 6 tips for good mental health this holiday season from Rogers Behavioral Health
- Tips for Teachers and School Staff from Students with Mental Health and Behavioral Challenges from Pacer Center
- Tips for staying RESILIENT during COVID-19 from Resilient Wisconsin.
- Resources on OCD from Rogers Behavioral Health
- Post-Traumatic Growth Might Be the Silver Lining of Trauma — Here’s How to Harness It from elemental
- Five tips for fostering resiliency in children from our friends in Canada via NetNewsLedge
- Behavior Management resources from Child Neurology Foundation
- Understanding Empathy YouTube video by Simon Sinek
- Promoting Healthy Futures: Wisconsin Medical Home partners with CPCP for early identification of mental health concerns from Medical Home Minute
- Reducing the risk of teen addiction New Podcast series from Rogers Behavioral Health
- How is COVID-19 Affecting the Mental Health of Children with Special Educational Needs and Disabilities and Their Families? from NCBI
- NEW BLOGS on mental health and recovery from Rogers Behavioral Health (Struggling with Mental Health, Suicide, Detox, Treatment and more)
- Experiencing Grief during COVID-19 from Child Neurology Foundation
- Anxiety in Schools Podcast Series from Rogers Behavioral Health
- Supporting students with school anxiety during COVID-19 Blog Post by Rogers Behavioral Health
- Q&A: Mental health expert talks emotional well-being, building resiliency for the 2020-21 school year from Community Impact Newsletter
- As schools reopen, addressing COVID-19-related trauma and mental health issues will take more than mental health services from Child Trends
- August Newsletter featuring the Feelings Thermometer, Exploring Racial Equity and more from the WI Office of Children’s Mental Health
- Those with contamination OCD face extra challenges during Pandemic from Rogers Behavioral Health
- Finding hope and healing for children suffering from trauma from Rogers Behavioral Health
- Resilient Wisconsin: Trauma-Informed News and Notes, July 2020 includes information on cyberbullying
- COVID-19 Guide to Supports for People Living with Mental Health and Substance Abuse Concerns from Resilient Wisconsin
- Mental Wellness Newsletter from WI Office of Children’s Mental Health (4.13.20)
- Blogs and Webinars from Rogers Behavioral Health
- UW Department of Psychiatry has put together some awesome mental health resources
- Staying Resilient During COVID-19 Compassion Resilience Toolkit from Wise and Rogers InHealth
- Well-Being Toolkit and Resources from Center for Healthy Minds (UW Madison)
- Handout on Anxiety and Autism–helpful tips from Martha Walter who presented at the CoP ASD/DD in March. (I think some of us might be experiencing some anxiety recently). Presentations from the CoP ASD/DD Anxiety and Autism gathering are available
- Mental Wellness Newsletter including an Anxiety Grounding Technique from WI Office of Children’s Mental Health (5.27.20)
- The Science of Happiness for KIDS! Optimism, resilience, growth mindsets, courage, confidence, and well-being are skills that kids can learn at any age
- Resilient Wisconsin: Trauma-informed News and Notes, June 2020 from Wisconsin Department of Health Services
Resources for Families with Younger Children
- All in For Kids: Birth to 3 Program newsletter is now available in English, Hmong, and Spanish
- Act Early Wisconsin Bright Spot — Lead Poisoning Prevention Efforts in Milwaukee with Shy McElroy (recording)
- John Tracy Clinic (JTC) offers parent education opportunities worldwide. Families enroll in distance education for self-paced learning on the communication of babies, toddlers, and preschoolers who are deaf and hard of hearing.
- All in For Kids: Birth to 3 Program newsletter in English, Hmong, Spanish
- All in For Kids: Birth to 3 Program newsletter is now available in English, Hmong, and Spanish
- WI DHS Birth-3 Program Outcomes Data
- Parent, Family, and Community Engagement (PFCE) Framework from Head Start
- New Experiences with Your Preschooler from Hearing First (ensuring a child who is deaf or hard of hearing has opportunities to reach their full potential through listening and spoken language).
- New Issue of Birth-3 All in for Kids Newsletter in English, Hmong and Spanish
- Identifying and Targeting Social-Communication and Play Skills for Preschoolers with Autism from Young Exceptional Children (2021)
- Helping Children Transition Between Activities from NCPMI
- Training Resources Positive Solutions for Families from NCPMI
- All in For Kids: Birth to 3 Program newsletter
- Video: Birth to 3 Program and Child Protective Services — This video describes the critical role each program plays in serving children who have experienced abuse or neglect
- Lessons Learned from the ECCS CoIIN Coordinating Center’s Evaluative Efforts to increase skills and reduce developmental disparities among 3-year old children from NICHQ
- All in for Kids! Birth to 3 Program Newsletter (English, Hmong, Spanish)
- WESP-DHH Outreach has a YouTube channel with multiple story time videos in ASL
- Every Child Belongs: Welcoming a Child with a Disability from naeyc
- All in for Kids: Birth to 3 Program Sept Updates English, Spanish, Hmong
- DCF has updated the mask wearing recommendations the COVID-19 Frequently Asked Questions for Child Care Providers on the DCF COVID-19 Child Care Resources webpages.
- Video: How Early Childhood Experiences Effect Lifelong Health and Learning from the Center for the Developing Child at Harvard University
- New Issue of All in For Kids: Birth to 3 Program Newsletter Available Online from WI DHS. Includes Family Engagement, Learning and Natural Environments, First 1,000 Days Outreach Campaign, new and improved Birth-3 materials, and helpful resources.
- New Issue of All in For Kids: Birth to 3 Program Newsletter Available Online from WI DHS. Includes Family Engagement, Learning and Natural Environments, First 1,000 Days Outreach Campaign, new and improved Birth-3 materials, and helpful resources.
Healthy Dane, a community collaborative comprised of UnityPoint Health – Meriter, SSM Health, Stoughton Health, UW Health, Group Health Cooperative of South-Central Wisconsin, and Public Health Madison Dane County, is currently conducting a survey to get community feedback on the health of Dane County.
The survey is available in English, Spanish and Hmong until June 30. It’s voluntary, anonymous and takes less than 10 minutes to complete. Survey results will help Healthy Dane address needs, set goals and work together along with other partners to improve the health and well-being of local residents.
• English Language Community Health Survey: https://forms.office.com/r/e9EuQ8NKR8.
• Spanish Language Community Health Survey: https://forms.office.com/r/G4DeqBddT7.
• Hmong Language Community Health Survey: https://forms.office.com/r/rZRyy29Ag.
- The Brain Architects Podcast: COVID-19 Special Edition: How Do We Rebuild and Re-Envision Early Childhood Services? Podcast from Center on the Developing Child from Harvard University
- Promoting Fathers’ Mental Health During Children’s Early Childhood from National Institute for Children’s Health Quality
- New Resources to Help Families Access Early Intervention in Wisconsin — The Wisconsin Department of Health Services (DHS) is excited to launch the First 1,000 Days Outreach Campaign. Through this campaign, DHS aims to help more families who have children with suspected delays or disabilities access the Birth to 3 Program.
- All in for Kids Birth-3 Program Family Newsletter with important information on the COVID-19 Vaccinations. Also available in Spanish and Hmong.
- New Video Fact Sheets from Family Voices on Genetics and Newborn Screening
- What is Genetics?
- What is Newborn Screening?
- What if Your Baby’s Screening Results are Concerning?
- Kindness in the Classroom video series from PBS Wisconsin and the Center for Healthy Minds
- Ready4K is an evidence-based family engagement curriculum delivered via text messages. Each week, you’ll receive short text messages with fun facts and easy tips on how to promote your child’s development by building on existing family routines. Sign up today at Ready4K! from the WI Department of Children and Families
- Considerations for Young Children and Those With Special Needs as COVID-19 Continues from JAMA Pediatrics
- Wisconsin Department of Children and Family Services (DCF) and WI DPI Guidance for Child Care
COVID-19 Letter to District Administrators
New DHS Guidance, DCF Resources, and Digital Equity (8/19/20) Includes: DHS Guidance on COVID-19 Outbreaks in School, DCF guidance documents to help child care providers and local educational agencies as families, schools, and child care providers navigate the reopening of school this fall, (this information can also be found on the DCF website: https://dcf.wisconsin.gov/covid-19/childcare/families) and Support for digital equity
4K Outreach-COVID-19: Guidance and Considerations (8/17/20) Includes: This document provides information for school districts offering 4K Outreach during 2020-2021 school year. It provides guiding questions and examples of outreach efforts that are acceptable during this time of COVID-19. These are offered to support districts in developing outreach activities that best meet the unique needs of their individual districts and communities.
EARLY LEARNING INFORMATION-COVID-19 (8/24/20) Includes: Link to the running updates for Early Learning information for DPI. The above information is included in this document. - COVID-19 Child Care Resources from WI Department of Children and Families
- COVID Resources for Families from Wisconsin Alliance for Infant Mental Health
- Updates and Resources for Wisconsin Child Care Providers, Children and Families from Wisconsin Early Childhood Association
- Resources from Wisconsin Alliance for Infant Mental Health
- Office of Early Learning from WI Department of Public Instruction
- Child Care Resources from WI Department of Children and Families
- Child Care Resources for Families and Providers from WI Department of Children and Families
- Tips for Families from Zero to Three
- Supporting younger children from the Early Childhood Technical Assistance Center
- 6 Online Therapy Tips for Preschoolers With Disabilities During COVID-19 from The Mighty
- Tips for Supporting Infants and Young Children’s Transition as we Re-Open from Wisconsin Alliance for Infant Mental Health
Nuggets from the News
- Medicaid and CHIP: A Tutorial on Coverage for Children and Youth with Special Health Care Needs (CYSHCN) from Catalyst Center
- Fact Sheet: COVID-19 Public Health Emergency Transition Roadmap from HHS.gov
- How Are State Medicaid Programs Approaching the Unwinding of the Federal Continuous Enrollment Provision?
- Supporting the Post-vacation Let-down with your neurodivergent child from Learn with Dr. Emily
- Autism: What the Current Research Tells Us from Parenting Translator and Learn with Dr. Emily
- Showing Up for Our Neurodivergent Kids, with Dr. Tina Payne Bryson from Learn with Dr. Emily Podcast
- What School Was Like for Dr. Emily from Learn with Dr. Emily
- Public Health Emergency and Continuous Coverage Unwinding Resources – from the National Health Law Program
- Unwinding Resources – from the Georgetown Center for Children and Families
- Public Health Emergency Unwinding Resources – from the Kaiser Family Foundation
- How to Teach Your Neurodivergent Child to Travel from Learn with Dr. Emily
- What Parents Raising Neurodivergent Kids Worry About from Learn with Dr. Emily
- What Parents Raising Neurodivergent Kids Worry About from Learn with Dr. Emily
- Why Black History Month needs to feature the stories of the disabled from THINK
- Top 5 Roadblocks to Effective Parent-Teacher Collaboration … and how to break through from Learn with Dr. Emily
- Helping Your Neurodivergent Child Become More Independent from Learn with Dr. Emily
- Was That Behavior Intentional or Was That a Stress Response from Learn with Dr. Emily
- What Parents Mean When They Say Someone “Gets It” from Learn with Dr. Emily
- Is My Neurodivergent Child Ready for Kindergarten? Things to Consider from Learn with Dr. Emil
- Why Mistakes Overwhelm Neurodivergent Kids . . . and how to help from Learn with Dr. Emily
- Parents: This is Why You’re Tired …and what you can do about it from Learn with Dr. Emily
- 3 Steps to Reboot Your Family’s Schedule in the New Year and beyond from Learn with Dr. Emily
- Too Many Therapies? Is there such a thing? from Learn with Dr. Emily
- Teaching Kids to Manage Free Time…this holiday break from Learn with Dr. Emily
- How to Talk to Kids about their Neurodivergence from Dr. Emily King
- Voting News from the Wisconsin Disability Vote Coalition
- Supporting Neurodivergent People in Personal Finance from Moneygeek
- 47 Years Later, Are We Delivering on the Promise of IDEA? from Office of Special Education and Rehabilitative Services Blog
- Analysis: 30 Years After the Americans with Disabilities Act, There’s Still Work to Be Done from California Health Report
- UW-Madison researcher working to shed light on the disability community’s experience during pandemic
- Recording of Oct. 25 public health webinar with DPI and DHS
- Don’t risk a gap in your medicaid or chip coverage. Get ready to renew now! A Communications Toolkit from Centers for Medicare and Medicaid Services
- The Invisible Cost Of Caring For A Child With A Health Condition from Huffpost
- Lagging Coverage for Mental Health Services Among Children and Adolescents through Home and Community-based Medicaid Waivers from Lucille Packard Foundation
- The Wisconsin Department of Health Services (DHS) has issued a public health advisory to inform Wisconsinites about the increased number of deaths caused by drugs laced with synthetic substances, especially fentanyl.
- Patients with Sickle Cell Disease Less Likely to Receive Specialized Care from AJMC
- More states are allowing students to take mental health days off from NPR
- Over 70% of Schools Say Pandemic Effect on Student Behavior, Socio-Emotional Development, Staffing Grew Worse in 2021–22 from The Journal
- Schools Nationwide Expect Special Ed Teacher Shortages This Fall from Disability Scoop
- Report on the Condition of Education 2022
- Disabled and Healthy: Committing to Health Equity for All, Including People with Disability from Mathematica
- How To Access Compensatory Services For Students With Disabilities from Disability Scoop
- The system is in ruins’: Minnesotans with disabilities feel left behind amid workforce shortage from StarTribune
- Burned out by pandemic parenting? You’re not alone from The Ohio State Wexner Center
- ‘Slow-minded’ becomes ‘unique mind’: Somalis in Minnesota create new terms to define autism and build acceptance from Sahan Journal
- Project Home: Mission is to improve the quality and affordability of housing for low-to-moderate income residents in Dane and Green counties
- A Minnesota mom shares the secret world of autism – and how it transformed her life from Minnesota Star Tribune
- Students find common ground through sport from La Times check out Unified Sports Wisconsin
- DSM Update Tweaks Criteria For Autism, Intellectual Disability from Disability Scoop
- Wisconsin Help for Homeowners (WHH) is a new statewide program that can help with overdue bills like mortgage payments, property taxes, utilities, and more. The program is open to individuals and families who live in Wisconsin with overdue housing-related bills, both with and without a mortgage, who meet income and other eligibility requirements, and have experienced a qualified economic hardship since January 21, 2020.
- Creative Expressions Toolkit from Pediatric Palliative Care Coalition
- Evidence That Pandemic Worsened Kids’ Mental Health Piles Up from MEDPAGE Today
- Setting Boundaries and the Power of Saying ‘No’ from MEDPAGE Today
- Consumer Review Site Takes On Adaptive Products from Disability Scoop
- Schools Use Off-Book Suspensions To Push Out Students In Special Ed, Report Finds from Disability Scoop
- Severe Illness in a Child Takes Big Toll on Parents, Siblings: Study from US NEWS
- UW-Madison is key site on landmark study focused on early childhood brain development and the impact of substance abuse and stress in infants and young children from the Waisman Center
- Promising treatment for Alexander disease moves from rat model to human clinical trials from the Waisman Center
- Seizures and memory problems in epilepsy may have a common cause from UW Madison News
- Crime Against People With Disabilities On The Rise from Disability Scoop
- Families Living With Disabilities from Brava Magazine
- Sonja Oetzel was recognized with the Pringle Award for her outstanding service at the Waisman Center
- When Autism and Racism Collide by Lola Dada-Olley
- Feds Update Rules For Disability Employment from Disability Scoop
- Tricks to make Halloween a treat for kids with special needs from Pittsburgh Post-Gazette (10/26/21)
- Reluctant Localities Are Being Dragged Into Court to Fix Sidewalks for People With Disabilities from Kaiser Health News
- I Can’t Do This By Myself! by Jolene Philo on the Key Ministry blog.
- Survey Finds Disability Service Providers On The Brink from Disability Scoop
- Low Wages and Pandemic Gut Staffing Support for Those With Disabilities from Kaiser Health News
- Intervention For Babies Greatly Reduces Odds Of Autism Diagnosis, Study Finds from Disability Scoop
- ‘A new low’: TRICARE cuts services for children with autism, concerning military families from The Fayetteville Observer
- Oshkosh Police Introducing ‘Sensory Bags’ for Autistic Citizens in Crisis from wncy.com
- Growing Up is Hard, Especially for People with Disabilities from California Health Report
- Senators Push To Expand Access To ABLE Savings Accounts from Disability Scoop
- Genetic Testing ‘Strongly Recommended’ For Kids With Intellectual Disability from Disability Scoop
- Disability Service Providers Face ‘Unprecedented’ Labor Shortage from the Sacramento Bee
- JCPenney Unveils Clothing Aimed At Kids With Disabilities from Disability Scoop
- Padres e Hijos en Acción and the Waisman Center University Center for Excellence in Developmental Disabilities (UCEDD), University of Wisconsin-Madison announced a $330,000 grant to improve local health care responsiveness to the needs of Latino families of children with developmental disabilities and other special health care needs in Dane County.
- Wheelchairs welcome: Bernie’s Beach becomes Madison’s first accessible beach from NBC15
- These Sisters With Sickle Cell Had Devastating, and Preventable, Strokes from the New York Times
- Costa Mesa fourth-grader petitions Newport-Mesa Unified for greater accessibility to restrooms from LA Times
- Disability Groups Call Supreme Court Ruling On Affordable Care Act A Victory from Disability Scoop
- Firmer Accessibility Standards Sought For Health Care from Disability Scoop
- Pelin Cengiz, MD (Waisman Center investigator) receives Academic Staff Excellence Awards
- Sent home early: Lost learning in special education from the Hechinger Report
- Biden Urged To Back Broad Changes To SSI from Disability Scoop
- Temple Grandin champions ‘different kinds of minds’ for Autism Awareness Month on PBS from the LA Times
- Why Native American children have higher rates of disability from ABC News
- Program in Tampa addresses autism in Spanish for Hispanic families from Tampa Bay Times
- Biden Budget Includes ‘First Step Toward Fully Funding IDEA’ from Disability Scoop
- Amid Pandemic, ‘Sesame Street’ Aims To Help Children With Autism Adapt from Disability Scoop
- Families With Sick Kids on Medicaid Seek Easier Access to Out-of-State Hospitals from Kaiser Health News
- Trader Joe’s Eyes Improved Shopping Experience For Those With Special Needs from Disability Scoop
- Telehealth Has Been Good in the Pandemic. It Could Be Great Long Term. by Slate
- As Many Parents Fret Over Remote Learning, Some Find Their Kids Are Thriving by NPR
- Republican reps rally behind Britney Spears as they seek hearing on conservatorships from Los Angeles TimesParents wait, or drive across NC, for autism therapy. This bill could change that. From The News & Observer
- Envisioning The Future Of Complex Care from Health Affairs
- It’s Time To Stop Even Casually Misusing Disability Words from Forbes
- Promising Practices to Accelerate Learning for Students With Disabilities During COVID-19 and Beyond from National Center for Learning Disabilities
- Disability and Voting Accessibility in the 2020 Elections: Final Report on Survey Results from Election Assistance Commission and Rutgers
- University Program Aims To Mint More Adaptive PE Teachers from Disability Scoop
- Golden Globe Nominated Autism Movie ‘Music’ Will Get Warning Label from Disability Scoop
- Is the pandemic our chance to reimagine education for students with disabilities? from the Hechinger Report
- Lawmakers Make Push To Fully Fund IDEA from the Baltimore Sun
- “The Dirt” Trailrunning Podcast (1/17/21) Listen to Ryan as he talks about being autistic and wanting to help other autistic people to find happiness, health and community!
- Pandemic Upends Options for Child Care from USA Today Network
- What President Biden could mean for health policy:
Kaiser Family Foundation Issue Brief
HealthWatch Wisconsin Video on Medicaid
HealthWatch Wisconsin Video on ObamaCare
HealthWatch Wisconsin Video on Immigration & Health - Justice Department Settlement Forces Amtrak To Fix ADA Violations from Disability Scoop
- “It’s been a challenge:” The coronavirus pandemic takes a toll on people with disabilities from the Hartford Courant
- Research provides tools for achieving the ‘how’ of well-being in daily life from UW News
- This Michigan company reinvented the mouse with good reason from The Detroit News
- Feds Reach ‘Landmark Agreement’ On Rights Of Parents With Disabilities from Disability Scoop
- ‘Infodemic’ complicates Wisconsin’s public health fight against coronavirus from Channel3000.com
- 11 New Strategies for Juggling WFH and Kids (Because We’re Going to Be Here Awhile) from themuse
- For Kids with Special Needs, Online Schooling Divides the Have and Have-Nots from Kaiser Health News
- Parents reflect on back to school plans, health experts offer tips from NBC15
- Richard Engel: Kids with special needs are not OK right now. Neither are parents. From Today
- COVID questions: Economic recovery, wedding attendance from UW-Madison News
- Wisconsin’s tribes have weathered COVID-19 better than tribes in other states. How did they do it? from the Madison.com
- Caring for an Adult with Disabilities in Retirement from PBS Newshour (with a Wisconsin family)
- Which Kids Get Sickest from COVID-19? The medically complex from NBC News
- The challenge of distance learning for parents of children with special needs from PBS Newshour
- In-home nurses caring for youth with special needs during COVID-19 from KSTP.com
- Mom Equips Ambulances with Sensory Kits from Disability Scoop
COVID-19
- ReSET (Restarting Safe Education and Testing) for Children with Medical Complexity Updates (also in Español)
- Families Under Stress: Assessing Caregivers’ Adaptation, Coping, and Resilience through the COVID-19 Pandemic report and webinar from UW Division of Extension
- Parental COVID-19 Vaccine Hesitancy in Diverse Communities: A National Survey from Academic Pediatrics
- Burned out by pandemic parenting? You’re not alone from The Ohio State Wexner Center
- CDC Adds IDD To List Of Conditions At Increased Risk From COVID-19 from Disability Scoop
- Risk for Newly Diagnosed Diabetes >30 Days After SARS-CoV-2 Infection Among Persons Aged <18 Years from CDC MMWR
- COVID-19 Webinar for Local Public Health and School Stakeholders (1.26.22)
- Webinar and Report: COVID-19 Telehealth Policies Affecting CYSHCN: What to Keep, Modify, or Discard? – Health Management Associates (HMA)
- Children with Complex Health Needs and the COVID-19 Vaccine Family & Caregiver FAQ from ReSET
- An Anti-Racist Approach to Supporting Child Care Through COVID-19 and Beyond from The Center for Law and Social Policy
- Self-testing for COVID from the CDC
- COVID-19 Guidance for Operating Early Care and Education/Child Care Programs (updated 11.10) from CDC
- Public Health is for Everyone Toolkit with an updated section on COVID-19 from Inclusive Public Health Quarterly
- Parental COVID-19 Vaccine Hesitancy in Diverse Communities: A National Survey from Academic Pediatrics
- COVID-19 Webinar for WI Local Public Health and School Stakeholders held on 9/16/21 (recording)
- How do I know when to keep my child home from school? from Allergy and Asthma Network
- COVID-19 Materials for People with Intellectual and Developmental Disabilities and Care Providers from the CDC
- Back to School for Parents and Families from WI DHS
- Parents and Caregivers – What Is Your School Doing to Protect Your Child from COVID-19? from CDC
- Ed Department Weighs In On Special Ed Requirements Amid Ongoing Pandemic from Disability Scoop
- 7 Effects of the COVID-19 Pandemic on Kids from Children’s Hospital Association
- Concerns Grow as Pediatric COVID-19 Hospitalizations Increase from Children’s Hospital Association
- Important Considerations for COVID-19 Vaccination of Children With Developmental Disabilities from Pediatrics
- Back to School with Diabetes in the COVID Era Recorded Webinar Dr. Alonso offers an overview of the current evidence related to Pediatric diabetes and COVID-19, and discusses implications for children and school staff as we prepare for the 2021-2022 school year.
- COVID-19 Policy Flexibilities Affecting Children and Youth with Special Health Care Needs Report from Lucile Packard Foundation for Children’s Health
- Guidance for Operating Youth Camps from the CDC
- Questions and Answers on Civil Rights and School Reopening in the COVID-19 Environment from US Department of Education
- Masks at the Campfire: Summer Camps for Kids With Medical Needs Adapt to Covid from Kaiser Health Network
- Education Forward: Operating Schools During a Pandemic has been Updated by WI DPI
- Get out the Vaccine website from the National Association of Councils on Developmental Disabilities–a site to provide trusted sources to help you make the right decision for you, your family, and your community
- Gov. Evers, DHS: Announce Everyone 16 and Older Eligible for COVID-19 Vaccine Starting April 5 from Wispolitics.com
- COVID-19 Cases Plummet Among Those With IDD Who Are Offered Vaccines from Disability Scoop
- Lawmakers Want Investigation Into Effects Of School Closures On Kids With Disabilities from Disability Scoop
- American Association of People with Disabilities (AAPD) and New America Storybook on Disability in the Age of Covid-19 with Lessons, Recommendations and Personal Stories
- Lack of Covid Data on People With Intellectual Disabilities ‘Comes With a Body Count’ from Kaiser Health News
- We No Longer Need To Keep Up With the Joneses. They’ve Been Parenting In a Pandemic Too. Parenting on Your Path with Dr. Emily King
- Parenting in a pandemic is hard; self-determination theory helps us understand why from University of Minnesota
-
Vaccine Information from Wisconsin Board for People with Developmental Disabilities
Vaccine information for Family Care participants and their caregivers:
https://wi-bpdd.org/wp-content/uploads/2021/01/FC_Vaccine_sheet_FV.pdfVaccine information for IRIS participants and their caregivers:
https://wi-bpdd.org/wp-content/uploads/2021/01/IRIS_Vaccine_sheet_FV.pdfVaccine information for Children’s Disability Programs participants and their caregivers:
https://wi-bpdd.org/wp-content/uploads/2021/01/CLTS_Vaccine_sheet_FV.pdf - Growing Up in a Pandemic: How Covid is Affecting Children’s Development from DirectRelief
- Pandemic-induced trauma, stress leading to ‘uptick’ in SEL need from K-12 Dive
- Down Syndrome has been added to the “increased risk” list by the CDC
- Advocates: COVID-19 Relief Leaves Out People With Disabilities from Disability Scoop
- The Impact of Coronavirus on Households Across America from Robert Wood Johnson Foundation
- Project Connect is a Pandemic Helpline Launches For People With IDD, Caregivers Call 1-888-847-3209. Article from Disability Scoop. Website with more information on Project Connect.
- School Nursing during a Pandemic – Transforming Opportunities Recording and Handout
- Public Health Dane County and Madison allows some holiday gatherings — Emergency Order #11 in effect 12/16/20
- Tips for coping with the unknowns of COVID-19 as winter approaches from Rogers Behavioral Health
- COVID Lessons for Kids and Families from Dr. Emily King
- Building Resilience During Winter Celebrations from Resilient Wisconsin
- Using Parental Controls for TV and Digital Video: Toddlers through Teens from Digital Literacy, Inclusion and Safety Council (DLISC)
- Compassions in Action COVID-19: Stress Awareness and Gratitude from Rogers Behavioral Health
- How to Help Families and Staff Build Resilience During the COVID-19 Outbreak from the Center on the Developing Child Harvard University
- How Art Can Help You Cope with the Pandemic from Cleveland Clinic
- Connect therapy/school from your phone to your TV–https://www.pcmag.com/how-to/how-to-connect-your-android-phone-to-your-tv and https://www.allconnect.com/blog/how-to-connect-your-iphone-to-your-tv
- CDC’s Operating schools during COVID-19: CDC’s Considerations was updated on October 29, 2020
- “Psychological PPE”: Promote Health Care Workforce Mental Health and Well-Being from Institute for Healthcare Improvement
- Education Department Addresses Special Ed Concerns Related To COVID-19 from Disability Scoop
- Engaging in Your Child’s Education at Home from Hands & Voices
- Help for parents, families, and educators as they navigate the new school year during COVID-19 from Rogers Behavioral Health
- Ideas for Activities at Home During COVID-19 Pandemic from National Center on Deaf-Blindness
- Coronavirus Pandemic Challenges Those With Developmental Disabilities from Disability Scoop
- Ed Department Reminds Schools Of IDEA Obligations During Pandemic from Disability Scoop
- Resources from Family Voices Resource eBlast October 2020
- Caring for Children and Youth With Special Health Care Needs During the COVID-19 Pandemic UPDATED Guidance from the American Academy of Pediatrics
- COVID-19: Caring For Children and Youth With Special Health Care Needs (also in Spanish) from healthychildren.org
- When Things Aren’t Perfect: Caring for Yourself & Your Children (also in Spanish) from healthychildren.org
- Busting Mask Myths One Question at a Time from UW Health
- Education Forward: Reopening Wisconsin Schools from Wisconsin Department of Public Instruction
- COVID-19 Special Education Information (PowerPoint slides) from Wisconsin Department of Public Instruction
- Arts Education School Operating Considerations from Wisconsin Department of Public Instruction
- Back to School: How can schools safely social distance; particularly for students with special services and full-time aides? from Child Neurology Foundation
- Ensuring Children’s Access to Care Using Telehealth in Medicaid During COVID-19 from Manatt on Health: Medicaid Edition
- NEW Videos on Wearing a Cloth Face Mask, Washing your Hands and Staying Home When you are Sick in SPANISH and ENGLISH from the National Association of School Nurses
- Returning to School During and After Crisis Practice Guides from Center on Positive Behavioral Interventions and Supports (PBIS)
- August 2020 OSEP Update Responding to COVID-19: Back to School, Policy Letters from Office of Special Education Programs (OSEP) (8.27.20)
- Parents: Supporting Learning During the COVID-19 Pandemic Online Modules from Vanderbilt University
- September Family Engagement Newsletter from WI FACETS featuring information on Assistive Technology and Virtual Learning along with ABLE accounts and trusts
- Coronavirus Video Series has short 2-7 minute video on how public health benefits are impacted by COVID-19 from HealthWatch Wisconsin
- COVID-19 Help (including a Resource Guide for Families) from Wisconsin Well Badger Resource Center
- Strategies for Protecting K-12 School Staff from COVID-19 (updated 8.20.20) From the CDC
- Back to School Planning: Checklists to Guide Parents, Guardians, and Caregivers Includes: Preparing for At-Home Learning and and Preparing for In-Person Classes from the CDC
- What The Coronavirus Means For IEPs This Year from DisabilityScoop
- Special education students are not just falling behind in the pandemic — they’re losing key skills, parents say. From the Washington Post
- Supports for Students with Neurodiverse, and Social and Emotional Needs During Covid-19 Resource list (8/20/20) from WI DPI
- DiSH Special Session on COVID-19 and Schools recording along with a Q and A document (8/20/20)
- How to Thrive — Not Just Survive — in the Age of the Coronavirus: Focus On 5 Core Principles from Thrive Global
- Guidelines for the Prevention, Investigation, and Control of COVID-19 Outbreaks in K-12 Schools in Wisconsin (8/19/20) from WI Department of Health Services
- COVID-19 Decision Tool for Individuals and Families (8/19/20) from WI Department of Health Services
- Education Forward: Operating Schools During a Pandemic (8/19/20) from Wisconsin Department of Public Instruction
- South Madison Community COVID Testing Site at the Park Street Public Health WIC clinic is open Mondays, Wednesdays and Fridays. You need to make an appointment.
- Sauk Co. Health Dept. warns about COVID-19 exposure at Reedsburg district-wide registration event from NBC15
- At-home Learning Resources for the COVID-19 Outbreak from FamilyEducation
- School’s Out: A Parents’ Guide for Meeting the Challenge During the COVID-19 Pandemic from NYU Langone Health
- Preparing to Learn from Home from Victoria State Government (Australia)
- ‘This is hell’: Parents and kids hate online learning, but they could face more of it from USA Today
- “When Should My Child Go Back to School?” is the topic discussed by a school nurse and a child neurologist in an educational series sponsored by the Child Neurology Foundation and the American Academy of Pediatrics
- Teaching Children with Special Needs at Home Recorded Webinar Series The staff of the Autism Society SE WI and guests from Gemiini Systems, a Special Ed eLearning company, have provided a series of free webinars as we partner to make it through these challenging times. Past webinars are available on their playlist on YouTube. Topics: Sheltering in Place to Stay Safe, Building Language Through Play, Keeping Busy, OK. . . Are We Really Doing This?, Working on Life Skills, Quick Behavior Tips and more
- A COVID-19 Preparedness Tool for Families and Caregivers developed by the Stanford Health Literacy Lab
- Coronavirus: Caring for Kids with Special Health Needs article and recording from KidsHealth at the Nemours Foundation
- Ensuring Support Services for Youth with Disabilities and Special Health Care Needs Amid COVID-19 – A Zoom conversation from PolicyLab at Children’s Hospital of Philadelphia, featuring parents, educators, and physicians.
- Coping with Crayons: Kid-Friendly COVID-19 Information– To help children understand the disruption in their lives, Children’s Hospital of Richmond at Virginia Commonwealth University created a coloring book to provide COVID-19 information that children of all ages can easily digest and understand. An article from the Children’s Hospital Association notes that the activity book, available online and in print, also can help parents gauge their children’s feelings about the pandemic.
- CDC Toolkit for Young Adults (15-21) includes printable fact sheets
- Voluntary National Guidelines for Providing and Receiving Respite Safely During the COVID-19 Pandemic from ARCH National Respite Network and Resource Center
- Madison Neighborhood COVID-19 Testing
- The Impact of Lost Therapy Services During COVID-19 and What Parents Can Do in the Interim (Video) from Child Neurology Foundation
- Cloth Face Coverings in School: What Families Need to Know from WI DHS
- Staying Resilient Through the Challenges of Autism During COVID-19 from The Mighty
- COVID-19 Diversity, Equity and Inclusion Resources
- To Parents, From a Family in ‘COVID-19 Mode’ for 10 Years from The Mighty
- Guidance on re-opening during COVID-19 pandemic in ways that protect people with disabilities and older adults from the Wisconsin Survival Coalition
- COVID-19 Special Issue from Exceptional Parent
- How the COVID-19 Pandemic Impacts Kids with Special Healthcare Needs. On a podcast from RadioMD, which features experts from the American Academy of Pediatrics, a pediatrician who focuses on CSHCN discusses ideas for how families can cope with the pandemic, especially when the supports provided by schools are unavailable. Listen to the podcast
- Managing Home Healthcare and Access to Medical Supplies During COVID-19. A video from the Child Neurology Foundation features the father of a young adult who requires 24-hour care interviewing a home health provider about how care is changing. See the video
- COVID-19 Information for Children’s Health Advocates from National Institute for Children’s Health Quality (updated 5.24.20)
- Spanish Language friends/coworkers? Send them to Consejo Latino Para la Salud for videos, testing information and more about COVID-19 from the Latino Health Council
- Being Prepared: What Families Can Do Now Family Voices of Wisconsin Spring Newsletter
- Resources on COVID-19 to Use and Share from The ARC Wisconsin
- Supporting Individuals with Autism through Uncertain Times from AFIRM (Autism Focused Intervention Resources and Modules)
- ABC for Health (Health insurance/benefits) information during COVID-19
- COVID-19 Information By and For People with Disabilities–put together by self-advocates in Vermont
- COVID-19 Response and Resources from Autism Society